Dr. David Putrino is a physical therapist with a PhD in neuroscience. He runs @PutrinoLab at Mt Sinai, which builds state-of-the-art tools to rehabilitate those w/ #LongCOVID & other conditions. 🧵
3/ Rehabilitation can help, but for many it is not a cure. Dr. Putrino offers a counterpoint to all those selling silver bullet solutions, subtly blaming all those who remain chronically ill.
Rehabilitation. Rigorous biomedical research. We need both.
9/ The sheer number of new #LongCOVID patients exhibiting exercise intolerance may finally turn back the tide of bad science that has led to the mistreatment of so many patients. #MECFS#dysautonomia#POTS
1/ While some like Dr. Ian Lipkin are more bullish on there being biological commonalities between #longCOVID (that resembles ME/CFS) and #MECFS, Dr. Maureen Hanson urges caution — and the continuation of dedicated ME/CFS research.🧵
1/ Dr. Peter C. Rowe has been the director of the Johns Hopkins Children's Center Chronic Fatigue Clinic in Baltimore, MD since 1996. He has published over 20 studies on #MECFS and #POTS with a focus on pediatric ME/CFS.🧵 @HopkinsMedicine#longCOVID
1/ Dr. @resiapretorius has found signs of vascular pathology, including microclots in the blood, that could be causing widespread tissue hypoxia — potentially explaining the debilitating symptoms in #LongCOVID, and maybe even #MECFS.
1/ Dr. Ian Lipkin is internationally recognized in the use of molecular methods for pathogen discovery w/ 30+ years of experience in diagnostics, microbial discovery and outbreak response. He runs the ME/CFS Collaborative Research Center at @ColumbiaMSPH. #MECFS#LongCOVID
2/ On a recent panel, Dr. Lipkin referenced emerging #MECFS biomarkers uncovered by the Collaborative Research Centers, which may be applicable to #LongCOVID.
He also noted biological commonalities he has found between ME/CFS and Long Covid in preliminary analyses.
3/ In the past Dr. Lipkin has been known for his role in a $2.3M study (published in 2012) that showed no evidence supporting the theory that ME/CFS is caused by the XMRV retrovirus.
At an @MEActNet press briefing back in March, Dr. Anthony Komaroff confirmed his earlier prediction that we had reason to expect some w/ COVID-19 would develop a debilitating chronic #LongCOVID syndrome with symptoms similar to post-viral #MECFS. bit.ly/mecfsquotes-ko…
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Dr. Komaroff suggested that the underlying pathology of #LongCOVID may be similar to problems that have been observed in #MECFS.
Long COVID researchers can refer to ME/CFS research across the past few decades for a substantial head start.
ME/CFS: a final common pathway that can be triggered by different things?