#Thread
The importance of protesting.
A personal (late recognised) #ActuallyAutistic perspective.
I struggle to understand why we’re being so acquiescent when the government’s taking a wrecking ball to the economy, social justice, and the natural world.
We should protest more.
1/
I was brought up not to make waves, to be obedient and law abiding.
My instinct was always for justice and truth though, and the importance of protesting soon dawned on me.
Children are subjected to various sorts of tyranny.
Protesting is one of the ways we protect ourselves.
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We soon realise how futile protesting can be, in terms of overcoming injustice, and achieving something better.
But not even to try is such a desperate position to adopt.
Giving in, letting go of the hope of influencing things, accepting our powerlessness, is a kind of death.
3/
There are times when that is exactly what we have to do to survive.
Stay still.
Not make a sound.
But while this may help us to escape immediate danger, we may suffer harmful consequences from our silence in the longer term.
Injustice may burn within us for a very long time.
4/
I felt more strongly about issues than many other people from early childhood.
I took action even if it came at a considerable cost.
Not doing so extracted a terrible personal price.
I discovered very late that my passion for #SocialJustice is part of my #autistic identity.
5/
Being overwhelmed can incapacitate us, and I think that’s what is happening now.
We are surrounded by chaos, confusion, and threats of various kinds.
The government’s using this as a smokescreen.
Tearing things apart while we’re all still stunned.
We’ll come around eventually.
6/
Some people are still awake.
They can see what is going on.
They are watching things unfold with the dreadful clarity of a car crash, just before a collision is inevitable.
They feel compelled to do something, so they shout warnings even though most people can’t hear them.
7/
When the smoke clears, and we wake up, we will be faced with a scene of utter devastation.
We will wonder why we allowed this to happen, how so few people subjugated the many.
How nothing was safe from exploitation for profit, not even the natural world, which sustains us.
8/
When I walked to work yesterday I saw several protests.
Two elderly women in the market place were collecting signatures on a petition opposing fracking.
Evangelists protested their faith with placards and street preaching, and homeless people seemed to be protesting silently.
9/
But the majority of us were preoccupied with working, shopping or socialising.
‘The world is too much with us; late and soon, Getting and spending, we lay waste our powers: Little we see in nature that is ours; We have given our hearts away, a sordid boon!’ #WilliamWordsworth
10/
When I signed the petition against fracking the elderly women collecting signatures were mystified and upset by how lots of people simply didn’t care.
I was on my way to work, one of a few jobs I’m juggling at the moment.
Like many people most of my energy goes on surviving.
11/
We can’t rely on the people who’re supposed to be in charge.
Nor can we rely on mainstream media to keep us informed.
There’s a risk of the human race sleepwalking into disaster.
Thank goodness for protestors when ‘for this, for every thing, we are out of tune’ #Wordsworth
12/end
The fiscal event will simply entrench the appalling inequality which already exists in the UK.
‘The Government says it is on the side of the British people but it has clearly chosen to turn its back on millions who are on the lowest incomes.’ @R_McDonald_ Chief Economist @jrf_uk
#Thread
#Autism awareness and acceptance really matter because stigma, prejudice, and lack of trauma informed, ‘experience sensitive’ approaches perpetuate structural inequalities and injustices.
In my locality #SocialCare needs of autistic adults come under the #MH service.
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I saw an unqualified Assistant Psychologist in the #CMHT after my #autism diagnosis.
I wanted help with the existential crisis of late autism diagnosis but ended up being gaslighted.
I realised what was going on and discharged myself after explained what iatrogenic harm meant.
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A few months ago a combination of factors (none of them to do with mental health) meant that I needed social care support.
Because I am #Autistic I was told that my assessment would be carried out by the MH team.
I was so traumatised by my last contact with them I declined.
3/
#Thread
Adjusting to a very late in life #autism discovery.
How my life has changed 5+ years on.
Like many #Autistic people I had experienced repeated episodes of #burnout and #trauma.
By the time I reached my late 50s I was exhausted.
I had no energy to get going again.
1/
This quiet breakdown could easily have gone unnoticed or been explained by a number of other things.
I’d always been quirky and different, a highly sensitive, deeply empathic person.
My distress could have been attributed to a personality issue, or to anxiety
and depression.
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Through good fortune and serendipity I found my way to a service that helped me to start making sense of my life.
The process of acceptance, adjustment, and self-advocacy has continued since then.
It’s not enough for me to adapt, other people need to make accommodations too.
3/
I feel blessed to have reached the age of 64 with much of my life still intact.
When everything began to unravel in my 50s it wasn’t clear why.
My career (which had been reasonably successful, if somewhat disjointed) got derailed.
My personal life started falling apart too.
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Without understanding why this was happening, it would have been impossible to remedy the situation.
I’d have carried on pulling at the loose threads until there was nothing left at all.
Discovering that I was #Autistic gave me the answers I needed to start to repair my life.
2/
What needed fixing wasn’t me, it was my living and working environments, and communication between me and other people.
Although I’d realised that interpretation and translation prevented misunderstandings, I hadn’t recognised my language and culture were distinctly Autistic.
3/
On the second anniversary of my #autism diagnosis I wrote a thread about #bullying (not realising that it was my #autieversary at the time). It was very appropriate though, as bullying and abuse have had a huge impact on me, especially in adulthood. #ActuallyAutistic 3/
#Thread
Rebuilding a career after a late in life autism diagnosis.
Personal reflections of a very late discovered #ActuallyAutistic person, 4 years on.
1/
Burnout was a factor in me finally finding out I was autistic.
I’d become overwhelmed and exhausted.
I’d drifted to a halt, and then couldn’t get going again.
I was overloaded by being bullied at work, being in perimenopause, unresolved trauma and my partner’s serious illness.
2/
A demanding new job immediately after my diagnosis didn’t kickstart recovery from burnout like it would have done previously.
What the psychologist had told me about taking ‘baby steps’ was true, even though I didn’t want it to be.
I finally realised I couldn’t afford not to.
3/
#Thread
Why it’s sometimes difficult to know how unwell I am.
A personal autistic perspective.
I’ve been feeling rotten since Sunday, with some kind of respiratory illness.
After 3 years of respite from colds and flu it came as a bit of a shock.
I haven’t had Covid yet either.
1/
I wasn’t too worried to begin with, as my partner was ill before me.
After 2 or 3 days he started to feel better, and I assumed I’d be the same.
Unfortunately I’ve been getting steadily worse.
Less energy.
More coughing.
Less desire to eat.
More sleeplessness.
Strange pains.
2/
I’m almost always in some kind of pain so that in itself isn’t a reliable indicator of being unwell.
Nor is severe fatigue, which occurs so regularly it seems normal.
I rely on objective symptoms like fevers, rashes and swellings.
Tests are a bonus, if they are available.
3/