🚨Attention all those who value patient-led research! 🚨
In partnership with @CMSSmed & funded by @PCORI, we have developed scorecards that evaluate how effective a patient group and research partner collaboration will be at conducting truly patient-led research
In partnership with @CMSSmed & funded by @PCORI, we have developed scorecards that evaluate how effective a patient group and research partner collaboration will be at conducting truly patient-led research
The goal of these scorecards is to demonstrate how patient groups and research partners can improve their inclusion of patients in the research process so that the research centers patients and leads to improved outcomes for all.
We're hosting 3 webinars that will explain the scorecards & teach you how they can be used to promote patient-led research. The scorecards were developed based off our experience partnering w/ research organizations, as well as from interviews w/ patients, researchers, & funders
Target audience is patients/patient orgs interested in collaborating on research, researchers and research orgs who want to better incorporate patients in their study design process, and funders who want to fund research that meaningfully involves patients
The first webinar is this Thursday, January 19th at 3pm ET and will cover Research Organization Readiness and Integration into the Research Process. Register here: us06web.zoom.us/meeting/regist…
The second webinar is Thursday, January 26th at 3pm ET and will cover Patient/Partner Governance and Patient Burden. Register here: us06web.zoom.us/meeting/regist…
The third and final webinar is Thursday, February 2nd at 3pm ET and will cover How to Improve Your Score and serve as a Q&A session. Register here: us06web.zoom.us/meeting/regist…
The scorecards themselves will be posted publicly soon for all to use - stay tuned!
And here they are!!! Scorecards that evaluate Research Organization Readiness, Patient Burden, Patient-Partner Governance, and Integration into the Research Process are available at this link: cmss.org/wp-content/upl… 
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