Hi, my friends! Today is my (@AlexisSMobley / she/her/hers) takeover! I'm running on #SpoonieTime, but we're also going to #ReclaimOurTime talking about accessibility and accommodations! 1/
A little bit about me, I'm a doctoral researcher at @MDA_UTHGrad in the @NeuroMDAUTH and Immunology Programs. You can learn more about my research here:
I'm also a co-founder, President, and Treasurer of @BlackInImmuno where we amplify, celebrate, and support Black voices in immunology. 3/
I'm a staunch advocate for all of my intersections: disabled, queer, Black, female, and single mom. If you can't speak loud, know there are others speaking for you. If you have to still hide, that's okay too. I want you to survive. You deserve love, happiness, and joy. 4/
You deserve to thrive. But it would be naive of me to say we are in a space where everyone can do so. I'm going to temporarily open my DMs for anyone that wants to speak more about their accessibility/accommodation stories that I might leave out. 5/
You are precious, loved, and worth. We're going to do tha thang, and we're going to change the world. One voice at a time. I live my life unapologetically. So buckle up, it's going to be a fun but bumpy ride!! -Alexis 6/Fin
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Okay let's talk accommodations! I am grateful to have mine which include working from home during the pandemic and having a research assistant because my #RheumatoidArthritis has hit me fast and furious. But for me, they weren't easy to get... Mainly on the medical side 1/
I live in #Houston, Texas that has the WORLD'S largest medical center in the world. I was required to do a Functional Capacity Evaluation (FCE) because my initial rheum said he wasn't qualified to say what my impairments were... 2/
We had several appointments where I described to him the things I could and could not do. He wouldn't even prescribe me a rollator to get around even though I needed one. I couldn't ambulate well and was in excruciating pain if I attempted 0.1mi walks. 3/
So the first thread I want to do is tech/applications that have made my science easier and more accessible. Some of them are paid (not always accessible), but I'll try to offer a free version that I've used that may not be as great but worked for me. 1/
I'm not paid by any of these companies and I am welcome to be corrected/supplemented on any of these resources from people in the community. Because we work together, not separately!! So LET'S GO! 2/
Science is hard. And trying to keep track of all the literature can be a pain so I have some resources for that. The trifecta: @RsrchRabbit, @zotero, and Excel Splicer worksheet. 3/
I've been extremely fortunate to have had all my accommodation needs met in my undergrad studies, my master's, & now my doctoral studies.
At all 3 universities, connecting with the accessibility office was easy, although getting the required paperwork did take time & money 2/
I'm fortunate to be supported by an amazing partner who has job security; so, I've been able to afford all the paperwork. All of my professors, except for one, have easily accepted my accommodations. 3/
So I (@theADHDacademic) did a thing and made a website. It might be useful, it might very well not be. It's #ADHD centered, but I talk about accommodations and I've got more posts planned on #UDL and inclusion. My point is, if I've said anything helpful, it might be helpful too?
I have tweeted very little about #ADHD and accommodations during my time taking over this account. Maybe I should take some time to do that...
#ADHD is one of those conditions that a lot of people think they know about, but they really don't. They "know" one narrow experience of #ADHD and they still assume it's bad parenting or lack of effort or something we grow out of.
The stereotype of #ADHD hurts students. So many of them won't register for accommodations because they think it isn't serious, they don't know they can receive accommodations, they've internalized the ableist thought that they can work harder and tough it out.
Let's crowdsource! What are some ways faculty, your dean, department chair, HR, or whoever else has supposedly granted an accommodation
without actually granting an accommodation?
Supposed accommodation: Yes, you can work remotely!
Reality: We need 2 months notice.
I can definitely think of a few from experience and what I often hear.
Supposed accommodation: Yes, you can work remotely!
Reality: You (and only you) need to give a detailed schedule of when you're on campus and you absolutely must adhere to it.
Supposed accommodation: Yes, you can attend part-time!
Reality: All of your funding depends on being full-time. You're not full time? Well then you're not funded.