Thread by @DipeshGopal

1/13 #FOAMed #MedTwitter

Everything I've learnt about living and beyond #cancer research (#lwbc) over the last 3⃣ years in this 8⃣ minute video! #survonc #survivorship in primary care covering:

➡️ Research
➡️ Policy
➡️ Practice
➡️ Future Directions

🔗:

2/13

I wrote a couple of articles in:

@BJGPjournal 🔗: bjgp.org/content/70/694…

@CHematology 🔗: sciencedirect.com/science/articl…

👆🏽 But summarised the content in the video above 👆🏽

@Nicholas_Ralph

3/13

🤔 What is "living with and beyond cancer" or #cancer #survivorship❓ #survonc #lwbc

The definition depends on who you talk to! Is it at diagnosis, at the start of treatment or after treatment has finished?

🔗: bjgp.org/content/61/592…

🔗: cancer.net/survivorship/w…

4/13

🤔 Why is "living with and beyond #cancer" important❓ #survonc #lwbc #survivorship

More people are living with and beyond cancer worldwide due to better diagnostics and treatments.

@macmillancancer 🔗: macmillan.org.uk/documents/abou…

@cebp_aacr 🔗: cebp.aacrjournals.org/content/25/7/1…

5/13

🤔 Why is "living with and beyond cancer" or #cancer #survivorship important❓ #survonc #lwbc

Whole person impacts:

➡️ Physical: scars, fatigue

➡️ Psycho-social: isolation, fear of cancer coming back, depression

➡️ Financial: cannot return to their job

@BreastDocUK

6/13

@NCRI_partners teamed up with @lindalliance to find out what the priorities are for living with and beyond #cancer research. #lwbc #survonc #survivorship

🚨 Top priority: best models to deliver care - what/where/who? 🚨 @Rachel_NCRI

@NCRI_LWBC 🔗: ncri.org.uk/lwbc/

7/13

Most patients and clinicians agree that the community is the best place for cancer care but this needs more funding/resources.

What are the main tools for delivering living with & beyond #cancer care? #survonc #survivorship #lwbc

Care plans have a more coordination role.

8/13

Holistic Needs Assessments can be helpful up to 1 year.

But it might be better to measure engagement with services. #cancer #survonc #survivorship #lwbc

@drtessthompson @AnthonyPerreMD @aliepea

🔗: onlinelibrary.wiley.com/doi/abs/10.111…

9/13

But survivorship care plans do not improve health or patient outcomes.

Probably as the studies vary too much in design, methodology and outcomes. #cancer #survonc #survivorship #lwbc

@ASCO_pubs 🔗: ascopubs.org/doi/full/10.12…

@OncJournal 🔗: theoncologist.onlinelibrary.wiley.com/doi/full/10.16…

10/13

In the UK, we use the Recovery Package thanks to @macmillancancer. #cancer #survonc #survivorship #lwbc

@macmillancancer 🔗: macmillan.org.uk/about-us/healt…

🔗: learnzone.org.uk/stack.php?s=30

@rcgp @RcgpFaculties 🔗:
rcgp.org.uk/clinical-and-r…

11/13

@DrN_CancerPCP and @rayychan wrote about how to move forward here: bjgp.org/content/70/694…

#cancer #survonc #survivorship #lwbc @LesleyLesleys @NitaKarnikLee

12/13

🤔 Could remote consultations help to build better relationships between oncologists, patients and primary care❓ #cancer #survonc #survivorship #lwbc

Not everyone has access to this. @DrJeffSisler @TTrabjerg
@ProfNDerakshan

@BJGPOpen 🔗:
bjgpopen.org/content/early/…

13/13

Thanks to @ProfilesRegistr @IKNL @kwf_nl for having me and my supervisor at @QMULBartsTheLon for their time and effort. 🙏🏽

👆🏽 What do you think? (non #COVIDー19, sorry!) 👆🏽

@trishgreenhalgh @Liz_ORiordan @CharSquires @vjplested @rocketgirlmd