Trigger warning- Will try keep this short. Uncovering the scale of medical gaslighting and corporate corruption. Who teaches our doctors to dismiss medically unexplained symptoms as hysteria?
Lynn Turner- MUS management PowerPoint, Kings College London
She also developed the GAS-light model as way of determining which treatments were worth trialling ie cost effectiveness - gauging effectiveness based on patient set goals for graded assessment. If we set the goals, its not on them if the treatments aren't effective, it's on us.
Michael Sharpe is a psychiatrist&an author of the fraudulent #PACETrial. He does consulting work for insurance companies & advises them that #ME is a mental health disorder. Here he consulting for Swiss Re, classifying #LC as 'health anxiety'-
How MUS research is tainted, Physicians misled / manipulated, yet statistics misrepresented, disinformation still promoted despite to 50% of participants being misdiagnosed 👀 Via Goodelf - opposingmega.wordpress.com/2020/05/01/unt…
Countless media campaigns in news articles, opinion pieces in scientific journals, radio interviews and even talks on national news throughout the Pandemic trying to frame LC as a non issue, pandemic hysteria and point to #BPS tx as the cure - davidfmarks.com/2021/06/06/can…
"the position that scientists take to defend their studies against criticism, has real world consequences. That information doesn't exist in a bubble, it filters out into society & the next thing you know you have a patient popullation who are vilified, ostracised." @b_m_hughes
Link for video containing Prof Bruan Hughes quote. Powerful work by Broken Battery, YouTube.
National Adviser for the Dept of Health for IAPT, for people with Long Term amd Medically Unexplained symptoms - honestly these ppl are in for a rude awakening if they develop LC or ME 👀
There is so much more .. i was adrenaline surging so bad after S.Wessleys latest ... wanted to try put the adrenaline towards something informative-We really need campaigns🥁All out of spoons. Thank you for all your help sourcing the links @nick2155 Big Love to you Brother 🙏💙✨
Didn't even touch on Chalder, White, or the other sadist who's always running her research on kids with ME - I cried so much reviewing this stuff. It has been heavy - We cant deny that, but we must resolve this corruption. #WeAreNotAlone
Before I lost my capacity to type I wrote those posts that are circulating now revealing the embedded corruption within science, academia medicine, media & public health policy. I also shared some of my story👇🏽
Cematics for vagus nerve stimulatin&Nitrous Oxide production- myofascial release, dry needling & trigger point therapy #STO clinical sports therapy for pain and improved gut motility/ paralysis. Reiki, meditation.. has kept me going with esophageal+widespread paralysis since 2015
To be fair I have been putting in 2 hour to 18 hours of manual neuromuscular activation on soft tissue release ever since but my hands are generating so I have trained A multidisciplinary Team in what I do improve my gut motility / innervated small intestine within a month 🙏🏽🤍🕊
Esophageal paralysis still a huge problem-overall paralysis I still have to manage daily until my multiple neurosurgeries-if I even qualify having Endstage nerve damage due to IgG paraproteinemia/an immunoglobulin pathology highlighted as a biomarker for #EBV induced #ME in April
#URGENT Twitter, I need your help-my health is critical I travel abroad to recieve trx in 4 weeks as a #pwME- An anonymous donor has covered the cost of my #HelpApheresis trx🙏🏽🦋 We are Rapidly trying to raise costs co-trx, accommodation, ✈ & care costs. gofundme.com/f/help-Trish-a…
I am severely disabled. I have been since the onset of my illness. I suffered rapid deterioration and I'm now suffering widespread structural degeneration after being gaslit heavily for the past 8yrs. This is a chance to Save My Life. My health has been critical all year.
I have been in and out of A&E all year referred there by my specialists doctors and the ambulance services for emergency plasmapheresis treatment and they keep sending me home because I'm immunocompromised I wouldn't be immunocompromised if they actually treated me.
1/7“The cardinal symptom of ME/CFS – PEM or post exertional exacerbation of symptoms.
……the fact that by definition, patients with ME/CFS are made more ill by aerobic exercise.
This has been unequivocally and repeatedly demonstrated by several research groups and confirmed by"
1/5 Please support our petition. #pwME are calling for a yellow card scheme where treatments offered by NHS services can be monitored and reported if harms are caused.
Such schemes exist in place for drug therapies but not for exercise prescription. change.org/p/department-o…
2/5 This means alot to me, obviously I prescribed exercise as part of my clinical practice. I was a competitive athlete most my life and whilst accessing diagnostics, being prescribed graded exercise made me severly disabled. Something I advocated for, is detrimental to #pwME
3/5 We debunked Graded Exercise Therapy and CBT from the treatment guidelines last week. But the doctors who have been prescribing these therapies and ignoring patients complaints of harms for decades, are insistent on continuing regardless of NICE updating their guidelines.
Deconditioning theory officially expelled !! Scientists prove what's causing exertion intolerance in #LongCovid- Link it to ME findings and likelihood of developing #MECFS. Have we just solved the pathology of acute to chronic post viral sequel?? jornaldepneumologia.com.br/details/3604/e…
"through invasive CPET, that O2 delivery was normal and associated with reduced peripheral O2 extraction and elevated mixed venous O2 saturation compared to controls, resulting in reduced peak VO2, indicating lower diffusive O2 delivery to the mitochondria.(3)"
I was a clinical sports therapist. My degrees in Sports Coaching and Exercise Science. The Royal Colleges insistent claims that exercise is effective for ME are based on a "deconditioning theory" - Not the actual science that proves #pwME are exertion intolerant.
If graded exercise rehab worked for people with #MECFS then why is the recovery rate only 5%? If I could successfully rehabilitate clients post surgery, after years of immobility, chemo damage and serious injury, then why did the principles of GET leave me severly disabled?
I specialised in reversing chronic injuries and musculoskeletal pathologies not just for elite athletes but for children too. GET took away all available hrs I had on my feet to still do my job. And they claim we are just accessing the wrong services ...