@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole BPS model places increased accountability on patients 4 their rehab & return 2 work . Including that sick role is temporary & that cognitions ,behaviours & social factors interact with physiology & perpetuate disability & reliance on benefits & can B managed 2 restore function
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole That patients/ disabled are to cooperate with rehab and psych social factors are obstacles to expected recovery . This is why if don’t recover 6 months or obstacle to approach referred social services , deteriorate more intensive behavioural rehab IAPT & inpatient units .
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole MUS pathway refer 2 secondary psych if patient can’t come 2 compromise with GP over BPS explanation 4 their symptoms.Back 2 GP when agree 2 deal with symptoms Mental capacity questioned if don’t cooperate.GP can diagnosis MUS any area they feel it affecting management
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole Inpatient behavioural rehab if unable to prevent deterioration, & not time limited but dependent on improvement - Joint Commissioning Panel for mental health report on MUS

Recovery Focus on function not cure

Outcomes must include mental not just physical #MEawarenessHour
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole NICE guidelines retaining rest & sleep restriction & structuring , & all BPS interventions 2 increase activity including CBT focused on thoughts feelings & affect on physiology as per the BPS approach .Claiming prevention & preventing deterioration & increase function . #MECFS
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole All interventions same goals & principles as GET .Goal orientated & 2 increase activity &reduce rest, return 2 work/ school .Contracting more patients when diagnosed & severe in homes with symptom management plans in own words& regular reviews of goals effectiveness & skills
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole BPS behavioural specialists roles 2 manage patients & provide barrage of harm adopted by NICE ect & 2 assist GP in making MUS diagnosis eg paediatric liaison roles .Liaison psych in hospitals ect & GPs specialist BPS interest .Training paramedics Look at network around 1 child
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole When is scientific record going 2B corrected .Just proves their is no safeguarding from those with vested interests,working together 2 design & ensure their own financial sustainability via rights violation, torture & abuse of disabled including children & pocketing public funds
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole Look what happened here where a patient complained about the harm and deterioration experienced . Thread 👉

And another patient asking to sign that she is “recovered” to be sent to her GP . Meaning living a managed lifestyle
#MEawarenessHour
#MECFS
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole UN report 2017 right to health
Said healthcare is 1 of most corrupt sectors of society & normalised criminal activity. Mental health sector is particularly affected by corruption . Lack accountability in relationships between pharma , health and academia. ohchr.org/EN/NewsEvents/…
@me_awareness @postersandme @AliceOutThere @TimC_syd @AtypicalPolioME @hellogeniegroup @tweetingmole Lord Freud weaponised the biopsychosoical model in the work capability assessment to slash welfare costs
It’s also aids financial sustainability for NHS joint health and care providers & interests lobbying to replace social security system with insurance #meawarenesshour #MECFS

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More from @consent_patient

30 Aug
Not sure why charities are asking patients to support the publication of the NICE #MECFS guideline update when the final version hasn’t been made available to view to see if stakeholder comments were included and what changes if any were made . The draft guideline is diabolical!
Thread 👇 the NICE #MECFS guideline update/replacement is a sham - more of the same contraindicated behavioural rehabilitation
Thread 👇questioning independent guideline evaluation ,and IAPT expansion , part of the Five Year Forward View ,and the commissioning of “NICE” guideline development to Royal Collage Collaboration Centers
#MECFS update
Read 18 tweets
29 Aug
@postersandme @keithgeraghty Energy management is Activity Management rebranded as Pacing #MEinterventions

Note analeptic anaerobic energy management by @4Workwell is not mentioned by name or pacing .

Nor is #2dayCPET mentioned in identifying PEM in making diagnosis and contraindicated aerobic exertion
@postersandme @keithgeraghty @4Workwell #MECFS NICE guide update rebranded Activity Management ( recommended in the previous guideline due to similarities with GET and includes all activity types & had no definition or evidence bace ) , as “Energy Management” .Claiming it achieves stabilisation & Activity tolerance !
@postersandme @keithgeraghty @4Workwell They been providing “activity management” already at specialist behavioural services

Maybe they created a stink pausing the publication so that patients demand it’s published,to show that patients support the guideline ?

There should be a round table as this is just rebranding
Read 37 tweets
29 Aug
@postersandme What specialist knowledge & approach do dieticians & paediatricians have ? A specialist interest in medically unexplained symptoms behavioural approach 2 CFS ? That patients being referred 2 by NICE guides .What evidence used 4“supportive” CBT by specialist in CBT for MECFS ?
@postersandme NICE #MECFS guide replacement mentions “supportive” CBT does not “assume” people have abnormal beliefs and behaviour as underlying cause (as is the CBT model for specialist CBT for MECFS from a behavioural perspective )

Yet it still retains it …[1/3]
@keithgeraghty Image
@postersandme @keithgeraghty Yet it still retains the same behavioural BPS mind body perception distress approach and principles of management , to increase activity + reduce disability under guise of well-being and quality of life being: [1/2]
Read 10 tweets
28 Aug
NICE MECFS replacement guideline doesn’t mention objective post exertional malaise . Uses setbacks & relapses again as in 2007 guide

It mentions post exertional symptom exasperation instead in severe section

& mentions fear of relapse or post exertional symptom exacerbation Image
NICE MECFS guide context section started MECFS is a multisystemic disease .

No mention aerobic activity rehabilitation is contraindicated

It says GET and it’s evidence bace is “controversial” and further research being done and another update Image
The context section says no Brain inflammation

Post exertional symptom exasperation (used for PEM) defined in terminology list as being days weeks long .Not months years

No mention objective not subjective symptom proven via two day cpet test & of impaired energy metabolism ImageImage
Read 7 tweets
28 Aug
@MrTopple @TheChronicColab Here are some pointers on the previous 2007 #MECFS guideline which recommended antidepressants , activity management , sleep restriction and PEM management with no evidence bace . Have they done the same with the replacement guide twitlonger.com/show/n_1sqlvok
@MrTopple @TheChronicColab Does replacement guide mention post exertional malaise by name & that it objectively tested via 2dayCPET or does it make non evidence based recommendations for setbacks & relapses again? NHS website Still claiming “pacing”no evidence & not explicitly stating all areasno evidence
@MrTopple @TheChronicColab NICE comment on pause of the guide says “The guideline recognises that ME/CFS is a complex, multi-system, chronic medical condition”
Does it state this in the replacement guide . Wasn’t aetiology and pathology excluded from the scope ? Not included in evidence review questions Image
Read 26 tweets
24 Jul
@sepidgar2 Philanthropic endeavours - a great disguise for terrible crimes

As is the #CrimesAgainstHumanity currently committed under the disguise of “sustainability “
1/2
@sepidgar2 Including funnelling children into abusive social care system via increasing false accusations of factitious induced illness & medically unexplained symptoms ,under the guise of “parity for mental health “ & “sustainability” of private NHS joint providers of health & social care
@sepidgar2 Including negative affects of geo engineering on the natural world & #climate
Seeding oceans, stratospheric aerosols , blocking the sun with dust, to “save the planet from climate change”
As we “save the NHS” through #MUSviolationsHour of the chronically ill & vaccine injured
Read 11 tweets

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