Chimére L. Smith Profile picture
Mar 9 8 tweets 7 min read
Looks like @SocialSecurity sent a 2nd check by MAIL to my home address. I never got the first. Why the $$$ can’t just be deposited into my bank account is beyond me. My brain is melting each time I talk to another agent. #badcustomerservice #DisabilityTwitter
I’ve called EVERY number I have. No one seems to be able to help me get $$$ I’m owed & worked for. If this is what #LongCovid patients have to endure in the next few years, God help us all. @SocialSecurity #DisabilityTwitter #badcustomerservice #Government
“God help us all” are the same words a @SocialSecurity agent used when she said she couldn’t see on her comp screen if a 2nd attempt at payment had been made by mail or direct deposit. #badcustomerservice #longcovid #DisabilityTwitter #Government
By the time @SocialSecurity responds, I’ll be homeless and/or with no electricity. This is a mess. Pissed doesn’t begin to describe how I feel about this. & I’m sure it’s worse for so many others. #badcustomerservice #Government #DisabilityTwitter #LongCovid
No migraines in 2 days. Today, while waiting for an agent to tell me he didn’t know — the 4th agent I spoke to in a 10 days — I got a huge one. Now, people see why we’ve been going so damn hard for 2 years. #badcustomerservice #DisabilityTwitter #LongCovid
Hard to advocating for ourselves while experiencing symptoms. If I didn’t feel horribly about my circumstances before now, I do today. Those of you battling @SocialSecurity, please have every stitch of paperwork you rcv ready. #LongCovid #DisabilityTwitter
Hard advocating*
Continue calling, writing local & federal officials, and use social media to let @SocialSecurity know that we are suffering. We are destitute. Homeless. Hungry. Disabled. And waiting. #LongCovid #DisabilityTwitter #badcustomerservice

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More from @chiluvs1

Mar 7
I’ve spoken to so many Black people who told me their #LongCovid stories by accident. We’ve been keeping it a secret — like we do w/cancer & reproductive issues — but what we often know is that our health concerns are often tossed in a “white room” —
Sound-proof, hollow, with no one to rescue us. I’ve learned about #LongCovid memory issues, migraines, speech impediments, heart problems, & joint pain all by first telling my story. Imagine if I had stayed in a white room, no one would even know I existed.
Let’s do a series on what low income #LongCovid patients should expect as they navigate the condition and local/federal government, @BMore_Healthy & @BaltCityHall #DisabilityTwitter
Read 5 tweets
Apr 7, 2021
I’m so upset — was just told that I don’t qualify for research because of what my medical records say. I can’t understand why researchers can’t correlate my neurological symptoms to #Covid and #LongCovid. This is how we make missteps in medicine.
I just want researchers to tell me how many black people they’ve been able to obtain for their #LongCovid studies because if we miss an opp to research ONE BLACK WOMAN who can share her experiences with OTHER BLACK PEOPLE, we once again miss the mark.
Because as far as I can see, there is little to no research about black people’s experiences with #LongCovid. First, it was I needed a +PCR test and now my medical records don’t support my neurological symptoms that arose because of #Covid.
Read 8 tweets
Apr 7, 2021
Second Pfizer dose done. 👏🏾 #longcovid
Been wondering about delayed vaxx reactions. 1st dose: 3/13. I’ve been having a bout of increased inflammation and joint pain in my knees & lower body. Also experienced some tummy issues over the last two weeks. #longcovid
Surprisingly, my brain fog has decreased. #longcovid #vaccinations #vaxxed
Read 4 tweets
Sep 13, 2020
We have to be really careful of #Covid19 support groups that claim to be inclusive but don’t want to talk about the racial disparities in healthcare or statistics that clearly state who this virus affects most. #longcovid
If I can’t have a discussion about being a black woman struggling with this virus and the racism that while seeking treatment in a #Covid19 support group, I don’t want it.
Having this virus isn’t a public relations job for me. This is real. It affects me every single day. #longcovid #covid19 #blackpeople #chronicillness
Read 8 tweets
Aug 23, 2020
Is anyone else afraid of the lack of black women voices in #longcovid conversations? If anyone knows how challenging it is to be heard by doctors, it’s us. From fibroids to infertility to cancers to endometriosis, we already have lived being disbelieved.
Prior to having #longcovid, I had been privileged in a sense. I had never had a health condition that wasn’t believed by medical professionals. But babyyy, since contracting #covid19, I’ve learned and lived this nightmare for five months.
You can’t be a smart, black woman while describing symptoms and challenges of #longcovid. It is NOT allowed. During a recent hospital stay, I argued with a doctor who told me that #covid19 didn’t cause neurological problems. He didn’t want to hear me.
Read 11 tweets

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