Thread by @exceedhergrasp1

So it appears there is some association with positive SARS-CoV-2 pre-op in kids with appendicitis -- including kids who tested positive but were asymptomatic. A story about how this relates to #MECFS (1/6)
#LongCovidKids #LongCOVID

bmcinfectdis.biomedcentral.com/articles/10.11…

https://twitter.com/1goodtern/status/1487711515310538752

My own story is that I had LRQ pain and was taken to the ER as a kid. It was baby's first medical gaslighting: they made us wait in the ER for hours, never scanned for anything, said I had probably eaten something bad (like I was 1 instead of 8) and sent me home. (2/6) #MECFS

Then, in graduate school, the same pain started up again, this time lasting weeks. Experience is a hard teacher. I did everything I could on my own, too much to list here. My efforts made a dent, and after 1-2 months, it died down to a dull roar. (3/6) #MECFS

Finally, during my ME diagnosis a few years later, my specialist doctor's fingers unerringly found the spot and *pressed down*. I screeched, shocked. It isn't every day that someone palpates there, so I had no idea how bad it still was. (4/6) #MECFS

This was part of his diagnostic algorithm for ME/CFS (along with palpating the place where the skull joins the spine). He didn't press anyplace else. He's the one who diagnosed me. (5/6) #MECFS #LongCOVID #CCI

It still hurts, all the time. But unless someone presses there, it's a 1/10 on the pain scale. Very background-noise.

I asked my GP about chronic or recurring appendicitis.

He shook his head. "No, that's rare," he said. /fin #MECFS #LongCOVIDkids #LongCOVID

(If you haven't been in the chronic illness community long, "it's rare" makes some doctors think they'll never see it. They don't do the math re: how many patients they see per year.)

A pretty good overview of chronic vs acute vs recurrent appendicitis: everydayhealth.com/appendicitis/g…

Since tweets with a quote don't show previews of articles, this is the article that was linked in the very first tweet: #LongCOVIDKids #LongCOVID bmcinfectdis.biomedcentral.com/articles/10.11…