Discover and read the best of Twitter Threads about #t1d

@diabeteschat

1/14
Time for another #thursdaythread in collaboration with @diabeteschat.

This one is about 'time in range' (TIR)⏰

It was requested during this week's #diabeteschat session.

This thread aims to define TIR and identify recommendations for TIR.

2/14
What is 'time in range'?

It is a measurement of CGM sensor data highlighting how much time glucose levels are within a specific glucose range for a 24 hours period:
· 3.9 – 10.0mmol/L (70 – 180 mg/dL) for adults.
· 3.5 – 7.8mmol/L (63 – 140 mg/dL) during pregnancy🤰

@ATTDconf

3/14
Where did TIR come from?

In 2019, the @ATTDconf congress brought together a panel of individuals: #pwd, healthcare professionals and researchers with expertise in CGM.

They developed CGM target percentages of time within, below and above the glucose range⏰

Read 15 tweets

@diabetes_chat

1/14

Time for another #ThursdayThread🧵

In collaboration with @diabetes_chat.

This one is all about diabetes-related language🗣️

For me, it is a topic that really does matter🌟

#diabeteschat #GBDoc

2/14

Language is a sensitive subject for many with #diabetes, and so it should be.

Words spoken or written can affect the receiver in many different ways.

So it's important to be aware of language that an individual with #diabetes has a like 👍/dislike👎 to.

3/14

As a person who lives with #t1d I prefer to say that I am a person who lives with #diabetes rather than a diabetic.

But I know others that prefer to be called a 'diabetic'.

What do you prefer?👍

Read 14 tweets

@diabetes_chat

1/15
Time for another #thursdaythread 🧵

In collaboration with the brill @diabetes_chat

This week is all about #diabetes diagnosis.

A moment that I personally will remember forever.

#diabeteschat #gbdoc

2/15
Do you remember the date when you or your family member were diagnosed with #diabetes?

Or as I call it 'D-day'.

3/15
Mine was 4008 days ago on 12th February 2012 🗓️

My blood glucose level was 30.6mmol/L🩸

I had my glucose measured in accident and emergency🏥

But the events that led to that moment was not smooth.

Where were you or your family member diagnosed with #diabetes?

Read 15 tweets

@diabetes_chat

1/16
Time for another #thursdaythread 🧵
The first in collaboration with the awesome @diabetes_chat
This one is all about #diabetes peer support 🫂

#diabeteschat #GBDoc

@uhlinptdiab

2/16
This thread will help you to:
- Understand what peer support is.
- Identify the benefits and interests of peer support.
- Highlight the principles of peer support.
- Discuss key examples of peer support.

The information is from a presentation I did today for @uhlinptdiab

3/16
So first let's find out what peer support is.

Here is a nice short video which gives a great explanation.

Read 16 tweets

Evie Asterwyn | Author of The Star Kin Chronicles

Pens to Pumping

1/14

It's almost 200 days since I started using an insulin pump🗓️

So I thought I would reflect by creating a🧵covering:
What is pump therapy?
Why I switched from MDI?
What pump I chose and why?
How I switched?
What difference has it made?

#gbdoc #diabeteschat

2/14

What is pump therapy?

Insulin pump therapy is also known as a continuous subcutaneous insulin infusion (CSII).

It's basically a programmed pump that delivers rapid acting insulin through an infusion set to help manage glucose levels.

@TandemDiabetes

3/14

What type of insulin pumps are there?
There are two main types:

One type are tethered e.g. @TandemDiabetes T Slim, @MDT_Diabetes 780G, @mylife YpsoPump.

These pumps consist of a portable pump device, a canula that is inserted into the skin, and small tubing.

Read 14 tweets

Harriet Minter

@HarrietMinter

#worlddiabetesday and also two years to the day since I went to A&E thinking I was just a bit stressed & left three days later with a diagnosis of type 1 diabetes. This is what I’ve learned in two years of managing a chronic condition that most people think is a joke 🧵:

1. It’s physically exhausting. Essentially your body is trying to kill you and spending a lot of energy on that, so it makes everything else twice as tiring as it was before. Be nice to your friends with diabetes, they are exhausted.

2. The mental load is insane. Every time you eat anything / do any exercise / the weather changes (seriously) you have to do advanced level maths to work out what impact this will have on your blood sugars and how you will manage it.

Read 10 tweets

@EvieAsterwyn

@LillyPad

Regarding @LillyPad and the false announcement that insulin would be free. From a girl living in a country (NZ) where insulin costs me, through our big pharma subsidisation program $5 per insulin type per quarter, and OTC around $40-60 a vial. A Thread. /1

@LillyPad

@LillyPad First of all, I'm tagging you in every tweet of this thread. Hopefully all your rich disgusting shareholders will read this and realize the true cost of the money you feed them. After hearing what I went through, I hope your black hearts give out. SHAME ON YOU ALL! /2

@LillyPad

@LillyPad I am a 38 year old, who was diagnosed in '85 at 3 yrs old with this nightmarish, unforgiving, difficult to control, and stressful disease, Type 1 Diabetes (T1D). As with most diabetics I was put on a regime of 2 insulins per day, a long acting twice a day, which /3

Read 26 tweets

Tim Street

@Tims_Pants

@NHSLdn_CN

If you're in #Lomdon and have #T1D, you may be interested in this thread. It outlines the @NHSLdn_CN for Diabetes pan-London plan for #cgm access.

There are three linked documents and some commentary.

#GBDoc

/1

The first document is the written pathway, that outlines the suggested implementation of NG17 across London:

england.nhs.uk/london/wp-cont…

#CGM
#GBDoc
/2

The second document is a list of systems, split into three lists.

List 1 is the "specialist rtCGM" that needs your clinic involvement.

List 2 is FP10 (on prescription) rtCGM.

List 3 is FP10 isCGM (scanned).

england.nhs.uk/london/wp-cont…

#CGM
#GBDoc
/3

Read 10 tweets

@OPENDiabetesEU

🧵How can #HCP assist people who chose to use #DYIAID?

The @OPENDiabetesEU ⤵️
▶️ Katarina Braune is a co-founder
▶️ Patient-led
▶️ 2/3 of the international team live w/#T1D
▶️ #OpenSource #AID data

#ISPAD2022 #dedoc°voices #wearenotwaiting @dedocORG @ispad_org 1/n

@dedocORG

How can #HCP assist people who chose to use #DYIAID?

#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 2/n

@TheLancetEndo

How can #HCP assist people who chose to use #DYIAID?

International consensus statement on #OpenSource automated insulin delivery ⤵️
✅ Published in @TheLancetEndo on Nov 13 2021
▶️ thelancet.com/journals/landi…

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n

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@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG 1/n

@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'Task-shifting & task-sharing: moving a task on from one #HCP to another & where staff from different discipline split the tasks. We are very interested in task-shifting in #T1D'
-Emma Klatman ❤️

ISPAD2022 #dedoc° 2/n

@lifeforachild

@lifeforachild /@ispad_org survey - shifting responsibility:
'We want to document the level of task-shifting and understand who from the clinical team is doing what. We established en survey in 2021 in many languages.'
-Emma Klatman ❤️

#ISPAD #ISPAD2022 #dedoc° @dedocORG 3/n

Read 8 tweets

@lifeforachild

The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

Missed T1D diagnoses are legion 💔

1⃣9⃣8⃣7⃣ Sydney: a 15yo boy passed away because of misdiagnosis as he'd just had chicken pox

#ISPAD #ISPAD2022 #dedoc°voices @lifeforachild @ispad_org 1/n

The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

1⃣9⃣9⃣6⃣ Phnom Penh: no child alive with T1D in Cambodia then.
A boy had a late diagnosis, had had a dose on #insulin, but no fluid yet. He passed away 💔

#BG: 105mmol/1890mg

#ISPAD2022 #dedoc° 2/n

@lifeforachild

The tragedy of non-diagnosis of #T1D, results from the #T1Dindex -G. Ogle:

2⃣0⃣1⃣5⃣ Ghana: an 18yo girl was misdiagnosed with ectopic pregnancy because of acute abdomen, died during theatre where T1D diagnosis was made 💔

#ISPAD2022 #dedoc°voices @lifeforachild @ispad_org 3/n

Read 13 tweets

@dedocORG

🧵Digital health for improving self-care and mental health in youth with T1D:

Benefits of tech:
▶️ scalable particularly in mental health interventions
▶️ reduce stigma
▶️ accessible 24/7
▶️ taylored tools
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°@dedocORG @ispad_org 1/n

@dedocORG

Digital health for improving self-care and mental health in youth with #T1D:

Challenges of tech:
▶️ access
▶️ literacy
▶️ security
▶️ clinicians awareness
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°voices
#diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n

@dedocORG

Digital health for improving self-care and mental health in youth with #T1D:

Challenges of tech:
▶️ engagement matters
▶️ make sure to include users during development
-Anna Serlachius

#ISPAD #ISPAD2022 #dedoc°voices
#diabetesadvocacy #payitforward @dedocORG @ispad_org 3/n

Read 8 tweets

@dedocORG

🧵 Sleep quality and patterns in children with #T1D:

Sleep deprivation can ⬆️ mental health issues like depression, a greater emotional response & difficulty to control emotions.
-Alice Gregory

#ISPAD #ISPAD2022 #dedoc°voices #patientvoice #payitforward @dedocORG @ispad_org 1/n

@dedocORG

Sleep quality and patterns in children with #T1D:

T1D is a 24/7 monitoring. It never stops at night.
Kids w/T1D have shorter sleep patterns and have poorer sleep quality.
-Alice Gregory

#ISPAD #ISPAD2022 #dedoc°voices #patientvoice #payitforward @dedocORG @ispad_org 2/n

@dedocORG

Sleep quality and patterns in children with #T1D:

Kids w/T1D have a different sleep architecture with less time in deep sleep whereas sleep is vitally important and particularly for kids w/T1D.
-A. Gregory

#ISPAD #ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n

Read 4 tweets

@dedocORG

🧵#ISPAD #dedoc° symposium:

Dedoc° started 10y ago on Twitter:
✅ Peer support
✅ Meetings outside of scientific conferences cause #PwD were not allowed in

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n

@tadorna

#ISPAD #dedoc° symposium:

ISPAD was the 1st scientific conference that organised a Dedoc° symposium in 2021 🙏
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n

@tadorna

#ISPAD #dedoc° symposium:

Dedoc° is a platform for others to stand on - to have the #PwD voices heard 🔊
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 3/n

Read 16 tweets

@dedocORG

🧵#diabetes prevention : are we on the right track?
Here are the players in the development of #T1D 👇
-M. Knip

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #patientvoice #payitforward @dedocORG @ispad_org 1/n

@dedocORG

#diabetes prevention : are we on the right track?
The different stages of #betaCells autoimmunity:
1⃣ Normoglycemia
2⃣ Presymptomatic dysglycemia
3⃣ Symptomatic dysglycemia
Primary prevention shld start during pregnancy.
-M. Knip

#ISPAD2022 #dedoc°voices @dedocORG @ispad_org 2/n

@dedocORG

#diabetes prevention : are we on the right track?
Early life infection may be the initiator of the endotype. There is a step autoantibodies decline among those diagnosed before 7yo.
-M. Knip

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n

Read 7 tweets