Quick answer: #rights. Did the work on this well over a decade ago, before #GDPR was even a twinkle in Jan's eye.
Longer answer: '#ownership' (just like rights) doesn't get you shit if it ain't #enforceable / #enforced *in practice*. Hence all the current effort going into...
(Not forgetting that - on the evidence of human behaviour, power imbalances, etc. - many, if not most, wouldn't relish or even know what to do with such sovereign #responsibility, much less be able to wield it outside a #rights framework.)
I'm sure this 'debate' will run & run, but '#ownership' of #PersonalData (as opposed to, say, #IntellectualProperty - around which law developed differently) is a dangerous fantasy. And a distraction.
Nah. This is another puff piece on the #WaitingList pilot, details of which @NHSEngland published - without daring to mention @PalantirTech - over ten months ago...
To be clear, 30 individual NHS Trusts* are using #Palantir#Foundry to manage elective care waiting lists, not patients' entire medical histories - largely by what Ministers have called "cleansing" the data:
Why is this so important? Because #SharedCareRecords - which every new #ICS* is supposed to have - include your #GPdata, which @NHSEngland has been trying to get hold of for years (most recently last summer)...
So let’s talk about where things got up to with your #HealthData, before Rishi Sunak started talking about the need to generate trust in Government with “#integrity” and “#accountability”…
N.B. The chair of NHS Digital announced today’s meeting would be the last public meeting of the Board...
With the news that the Government is rushing through @NHSEngland’s takeover of the statutory safe haven (@NHSDigital) with about the level of planning that went into the 'fiscal event', where exactly *are* things as the former/new Sec State starts work?
First, beginning on page 158, are some Directions that @NHSEngland must know will be HIGHLY controversial - given they are telling @NHSDigital to use @PalantirTech's #Foundry to collect *patient level identifiable data* from hospitals...
I'll tweet as I do a read-through, but even these first two paragraphs are incoherent, e.g. "...in a way that will enable." Enable what?
And if @NHSEngland Directs NHSD to use #Palantir, NHSE is *determining the purposes and means of processing* - i.e. it is a #DataController...