Thread by @TomKindlon

🧵
New Zealand:
“Scientists studying potential link between [#ChronicFatigueSyndrome] & #longCovid struggle for funding”

stuff.co.nz/national/healt…

On Prof Tate & his research team. He seems like the sort of scientist we really want in field.

#MEcfs #PwME #MyalgicE #CFS #CFSME
1/

2/

“A small Dunedin-based team of researchers are critical to
understanding fatigue disease in New Zealand, but they might not be
around in another year.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PostViralSyndrome #PVFS #LongCovid #MEcfs #CFS #PwME #PwLC #MyalgicE

3/

“Emeritus Professor Warren Tate says it took two decades for #chronicfatiguesyndrome research to be taken seriously, yet after a decade of good work it is still a mission to secure funding.

As of this week, they still didn’t have the funding to continue in 2023”

#MEcfs #CFS

4/
“This was despite ongoing studies showing an overlap between #myalgicencephalomyelitis/#chronicfatiguesyndrome (#ME/#CFS) and #longCovid, the former of which 25,000 Kiwis suffer from, and the latter which could affect up to 100,000 people”

#MEcfs #PwLC #postviralillness #PwME

5/
“The small, skilled team were passionate and willing to keep going, he [Prof Tate] said, but still struggled to be seen as a priority by funders.

It didn’t help that there was a reluctance to group #ME/#CFS research into #longCovid studies, he felt”

#MEcfs #PVFS #PwME #CFSME

6/

“Tate thought it [difficulty getting funding for their research] was due to ongoing misinformation. In some circles, he said, people still thought fatigue diseases like #ME/#CFS were in patients’ heads”

#ChronicFatigueSyndrome #MEcfs #CFSME #SEID #MyalgicE #PwME #MEeps #MyE

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“A eureka moment for Tate was finding a [#MEcfs] molecular signature. More
recently, unpublished data still being crunched by researcher Katie
Peppercorn indicated this signature “very closely overlapped” with
people suffering from #longCovid”

#CFS #ChronicFatigueSyndrome

8/

“It’s so much more than just being tired all the time. There are so
many symptoms…there’s no cure, just adapting to a new normal.”

But that could change. Part of her research is seeing if illnesses
like #ME/#CFS runs in families (contd)”

#MEcfs #ChronicFatigueSyndrome

9/

“(Contd) which could lead to finding a cause, and then possibly a treatment.

She said Covid-19 had created a sense of urgency. “Hopefully that might mean a lot of change.”

#MyalgicEncephalomyelitis #postviralillness #CFS #PostViralFatigueSyndrome #MEcfs #CFSME #PwME

/end

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"Professor Tate’s #ME/#CFS & #LongCOVID research 2022"
alumni.otago.ac.nz/donate/myalgic…
Includes a donation link

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #Covidlonghaulers #PwLC #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness