1) #RealPainStories #MedicalTrauma
In addition to having several chronic pain conditions my daughter has a heart condition & a seizure disorder.
She had been established with a PM for 4 yrs until he sold his practice.
After the practice sold she was discharged
In addition to having several chronic pain conditions my daughter has a heart condition & a seizure disorder.
She had been established with a PM for 4 yrs until he sold his practice.
After the practice sold she was discharged
2)because she requested to have an appointment directly after they returned from lunch so that she wouldn't have to sit 3-4 hrs waiting for her appointment.
There were several times that we would apply lidocaine to her entire body in preparation for a procedure &
There were several times that we would apply lidocaine to her entire body in preparation for a procedure &
3)by the time they took her back it had worn off & her pain level was then too high to proceed.
They scheduled her for a procedure in 2 weeks. A week later she received a letter in the mail notifying her that she had been discharged with a 30 day RX.
They scheduled her for a procedure in 2 weeks. A week later she received a letter in the mail notifying her that she had been discharged with a 30 day RX.
4)She ended up in the ER due to withdrawal because 30 days was insufficient to titrate off 2 high dose Opioids.
Her PCP got her into another PM. He reinstated her RX at the previous levels. But told her that in order to continue she would have to see a Neurologist as well.
Her PCP got her into another PM. He reinstated her RX at the previous levels. But told her that in order to continue she would have to see a Neurologist as well.
5)She said that's fine, I have an appointment with my neurologist in 2 months. That wasn't good enough. He required that she see a Neurologist before her next refill appointment in 1 month.
I got her in with 2 weeks.
When she returned for her refill appointment the PM
I got her in with 2 weeks.
When she returned for her refill appointment the PM
6)refused to refill her opioid RX.
He stated "I know that you need them, but my license & practice is more important than your life. I'm too scared of the DEA to prescribe what you need."
At the time he discontinued her Opioids she was on 25mcg patch every 3 days & 4mg
He stated "I know that you need them, but my license & practice is more important than your life. I'm too scared of the DEA to prescribe what you need."
At the time he discontinued her Opioids she was on 25mcg patch every 3 days & 4mg
7)dilaudid every 4 hrs (180 month).
Her "Titration" dose was:
0 - Fentanyl
42 - Dilaudid
Week 1 - 1 3×day
Week 2 - 1 2xday
Week 3 - 1 1×day
Week 4 - 0
Which was a reduction of approximately 75% overnight.
He didn't even bother to discuss her titration with her.
Her "Titration" dose was:
0 - Fentanyl
42 - Dilaudid
Week 1 - 1 3×day
Week 2 - 1 2xday
Week 3 - 1 1×day
Week 4 - 0
Which was a reduction of approximately 75% overnight.
He didn't even bother to discuss her titration with her.
8)The 1st we knew of it was after he left the office and the nurse was handing me her RX.
Needless to say I was extremely concerned about the safety of such an extremely rapid taper given her heart condition & seizure disorder.
I expressed my concerns to the nurse that such a
Needless to say I was extremely concerned about the safety of such an extremely rapid taper given her heart condition & seizure disorder.
I expressed my concerns to the nurse that such a
9)rapid taper could be life threatening with my daughter's comorbidites. When she checked with Dr no adjustments were made.
He had told my daughter that if her neurologist would write a letter stating that the treatment plan was appropriate he would reinstate it.
He had told my daughter that if her neurologist would write a letter stating that the treatment plan was appropriate he would reinstate it.
10)So, I took her back to the. Neurologist who examined her, said the treatment plan was appropriate & that they would send the letter.
My daughter began having 10-15 seizures a day. Made multiple trips to the ER. The ER Dr's were appalled that she had been tapered so rapidly &
My daughter began having 10-15 seizures a day. Made multiple trips to the ER. The ER Dr's were appalled that she had been tapered so rapidly &
11)stated that they wouldn't even taper someone off of heroin that fast.
My daughter has a home health provider through the state. As her condition continued to deteriorate the home health nurse was recommending that I consider Hospice since she was unable to eat due to the
My daughter has a home health provider through the state. As her condition continued to deteriorate the home health nurse was recommending that I consider Hospice since she was unable to eat due to the
12)constant pain & seizures.
Even after receiving the letter from the neurologist, being notified of the seizures & contacted by the ER Dr's her PM refused to either reinstate or adjust the titration.
I got her into her PCP who RX'd long enough to get her to a new PM who made
Even after receiving the letter from the neurologist, being notified of the seizures & contacted by the ER Dr's her PM refused to either reinstate or adjust the titration.
I got her into her PCP who RX'd long enough to get her to a new PM who made
13)her choose between the patch & the Dilaudid.
She chose the Dilaudid. He subsequently Involuntarily reduced her dosage without so much as discussing it with her.
The 33% reduction discovered when she went to pick up the RX & the quantity is different.
She chose the Dilaudid. He subsequently Involuntarily reduced her dosage without so much as discussing it with her.
The 33% reduction discovered when she went to pick up the RX & the quantity is different.
14)In January 2020, her PM changed their office policy. They would no longer RX Opioids to any patient that was on benzodiazepines.
They requested my daughter switch from the benzo to another RX class. We provided medical documentation that it was not possible for her to switch
They requested my daughter switch from the benzo to another RX class. We provided medical documentation that it was not possible for her to switch
15)as she's experienced severe adverse reactions with the other RX classes including suicidal ideations.
Instead of accommodating her disability, they discharged her from the practice because both LTOT & the Benzo were medically necessary.
Instead of accommodating her disability, they discharged her from the practice because both LTOT & the Benzo were medically necessary.
16)We had set up an appointment with a new PM which fell just after the 1st COVID-19 shutdown. Due to the discriminatory practices of Congress & the DEA against Pain Patients in not allowing RXing via telemedicine for 1st time visits she was put into withdrawal.
17)The practice that was supposed to take over her care claimed that they don't RX Opioids & told her to contact her former PM who should resume care due to COVID.
The PM refused. Instead he referred her to a Detox Center that he knew doesn't accept her insurance.
The PM refused. Instead he referred her to a Detox Center that he knew doesn't accept her insurance.
18)The Detox Center agreed to see her for an initial appointment, but refused to take her as a patient because the LTOT were required for her to function. They would not even assist her in tapering off safely.
After her previous experience going through withdrawal & the abusive
After her previous experience going through withdrawal & the abusive
19)behavior she experienced from 1st Responders & Medical Staff she refused to go to the ER for help. I finally had to resort to using Kratom to stabilize her as she was having heart palpitations & multiple seizures daily.
None of her doctors would help her. 😢
None of her doctors would help her. 😢
20)Having to resort to the internet for dosing information, in my opinion is barely a step above having to turn to Illicits to keep my daughter alive.
• • •
Missing some Tweet in this thread? You can try to
force a refresh
