#WorldPhysio2023 following our #LongCOVID discussion session yesterday … here is a list of some useful resources that are freely available

1) @LongCOVIDPhysio Video Series - available in Arabic, Bangla, English, Mandarin & German
longcovid.physio/long-covid-vid… 2) @WHO #LongCOVID rehabilitation guidelines

longcovid.physio/our-work/who-l…

Really proud to have been a member of the @WHO Guideline Development Group for #LongCOVID Post-COVID Condition #Rehabilitation released today app.magicapp.org/#/guideline/64… Topic 1: Components and functions of rehabilitation care #LongCOVID

One year ago @WorldPhysio1951 published the briefing paper led by @LongCOVIDPhysio on safe #LongCOVID rehabilitation. This was specific to the topic of physical activity & exercise. The reach of this publication is immense, and continues to impact on practice, research & policy.

https://twitter.com/WorldPhysio1951/status/1405107359035310080

How has this publication helped you? We would love to hear the stories and testimonies about the personal impact of the @WorldPhysio1951 briefing paper on safe #LongCOVID rehab.

Emerging evidence of pathogen reactivation following #SARSCoV2; with flare ups of EBV and Herpes seen in #COVID & #LongCOVID. Could we translate learning from other knowledge areas? Eg: the presentation of Immune Reconstitution Inflammatory Syndrome (IRIS)? 🧵 IRIS is observed when peoples immune systems recover after immunocompromisation. Classically when people have IRIS there’s risks of re-ermergent dormant pathogens or conditions.

Today I got home after a weeks holiday exploring Suffolk & Norfolk with the boyf. We had an amazing time & loved the coast. I was also #LongCOVID symptom free despite being very busy & active. Here’s a beach pic 🧵 on a particular thought about the terms “tired” & “fatigue”. I’ll start by saying how bloody happy and grateful I am that I had a holiday (staycation), I was able to do everything we wanted, and #LongCOVID symptoms didn’t feature at all (also there’s no cure I have, other than time & pacing).

#GlobalPT there are many opportunities to access 🔊🆓🔊education about #LongCOVID. As #COVID19 ⬆️ & ⬇️ in different parts of the world 🌍 Physios should not loose attention on the long term consequences of this 🦠 virus & 👷‍♀️SAFE rehab... here’s a 🧵 on current resources 💙👇 @WorldPhysio1951 made the #WorldPhysio2021 Congress #LongCOVID discussion session 🔊OPEN ACCESS🔊 and 🔊🆓🔊 for all (thank you @WorldPhysio1951 🙏🏻) longcovid.physio/our-work/world…

Measuring NEW #disability in ppl living w #LongCOVID 🧵
👉 Symptoms & Quality of life assessed by patient reported outcome measures #PROMs
👉 among 325 ppl in UK who survived hospital admission w #COVID19
👉 at least 3 month follow-up after discharge
assets.publishing.service.gov.uk/government/upl… 1️⃣ Primary outcome = self reported recovery at least 3 months after initial COVID-19 symptoms

2️⃣ Secondary outcomes =
👉persistent symptoms
👉breathlessness (MRC dyspnoea scale)
👉new disability (Washington Group Short Set)
👉Quality of life (EQ-5D-5L)

I am living with #LongCOVID. I am experiencing multi-dimensional and episodic disability, across all dimensions of disability. My primary symptom is fatigue & post-exertion malaise. Along with other symptoms. I want to describe the nature & extent of disability I experience. I have used the @WHO International Classification of Functioning Disability and Health (#ICF) to describe the nature of my disability living with #LongCOVID who.int/classification…