Chandra Pasma Profile picture
Jul 16, 2020 7 tweets 3 min read Read on X
We got an email from the OCSB yesterday asking about our school plans for the fall. Honestly, we don't have any plans until we see their plans. But seeing what they're proposing so far, I have real concerns as a mom to three #Longhaulers.
Obviously, we want to prevent our kids from getting sick. That should be our first and foremost concern. But we can't eliminate all risk, which means that some kids are going to get sick. So what happens then?
How long do kids have to stay home if they get sick? When can they return? Can they go back to school if they still have symptoms as long as they had a negative test? Or do they have to stay home as long as they have symptoms?
If kids have to be symptom-free,then Kid 3 would not have been allowed in a classroom for 4 straight months and would still not be allowed back even now.
What happens if they start showing symptoms again after a period of being asymptomatic? If no symptoms, Kid 1 would have been in & out of school repeatedly for the past four months. Even Kid 2, who has been largely asymptomatic for the past couple weeks, was sneezing again today.
And if kids are not allowed in a classroom as long as they have symptoms, then how do we make sure these kids aren't left behind? The OCSB is talking about online cohorts. Will they be added to an online cohort? Or will they be on their own?
Of course, all of this would be easier to plan for if we had good research on what is happening with #CovidLonghaul, when #Longhaulers stop being infectious, and what therapies or treatments work best for Longhaulers. #Covid19 #ApresJ120 @PublicHealthON

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More from @ChandraPasma

May 1
Know why Stephen Lecce wants us all talking about cell phones (again)?

So that we’re not talking about how harmful his latest funding formula is for our kids.

A🧵.

1/16
#onted
First off, let’s acknowledge what this is once again: a funding cut. For the sixth straight year, the Conservatives’ education funding does not keep pace with inflation or enrollment growth.

2/16🧵
#onted Image
If funding had just kept pace with inflation since 2018, there would be $1000 more per-student in 2024-25. That represents a loss of more than *$2 billion* for our education system this year.

3/16🧵
#onted
Read 16 tweets
Oct 4, 2020
I’m concerned about the growing tendency in some circles to equate #LongCovid with #MEcfs. I think this is bad for both #Longhaulers and ppl living with ME/CFS. A thread. 👇
2. Before I start, let me be clear this is not a swipe at the #MEcfs community which has been hugely supportive of #Longhaulers, sharing tips & resources & lots of moral support. I am very grateful for that support.
3. Nor is this to deny the reality that some #Longhaulers have developed or are on track to develop #MEcfs. We know from the first SARS that this could end up being a significant number of #COVID patients.
Read 26 tweets
Sep 21, 2020
1. This is a thread for my fellow #Longhaulers who are about to lose access to the #CERB on Saturday. I know some are quite worried about financial supports so this is a look at your options. As you'll see, it's quite a dog's breakfast. #COVID19 #LongCOVID #ApresJ180 #cdnpoli
2. The first stop is Employment Insurance Sickness Benefits. #EI eligibility was frozen in March, so if you were employed or self-employed but paying premiums and had accumulated enough hours for eligibility, you will now transition to EI sickness benefits.
3. It's not clear yet whether a medical note will be required if your illness is due to COVID-19. If it is, it can be signed by a doctor, psychologist, or chiropractor. You do not need a diagnosis to get a note (although you do need a sympathetic health care provider).
Read 17 tweets
Sep 16, 2020
Update Day 184: The Six Monthiversary of my onset of symptoms.

I'm happy to report that three of us are asymptomatic and Kid 3's cough is so sporadic that she's nearly asymptomatic.

#COVID19 #Longhaulers #LongCovid #ApresJ180 #CovidandKids
I will probably use asymptomatic for a long while rather than recovered, because as we've seen before, being symptom-free now doesn't mean they won't come back. I also remain paranoid about things like rashes & hugely swollen bug bites, although there's no reason to believe...
they're related to Covid. It will just take a while for the anxiety reflex to go away.

As for me, I'm having a really good week, including lengthy periods of the day where I have no symptoms at all and others where my only symptom is tinnitus.
Read 7 tweets
Sep 11, 2020
Journalists frequently ask me if my family is pursuing antibody testing to prove we had COVID. Draw up a chair and let me tell you why that question is so problematic.
#Longhaulers #LongCOVID #ApresJ150 #CovidAntibodies
2. A negative antibody test doesn’t necessarily mean you don’t have antibodies and it certainly doesn't mean you didn't have COVID. First of all, the accuracy of C19 antibody tests has been questioned by the CDC and others. Some C19 antibody tests have a high false negative rate.
3. For instance, some of the tests authorized by the FDA have a sensitivity rate under 90% - which means if 100 ppl are tested, 10 or more will be told they don’t have antibodies when they actually do. And that’s the rate reported by the manufacturer, not the rate in actual use.
Read 20 tweets
Aug 28, 2020
I spoke to @maywarren11 of the @TorontoStar about the need for better research and care for Cdn #Longhaulers. One of the most fascinating nuggets in this piece is the difficulty that the CANCOV study has had finding participants:
thestar.com/news/canada/20…
I'm part of three different forums with Cdn #Longhaulers, two of which have thousands of members. We all shared the information on the study as soon as we learned of it - and then we all shared the massive disappointment of discovering we could not participate.
Canada's massive screwup on testing back in the early days of the pandemic is still having an effect now on patients' ability to access medical care, sick leave and disability supports, and now its delaying the research into our condition.
Read 4 tweets

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