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Spotlighting ideas, news, and research related to the debilitating disease ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) #MECFS | by @winstoncb

Nov 12, 2021, 10 tweets

Dr. David Putrino is a physical therapist with a PhD in neuroscience. He runs @PutrinoLab at Mt Sinai, which builds state-of-the-art tools to rehabilitate those w/ #LongCOVID & other conditions. 🧵

bit.ly/mecfsquotes-pu…

@MountSinaiRehab @microbeminded2 #PolyBioPodcast #MECFS

2/ The most devastating words for the severely unwell: “Your lab results look great!”

It means science/medicine has nothing for you… or that your doctor doesn’t even believe your suffering is real.

Dr. Putrino’s perspective brings hope.

#LongCOVID #MECFS #MedTwitter

3/ Rehabilitation can help, but for many it is not a cure. Dr. Putrino offers a counterpoint to all those selling silver bullet solutions, subtly blaming all those who remain chronically ill.

Rehabilitation. Rigorous biomedical research. We need both.

#LongCOVID #MECFS

4/ Doctors are human, but also hold a special responsibility. When it comes to treating chronic illness many need to #dobetter.

#LongCOVID #MECFS #medtwitter

5/ Putrino to fellow medical professionals: quiet your ego and keep working the problem.

#LongCOVID #MECFS #medtwitter

6/ Those who are unwell did not choose to be that way. Neglect, or even scorn, from medical professionals multiplies the burden of illness.

#LongCOVID #MECFS #medtwitter

7/ Doctors may choose an “easy option” to avoid having to say “I don’t know” but patients deserve better.

Doctors who aspire to a higher standard of care exhibit empathy, courage, and humility to keep working with patients with complex cases.

#LongCOVID #MECFS #medtwitter

8/ Decades of scientific literature and patient reports indicate the harms of exercise in #dysautonomia #MECFS and related conditions.

#LongCOVID #POTS

9/ The sheer number of new #LongCOVID patients exhibiting exercise intolerance may finally turn back the tide of bad science that has led to the mistreatment of so many patients. #MECFS #dysautonomia #POTS

10/ Listen to the full #PolyBioPodcast episode with Dr. Putrino, hosted by Amy Proal @microbeminded2: bit.ly/mecfsquotes-pu… #LongCOVID #MECFS

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