Lots of sadness about Twitter potentially going or significantly changing among the #LongCovid & #ChronicIllness communities. Also remember how It amplified voices that could’ve not been heard otherwise on issues like #pandemic #science #racism #GenderEquity. But don’t despair 1/
We know how to do it now so we’ll do it again. Preferably on platforms not totally controlled by billionaires and not using our connection to gain massive profit and increase inequalities. I’m an optimist on this. Because life is change. Nothing stays the same. However 2/
It’s important that those who found solace & empathy on here don’t lose that. I’m now using Mastodon (non-profit SM platform with far less hostility and toxicity so far) and I see a place for less heard communities getting established there. Find me on @nisreen@mastodon.online 3/
Don’t get put off by all the Twitter snark about it being an echo chamber or too complicated or ‘lefty’ or ‘woke’ & all that nonsense. It’s a way to connect, share and listen to each other. It’s a way to express humanity & solidarity. And if it also goes we’ll find another 🤗 4/

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More from @Dr2NisreenAlwan

Nov 8
1/ Systematic review of the prevalence of #LongCovid

Now out as a preprint (not peer reviewed yet). It was a LOT of work. So grateful to my co-authors for their monumental effort: @MirembeWoodrow @NidaZiauddeen Darren Greenwood @vlutje1 Rebecca Thomas, @AthenaAkrami Chales Carey
2/As expected we found a huge variation between studies (0-93%). Prevalence generally higher in studies with mostly hospitalised patients. Because of our search period, studies estimating prevalence post vaccination were not included but we know these generally show lower numbers
3/ The main message is that the way #LongCovid is defined & measured affect prevalence estimation. However, even with the most conservative estimates, given past and continuing #SARSCoV2 infection, the burden of chronic disease post infection on population health is substantial.
Read 7 tweets
Nov 7
Hey, you can say the UK needs to train more doctors and nurses without throwing NHS workers who trained abroad under the bus. Easy.
Totally fine if you wanna unfollow me for saying this btw.
..and please please spare me the patronising talk about stealing healthcare staff from poor countries. However, poor countries may benefit from UK politicians taking a break from anti-immigrant rhetoric to focus a bit more on fair policies though!
Read 4 tweets
Nov 4
1/ I'm back to feeling excluded.

Recently I got an invitation to an evening networking event that thought leaders in my professional field attend. I can't go. Because it's not local to me and I have no childcare arrangement for that evening. Not a big deal? Please hear me out..
2/ In 2020/21 I attended similar ones virtually. I didn't feel excluded then. I was able to participate, meet great people & generate new opportunities for work within my discipline. Many colleagues (mostly women) shared the same sentiment with me. A positive step for equity...
3/ Most people organising/attending such events champion equality, diversity & inclusion. But this is not equitable. It's not really about me because I'm more senior in my career now. It's about those more junior in their career trying to juggle caring & health issues with work..
Read 6 tweets
Oct 30
Two thirds of Leave votes believe I'm not 'truly British'. Gosh, that's pretty traumatising.

Data source: bsa.natcen.ac.uk/latest-report/… Image
And more shocking: a third of Remainers!
*Voters, not votes.
Read 6 tweets
Oct 29
“Long Covid is a problem that we have recognised early as a substantial issue” is a statement that I would very strongly dispute for the US, UK & any other country that allowed mass covid infections in unvaccinated populations in 2020 to make.
@ashishkjha
We were shouting from the rooftops and policy makers weren’t listening.
And don’t say how could have known? We didn’t know, and that’s the point!
Read 5 tweets
Oct 19
1/ Recently I saw a tweet essentially saying that scientists with big Twitter following tend to ‘follow their crowd’ (my paraphrasing). That is they’ve build a big following by saying certain things and they tend to stick to the same themes to keep their following. Well...
2/ I agree this is a thing, but not only with scientists or only on Twitter/any online platform. It is also thing within politics , religion, social movements etc way before the invention of social media.

So is it a bad thing?
3/ Yes, it is really, and anyone in a position of thought leadership should be worry about it. I think good leadership means evolving with time and with more understanding of the issues and taking others with you on this journey by explaining the reasons for your evolution.
Read 6 tweets

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