in the #DJNCovidForum and already in tears at this collective expression of what we are surviving through as immunocompromised and disabled people
"immunocompromised people cant afford to accept covid as part of our lives because we will die" @JuliaRoseBak
the deep grief of the loneliness and fear we are dealing with
the deep appreciation also of being able to come together online and share experiences and insight and of being here for one another
"we are a stubborn and resilient lot and our commitment to advocate for ourselves and others hasnt waivered" harry
being exposed to covid while seeking hospital care for unrelated medical conditions "this is a position that everyone that is immune compromised is having to deal with coming through... the workforce is pushed beyond their limits" harry
hadley talking about covid and pandemic fatigue, news inaccessible because captions are terrible and often no interpreter, no clarity for deaf community
@endlessyarning speaking on stress of not knowing if sickness is your disability or covid, lack of resources to their communities, no tests, "the colony's mission to make sure Bla(c)k people are disposable, colony's agenda to make sure Bla(c)k people are last"
"the pandemic is not breaking the healthcare system under covid just highlighting the gaps" ajar sana
jan speaking on how migrants accused of stealing resources, made worse when you have disabilities as govt reminds you that you have no rights and no access, chinese people accused of being a virus and experiencing violence and racism
sam grateful that they are no longer in a group home environment. terrified in this pandemic "what is going to happen to me" they need 24 hour support, so much neglect and lack of resources. fear of abandonment not unfounded
renay saying that pandemic reduced access to every kind of support for them and disabled family (but showed how loved they were in immediate family). as support workers get covid its even more strained
harry saying quality of care hugely decreasing, which is driving fear of disabled people, when immunecompromised person accesses care they have to question is this environment safe for me? the space of care is unsafe
this is not a new inequity but an expanding one, use this crisis point to push for fundamental systemic change
things that been helpful to disabled people "friends and community delivering food, prescriptions, medical items, RATs, gifts, cooking, loaning money and resources, telehealth, peer support from other disabled people, access to zoom and workshops online"
@endlessyarning left behind through structural inequalities, culturally safe care is hard to get, encouraging community building and talk about having compassion but seeing a lot of selfishness and lack of personal responsibility which affects access to support systems
ajar saying temporary residents dont get concession cards/ NDIS/ services australia, even for vaccine or healthcare only ppl with diagnoses can access supports, there are so many barriers that start with visa app where if you declare disability your visa can be denied
what does true solidarity and disability justice look like? jan says: system sends message that migrants unwanted and worse if disabled, solidarity recognising your privileges and standing together.
hadley: nondisabled people need to shut up, listen and watch people who are disabled. abolish policies, abolish what govt has done, centre community, allies unpack privileges and help make all spaces safer and more accessible. look on google
tori: abled people need to prioritise disabled voices, autonomy must be recognised. @JuliaRoseBak abled people got some glimpse of what its like to be immunocompromised and disabled during lockdown, but they are willing to sacrifice us to live the lives that are comfortable
doing things like going to festivals or large social events without caring about the longer impacts on whole populations its obvious how rampant ableism and eugenics are. what brings joy is community and relationships with other disabled people.
@endlessyarning need to burn down colony, give landback and prioritise Indigenous governance because this prioritises most vulnerable. tweet they wrote: "remember that disabled people have agency and we dont need you to save us, but listen and be in solidarity with us"
what disabled people want non-disabled people to know “take protective measure always, listen and don’t assume, disabled people are not all the same we have different access needs, put pressure on government to support us”
huge love and thanks to speakers, interpreters, to tori hobbs for faciliation and the @DisabilityJN for organising. this forum has been recorded and all resources will be made available after everyone rests. please follow the @DisabilityJN for more information and #DJNCovidForum
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i have been forced onto unpaid leave by @MSCActions because i am currently unable to move to the country of my work as i am immunocompromised and it is unsafe for me. despite that i can work entirely remotely and am achieving all i need to. i do not want to die for my job.
and not just die. i do not want to be further disabled. sick and disabled workers are continually being coerced into dangerous situations during this pandemic, with no concern for the long term consequences.
i imagine, for many workers, also myself, institutions and bosses frame us as being wilful, making trouble and causing problems, breaking the 'rules'. it is treated as individual blame and punishment. in a global pandemic.
if you're interested in doing an environmental listening workshop with me, sign up here👇its free, accessible and open to anyone, anywhere, and can largely be done at your own pace
and by listening i include sensing, so its not just auditory (ear) listening
please let me know of any access requirements you might have to participate. it will mainly be a daily practice and there will be one collective meeting on zoom that i am working to ensure has live captioning and auslan available
ive noticed over the past months that there is a common lack of knowledge amongst my non-disabled friends around the protocols immunocompromised people are taught to manage infection risk. so i thought id lay some of them out again, incase its useful for other ppl right now
1) masks: every time we leave the house and will be near people we wear masks. either cloth masks that get washed/ boiled after every use, or disposable masks. before we put on the mask we wash our hands. the mask then only gets touched after we wash our hands or sanitize
the mask is only touched on the straps. so if i need to drink water while wearing a mask i wash/ sanitize, hold the mask at one strap, drink water, then replace the strap. i am aware of every single time i touch my face. i make sure not to touch my eyes, unless i wash/sanitize
this is a long thread on #nauru, where i spent last week. nauru is currently most visible as a site for australia’s offshore detention of asylum seekers and refugees. it is also the location of a longstanding #phosphate mine which covers over 2/3 of the island 1/22
#nauru is experiencing considerable #climatechange. im going to outline some of the social-environmental stresses i observed that nauruans, refugees and asylum seekers are facing, and why we need to talk about #colonialism and #environmental racism for #climatejustice 2/22
#nauru is a beautiful island. its main resource is #phosphate. germany colonised nauru in the late 1800s and in the early 1900s the british found phosphate and started to exploit it for fertiliser and munitions with australia and nz, who became nauru’s trustees in the 1920s 3/22