@RcgpFaculties @MartinRCGP @AoMRC @HelenStokesLam @RCSnews
#notinmyname
This statement supposedly from RCs does not represent my views as a Clinical Advisor to the @rcgp. I find it utterly inappropriate for it to have been released after the conclusion of the @NICEComms process.
In fact, I'm embarrassed on behalf of my whole profession, who are allowing a small but vocal minority with vested interests (protecting their own careers) to speak on our behalf. In the context of #LongCovid, many more of us now know the truth about #MECFS.
@doctorasadkhan
#MECFS and #LongCovid are not going to be cured by some exercise & CBT, no matter how loudly those who offer them to unsuspecting patients scream and throw their toys around. If you think you've cured someone with these treatments MAYBE YOUR PATIENT LIED TO GET AWAY FROM YOU!
As @NICEComms have found through their long rigorous process, #CBT for #MECFS has only a supportive not a curative role. #GET graded exercise therapy or ANY "treatment" based on exercise for patients with an energy-limiting disease, EVEN IF YOU TRY TO REBRAND IT is dangerous.
#MedEd Doctors have been fed a diet of low/very low quality evidence on #MECFS for years in the UK. Whilst the rest of the world has moved on with biological understanding, looking for coexistent diseases #POTS #MCAS #EDS #nutrition issues #autoimmune, we stayed in the dark ages.

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