Here is a thread breaking down that statement by "medical leaders" on the new NICE guideline for #MECFS
TL;DR It's pretty weak...
1/12
rcplondon.ac.uk/news/medical-l…
TL;DR It's pretty weak...
1/12
rcplondon.ac.uk/news/medical-l…
"Medical leaders" have "signed" (although not using their names(!)), but have their members been balloted? No.
#MECFS #pwME
2/12
#MECFS #pwME
2/12
They agree that it is "important that all patients with this condition are given access to the best possible services and treatments available." Whoopy do. Nobody disagrees, *especially* not NICE
#MECFS #MillionsMissing
3/12
#MECFS #MillionsMissing
3/12
The guideline doesn't go far enough? Nice try!
The "patient groups" point is vague, but notably these groups have conspicuously welcomed the new guideline.
#MECFS #pwME
4/12
The "patient groups" point is vague, but notably these groups have conspicuously welcomed the new guideline.
#MECFS #pwME
4/12
Non sequitur. That mental and physical health are linked is of course a truism. But it does not follow that a mental therapy (e.g. CBT) can be used treat a physical harm (e.g. your broken leg). Sometimes, psych therapy is useless. CBT doesn't "cure" MECFS
#MECFS
5/12
#MECFS
5/12
This "considerable disquiet" is anecdotal. By contrast, patient, clinician, and scientist disquiet with the old CBT/GET guidance is very much on the record. If disquiet really mattered, we'd have had a new #MECFS guideline years ago
6/12
6/12
So they now *agree* that GET as described in PACE (and as defended for years) should never be used.
Glad to see them finally throwing the PACE trial under the bus. Good riddance
#MECFS #pwME
7/12
Glad to see them finally throwing the PACE trial under the bus. Good riddance
#MECFS #pwME
7/12
All #pwME should have access to whatever psychological supports they need. There is nothing special about CBT.
But, again, CBT doesn't *cure* MECFS, which is what the PACE defenders have been claiming for years.
#MECFS is not caused by faulty cognition
8/12
But, again, CBT doesn't *cure* MECFS, which is what the PACE defenders have been claiming for years.
#MECFS is not caused by faulty cognition
8/12
This paragraph sounds like: "all we have is X, so we should give them X (even if it is useless or irrelevant)".
Patients would surely be poorly served by such a throw-it-at-the-wall-and-see-what-sticks approach
#MECFS #pwME
9/12
Patients would surely be poorly served by such a throw-it-at-the-wall-and-see-what-sticks approach
#MECFS #pwME
9/12
We all agree that frontline staff should be trained up on the new guideline. Goes without saying.
In fact, bring it on.
#MECFS #pwME
10/12
In fact, bring it on.
#MECFS #pwME
10/12
"Holistic" is not a particularly scientific term, at least in medicine.
What *is* important is that medical care be based on evidence, which is the core principle of the new NICE guideline
#MECFS #pwME
11/12
What *is* important is that medical care be based on evidence, which is the core principle of the new NICE guideline
#MECFS #pwME
11/12
Argument from authority is not science.
Thankfully, the new #MECFS guideline sticks to the facts and cares little for your self-important reputations.
While the guideline isn't perfect, patients are well served by its modernisation of standards.
So well done, NICE
12/12
Thankfully, the new #MECFS guideline sticks to the facts and cares little for your self-important reputations.
While the guideline isn't perfect, patients are well served by its modernisation of standards.
So well done, NICE
12/12
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