Anonymous Story #16 - Waste of Resources

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[blog post] disabledinhighered.weebly.com/blog/waste-of-…
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#DisabledInHigherEd #DEHEM21 #DisInHigherEd
...this is difficult for me to talk about. I'm chronically ill. I recently graduated with my PhD after 8 years in graduate school. I thought the best way to receive accommodations during graduate school would be to talk to the disabled students office–I was wrong. 2/
As a graduate student, because I was technically an employee, they could only help with accommodations for classes (which I ended up not needing accommodations for). 3/
I went to the office in charge of disabled employees, and they told me that because I was a trainee, I was technically a student, and that they couldn't help me with accommodations for lab. I spoke to my PI about it. He said it was fine, and I was so relieved! 4/
However, as graduate school went on, I saw that he didn't actually have faith in me. I was taken off my project and it was given to someone else. He allotted less time and energy towards my new projects than other people's. 5/
My second year, I was experiencing a flare-up of one of my medical conditions that was so severe, I had to be hospitalized. While I was in the hospital, he told one of my labmates that I was a waste of resources. I thought about quitting, but I needed my health insurance. 6/
I spoke with the ombud, and they weren't helpful either–if they escalated, there was no way of keeping my issues with him confidential, given that I was only one of three graduate students in his lab. I feared retaliation. 7/
I kept pushing myself to continue with accommodations and often overworked myself. In some ways, the response to the COVID-19 pandemic helped me. The accommodations that I had wanted (the ability to work from home) were suddenly routine for everyone. 8/
This was also embittering because it showed that these accommodations were always possible. They just didn't want to give them to me. I did, eventually, finish my research, and defended during the pandemic. I started my postdoc a few weeks ago. 9/
I can't bring myself to ask my new PI about accommodations. I guess I'm just going to do my best to get by without them. I know I'm still burnt out from graduate school, and that this will probably just continue the burn-out. 10/
But once again, I need the health insurance that's afforded by my position to continue to function. I just hope I can keep scraping by & that someday things will get better but I'm very tired.
_
Thank you to the anonymous author for sharing their story. Fin/
#AcademicAbleism

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More from @DisInHigherEd

28 Oct
So the first thread I want to do is tech/applications that have made my science easier and more accessible. Some of them are paid (not always accessible), but I'll try to offer a free version that I've used that may not be as great but worked for me. 1/
I'm not paid by any of these companies and I am welcome to be corrected/supplemented on any of these resources from people in the community. Because we work together, not separately!! So LET'S GO! 2/
Science is hard. And trying to keep track of all the literature can be a pain so I have some resources for that. The trifecta: @RsrchRabbit, @zotero, and Excel Splicer worksheet. 3/
Read 24 tweets
28 Oct
Hi, my friends! Today is my (@AlexisSMobley / she/her/hers) takeover! I'm running on #SpoonieTime, but we're also going to #ReclaimOurTime talking about accessibility and accommodations! 1/ A picture of Alexis Mobley,...
A little bit about me, I'm a doctoral researcher at @MDA_UTHGrad in the @NeuroMDAUTH and Immunology Programs. You can learn more about my research here:
I love the #NeuroImmunology research I do! 2/
I'm also a co-founder, President, and Treasurer of @BlackInImmuno where we amplify, celebrate, and support Black voices in immunology. 3/
Read 6 tweets
28 Oct
The first of the named stories we're sharing comes from @ChrisMillsRD.

We will be posting this story as a thread below, but if you'd prefer to read it as a blog, you can do that.
[blog post]
disabledinhighered.weebly.com/blog/fortunate
(1/7)
#DEHEM21 #DisInHigherEd
I've been extremely fortunate to have had all my accommodation needs met in my undergrad studies, my master's, & now my doctoral studies.

​At all 3 universities, connecting with the accessibility office was easy, although getting the required paperwork did take time & money 2/
I'm fortunate to be supported by an amazing partner who has job security; so, I've been able to afford all the paperwork. All of my professors, except for one, have easily accepted my accommodations. 3/
Read 7 tweets
28 Oct
So I (@theADHDacademic) did a thing and made a website. It might be useful, it might very well not be. It's #ADHD centered, but I talk about accommodations and I've got more posts planned on #UDL and inclusion. My point is, if I've said anything helpful, it might be helpful too?
I cover things like how to register with the disability office: theadhdacademic.weebly.com/advice-as-a-le…
and how to talk to a professor who has denied your accommodation: theadhdacademic.weebly.com/advice-as-a-le…
Read 6 tweets
28 Oct
I have tweeted very little about #ADHD and accommodations during my time taking over this account. Maybe I should take some time to do that...
#ADHD is one of those conditions that a lot of people think they know about, but they really don't. They "know" one narrow experience of #ADHD and they still assume it's bad parenting or lack of effort or something we grow out of.
The stereotype of #ADHD hurts students. So many of them won't register for accommodations because they think it isn't serious, they don't know they can receive accommodations, they've internalized the ableist thought that they can work harder and tough it out.
Read 8 tweets
27 Oct
Let's crowdsource! What are some ways faculty, your dean, department chair, HR, or whoever else has supposedly granted an accommodation

without actually granting an accommodation?

Supposed accommodation: Yes, you can work remotely!
Reality: We need 2 months notice.
I can definitely think of a few from experience and what I often hear.

Supposed accommodation: Yes, you can work remotely!
Reality: You (and only you) need to give a detailed schedule of when you're on campus and you absolutely must adhere to it.
Supposed accommodation: Yes, you can attend part-time!

Reality: All of your funding depends on being full-time. You're not full time? Well then you're not funded.
Read 9 tweets

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