I've seen a few people ask why is #endometriosis on @rteliveline such a big deal?
Why has the conversation stirred up such emotion?
Why do we bother?
A wee thread 🧵
In Ireland, like the rest of the world, #endometriosis takes an average of 9 years to diagnose. Longer if you present under the age of 25 and if fertility is not an immediate concern. I've met many women who have been misdiagnosed for over 20 years.
During this time many are misdiagnosed with mental health issues, attention seeking, IBS, painful periods, cystitis etc
This costs both the individual and the health system time and money.
The healthcare deterioration in this time can be devastating to the woman.
I spoke with @andreagilligan@LunchtimeLiveNT You can hear @MarianHarkin and I follow (1pm) #Endometriosis is a subject I am passionate about, I have lived with it for 33 years. I am still seeing the same failures as when I fought for my own diagnosis.
It is time to change this, I have seen too many people hurt, damaged, lose their fertility, their organs, their quality of life. We need to reduce the diagnostic delay. Disruptive research and technology like @CailinAI play a role to lead people to effective surgery earlier.
Appropriate education of both the public (through school level programmes) and healthcare professionals (all HCPs) is required. A massive campaign worldwide.