Anonymous Story #18 - Incapable of seeing ableism.

We will be posting this story as a thread below, but if you'd prefer to read it as a blog, you can do that.
[blog post] disabledinhighered.weebly.com/blog/incapable…
(1/8)

#DisabledInHigherEd #DEHEM21 #DisInHigherEd
I was diagnosed with autism in my undergrad career. It was wonderful to be able to understand myself and my needs and do so in a place where I felt safe. But I was sheltered in undergrad, fortunate enough to have a professor open about being ND. 2/
I connected with them more than other students did, not realizing why other students didn’t. And now I continue my journey in higher ed, facing extreme ableism from my PI. I want to make it clear that my PI is a genuinely good person, but is incapable of seeing ableism. 3/
PI has done a lot of work to support many minorities, but has never included disability in that work. The safe space poster in our lab is wonderful but does not mention disability. 4/
I had hoped that if my PI was willing to openly be supportive of many other minority groups, they would also support the disabled community, but I was wrong. One day, after PI pushed a bit too much, I shared my autism diagnosis (thinking I would be safe). 5/
My PI took it well enough, but has openly treated me worse in the time since. I try harder to mask at work and pay the price for it, trapped in a cycle of frustration-days where I don’t mask are worse still. 6/
I used to work for a disabled PI and I know how wonderful the environment could be, but I don’t know if I could ever be the one to change it. And it shouldn’t be on me alone to champion disability rights in my work environment when it’s not what I’m paid for. 7/
These are things that make me consider leaving science altogether.
_
Thank you to the anonymous author for sharing their story. /Fin
#AcademicAbleism #DisInHigherEd

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More from @DisInHigherEd

28 Oct
So the first thread I want to do is tech/applications that have made my science easier and more accessible. Some of them are paid (not always accessible), but I'll try to offer a free version that I've used that may not be as great but worked for me. 1/
I'm not paid by any of these companies and I am welcome to be corrected/supplemented on any of these resources from people in the community. Because we work together, not separately!! So LET'S GO! 2/
Science is hard. And trying to keep track of all the literature can be a pain so I have some resources for that. The trifecta: @RsrchRabbit, @zotero, and Excel Splicer worksheet. 3/
Read 24 tweets
28 Oct
Hi, my friends! Today is my (@AlexisSMobley / she/her/hers) takeover! I'm running on #SpoonieTime, but we're also going to #ReclaimOurTime talking about accessibility and accommodations! 1/ A picture of Alexis Mobley,...
A little bit about me, I'm a doctoral researcher at @MDA_UTHGrad in the @NeuroMDAUTH and Immunology Programs. You can learn more about my research here:
I love the #NeuroImmunology research I do! 2/
I'm also a co-founder, President, and Treasurer of @BlackInImmuno where we amplify, celebrate, and support Black voices in immunology. 3/
Read 6 tweets
28 Oct
The first of the named stories we're sharing comes from @ChrisMillsRD.

We will be posting this story as a thread below, but if you'd prefer to read it as a blog, you can do that.
[blog post]
disabledinhighered.weebly.com/blog/fortunate
(1/7)
#DEHEM21 #DisInHigherEd
I've been extremely fortunate to have had all my accommodation needs met in my undergrad studies, my master's, & now my doctoral studies.

​At all 3 universities, connecting with the accessibility office was easy, although getting the required paperwork did take time & money 2/
I'm fortunate to be supported by an amazing partner who has job security; so, I've been able to afford all the paperwork. All of my professors, except for one, have easily accepted my accommodations. 3/
Read 7 tweets
28 Oct
So I (@theADHDacademic) did a thing and made a website. It might be useful, it might very well not be. It's #ADHD centered, but I talk about accommodations and I've got more posts planned on #UDL and inclusion. My point is, if I've said anything helpful, it might be helpful too?
I cover things like how to register with the disability office: theadhdacademic.weebly.com/advice-as-a-le…
and how to talk to a professor who has denied your accommodation: theadhdacademic.weebly.com/advice-as-a-le…
Read 6 tweets
28 Oct
I have tweeted very little about #ADHD and accommodations during my time taking over this account. Maybe I should take some time to do that...
#ADHD is one of those conditions that a lot of people think they know about, but they really don't. They "know" one narrow experience of #ADHD and they still assume it's bad parenting or lack of effort or something we grow out of.
The stereotype of #ADHD hurts students. So many of them won't register for accommodations because they think it isn't serious, they don't know they can receive accommodations, they've internalized the ableist thought that they can work harder and tough it out.
Read 8 tweets
27 Oct
Let's crowdsource! What are some ways faculty, your dean, department chair, HR, or whoever else has supposedly granted an accommodation

without actually granting an accommodation?

Supposed accommodation: Yes, you can work remotely!
Reality: We need 2 months notice.
I can definitely think of a few from experience and what I often hear.

Supposed accommodation: Yes, you can work remotely!
Reality: You (and only you) need to give a detailed schedule of when you're on campus and you absolutely must adhere to it.
Supposed accommodation: Yes, you can attend part-time!

Reality: All of your funding depends on being full-time. You're not full time? Well then you're not funded.
Read 9 tweets

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