Anonymous Story #19 - Not disabled enough?

We will be posting this story as a thread below, but if you'd prefer to read it as a blog, you can do that.
[blog post] disabledinhighered.weebly.com/blog/pandemic-…
(1/12)
#DisabledInHigherEd #DEHEM21 #DisInHigherEd
I'm currently on my second try at finishing undergrad after having to drop out due to my accommodations not being met. Not surprisingly, I might have to drop out again. 2/
On my first attempt at college, my autoimmune disorder developed in ways I had never dealt with and at the time that typically required me being very close to a bathroom, meds, ice packs and heating pads. 3/
I had a doctor who had no idea what to do for me aside from suggesting accommodations to attend class remotely. I brought those accommodations to my University's disability centre 4/
And I was told that we could request extra absences and the availability of notes and PowerPoints, but it was ultimately up to professors. I followed their instructions with accepting the "good enough" accommodations and submitted them to my professors. 5/
But then I had one professor outright deny any accommodations beyond a note-taker in class. They said if I couldn't come to class, I wouldn't get my points for participation and attendance which was 30% of the grade. 6/
I went back to the centre and they basically told me there was nothing they could do. I received my first ever F in a class despite doing all the work and tests because I couldn't be there in person. 7/
This became a common theme that led me to unenroll so I wouldn't end up flunking out. I decided to re-enrol when I saw that the pandemic made everything remote, the exact accommodation I had tried to fight for in 2017. 8/
Got straight A's with my accomodations being met. Now it's fall of 2021 and I'm being pushed back to in-person and I already have had to miss some days. The student disability centre says I'm not disabled enough to qualify for continued remote accommodations, 9/
so I'm sitting in packed classrooms hoping I don't catch it. I've heard through the grapevine less than 100 students here have been granted remote accommodations through a rigorous process of jumping through hoops. 10/
The final say comes from a committee of people who are not doctors, don't know me, don't speak to me or my doctor who signed in agreement that I need this, simply look at what evidence I could build. 11/
Fingers crossed I can get through 1 last academic year like this because once I'm done I'm never coming back to the sad excuse for a school that loves to pride itself on being diverse & welcoming.
_
Thank you to the anonymous author for sharing their story. /Fin
#AcademicAbleism

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More from @DisInHigherEd

28 Oct
So the first thread I want to do is tech/applications that have made my science easier and more accessible. Some of them are paid (not always accessible), but I'll try to offer a free version that I've used that may not be as great but worked for me. 1/
I'm not paid by any of these companies and I am welcome to be corrected/supplemented on any of these resources from people in the community. Because we work together, not separately!! So LET'S GO! 2/
Science is hard. And trying to keep track of all the literature can be a pain so I have some resources for that. The trifecta: @RsrchRabbit, @zotero, and Excel Splicer worksheet. 3/
Read 24 tweets
28 Oct
Hi, my friends! Today is my (@AlexisSMobley / she/her/hers) takeover! I'm running on #SpoonieTime, but we're also going to #ReclaimOurTime talking about accessibility and accommodations! 1/ A picture of Alexis Mobley,...
A little bit about me, I'm a doctoral researcher at @MDA_UTHGrad in the @NeuroMDAUTH and Immunology Programs. You can learn more about my research here:
I love the #NeuroImmunology research I do! 2/
I'm also a co-founder, President, and Treasurer of @BlackInImmuno where we amplify, celebrate, and support Black voices in immunology. 3/
Read 6 tweets
28 Oct
The first of the named stories we're sharing comes from @ChrisMillsRD.

We will be posting this story as a thread below, but if you'd prefer to read it as a blog, you can do that.
[blog post]
disabledinhighered.weebly.com/blog/fortunate
(1/7)
#DEHEM21 #DisInHigherEd
I've been extremely fortunate to have had all my accommodation needs met in my undergrad studies, my master's, & now my doctoral studies.

​At all 3 universities, connecting with the accessibility office was easy, although getting the required paperwork did take time & money 2/
I'm fortunate to be supported by an amazing partner who has job security; so, I've been able to afford all the paperwork. All of my professors, except for one, have easily accepted my accommodations. 3/
Read 7 tweets
28 Oct
So I (@theADHDacademic) did a thing and made a website. It might be useful, it might very well not be. It's #ADHD centered, but I talk about accommodations and I've got more posts planned on #UDL and inclusion. My point is, if I've said anything helpful, it might be helpful too?
I cover things like how to register with the disability office: theadhdacademic.weebly.com/advice-as-a-le…
and how to talk to a professor who has denied your accommodation: theadhdacademic.weebly.com/advice-as-a-le…
Read 6 tweets
28 Oct
I have tweeted very little about #ADHD and accommodations during my time taking over this account. Maybe I should take some time to do that...
#ADHD is one of those conditions that a lot of people think they know about, but they really don't. They "know" one narrow experience of #ADHD and they still assume it's bad parenting or lack of effort or something we grow out of.
The stereotype of #ADHD hurts students. So many of them won't register for accommodations because they think it isn't serious, they don't know they can receive accommodations, they've internalized the ableist thought that they can work harder and tough it out.
Read 8 tweets
27 Oct
Let's crowdsource! What are some ways faculty, your dean, department chair, HR, or whoever else has supposedly granted an accommodation

without actually granting an accommodation?

Supposed accommodation: Yes, you can work remotely!
Reality: We need 2 months notice.
I can definitely think of a few from experience and what I often hear.

Supposed accommodation: Yes, you can work remotely!
Reality: You (and only you) need to give a detailed schedule of when you're on campus and you absolutely must adhere to it.
Supposed accommodation: Yes, you can attend part-time!

Reality: All of your funding depends on being full-time. You're not full time? Well then you're not funded.
Read 9 tweets

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