Discover and read the best of Twitter Threads about #dysautonomia

Most recents (3)

Here's my latest update to my collection of active Twitter #Disability & #ChronicIllness Hashtags - previous update 12.13.18.

Please share it. Thank you! :-) Light blue sand background has the # drawn in the sand to the right. The left side is blank. <br />
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At the bottom of the picture, text reads
Portable PDF version will appear on my Kofi in the next day or so.

Link: ko-fi.com/TinuWrites
HASHTAGS FOR PERSONAL NARRATIVES

These hashtags are for sharing your stories & experiences. Also helpful for crowdsourcing solutions.

#InvisibleIllness
#MySpoons
#MyPainDay
#ShareOurPain
#ShareOurStories
#SpoonieStories
Read 45 tweets
Something that really sucks about having an invisible disability or illness is people automatically expect you to be able to everything an able-bodied person can. And then they’re surprised when you can’t...

(This is gonna be a thread, by the way...)
And when they (inevitably) say, “But you don’t look ill/disabled/etc” it feels like they’re questioning the validity of our illnesses and disabilities, like they don’t believe us because they can’t see how someone could have an invisible condition.
I have a loose spine due to Ehlers-Danlos Syndrome. I can’t lift medium or heavy items.
One time, I was in a supermarket, about to pay. I had items in a wheelie basket, and the lady at the checkout told me to lift the basket onto her counter.
Read 21 tweets
In case you are also chronically ill and planning for potential power outages or heat waves, here are some things I do or am considering doing for copes

Hopefully this will help someone else
It sounds weird but this dog pad is pressure activated cooling power. It requires no electricity and is reusable. (You can also make it RLY cold in the freezer.)

There are big dog sizes that work for my entire body

m.bedbathandbeyond.com/m/product/chil…
Consider filling a bathtub or bucket/tub with cool water. Dip your feet or entire body in to lower your body temperature.
Read 28 tweets

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