Chandra Pasma Profile picture
Sep 21, 2020 17 tweets 6 min read Read on X
1. This is a thread for my fellow #Longhaulers who are about to lose access to the #CERB on Saturday. I know some are quite worried about financial supports so this is a look at your options. As you'll see, it's quite a dog's breakfast. #COVID19 #LongCOVID #ApresJ180 #cdnpoli
2. The first stop is Employment Insurance Sickness Benefits. #EI eligibility was frozen in March, so if you were employed or self-employed but paying premiums and had accumulated enough hours for eligibility, you will now transition to EI sickness benefits.
3. It's not clear yet whether a medical note will be required if your illness is due to COVID-19. If it is, it can be signed by a doctor, psychologist, or chiropractor. You do not need a diagnosis to get a note (although you do need a sympathetic health care provider).
4. You'll get up to 15 weeks of benefits with a benefit rate between $400-$573.

If your employer has a Supplemental Unemployment Benefits plan, you may be able to get this amount topped up by your employer.
5. Once your EI eligibility expires or if you don't qualify, your next stop is employer-provided disability programs. These have varying thresholds for disability and will require a medical certificate. Benefits are often set at a percentage of your previous wage or salary.
6. If you were self-employed, unemployed, or your employer does not have a disability program, the next stop is public programs.

At the federal level, there is the Canada Pension Plan Disability Benefit.
7. If you have contributed to the Canada Pension Plan in 4 of the last 6 years and have a disability that is "severe and prolonged," you can qualify for a CPP Disability pension. The catch is the "severe and prolonged" part.
8. In order to meet the definition of severe, you need to be incapable of working any job, not just your old job. In order to meet the definition of prolonged, your condition must be expected to last a long time or an indefinite duration.
9. These are both high bars for someone with #LongCovid to meet, but not impossible. Some people with #MECFS are receiving a #CPPD pension.

If you qualify, you'll receive a basic benefit of $496.36, plus an amount based on your contribution history.
10. An additional benefit is available if you have children under the age of 18. Note that if you qualify for a workplace disability plan, they can require you to apply for CPPD.
11. If you don't qualify for CPPD, your next stop is provincial disability programs. These programs have only just slightly more generous benefits than provincial social assistance programs, but they at least usually have higher income and asset thresholds for eligibility.
12. They also require a medical certificate. Each province has its own definition of disability and they can be quite restrictive. In Ontario, for instance, you need to have a substantial impairment that is expected to last one year or more.
13. If you are denied access to your provincial disability support program, then the last resort is social assistance. I have already covered the problems with access to #socialassistance in this thread:
14. A few final observations: if you are in the position of needing to apply for CPPD, provincial disability assistance or social assistance, I strongly recommend connecting with a local disability advocate or community organization.
15. They can make all the difference in the world between a successful and a failed application for disability supports.

The second is that you'll notice I've made no reference to the Canada Recovery Sickness Benefit.
16. That's because, assuming the legislation aligns with the government's proposal, it requires you to miss 60% of your scheduled work week to qualify (and even then you get only two weeks of benefits). If you've been off sick for months with #LongCovid,
17. you probably don't have a scheduled work week. It could not be more clear that the federal government does not recognize #Longhaulers and their need for financial support. A need that will only grow as we enter a second wave this fall.

@cafreeland @CQualtro @PattyHajdu

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More from @ChandraPasma

May 1
Know why Stephen Lecce wants us all talking about cell phones (again)?

So that we’re not talking about how harmful his latest funding formula is for our kids.

A🧵.

1/16
#onted
First off, let’s acknowledge what this is once again: a funding cut. For the sixth straight year, the Conservatives’ education funding does not keep pace with inflation or enrollment growth.

2/16🧵
#onted Image
If funding had just kept pace with inflation since 2018, there would be $1000 more per-student in 2024-25. That represents a loss of more than *$2 billion* for our education system this year.

3/16🧵
#onted
Read 16 tweets
Oct 4, 2020
I’m concerned about the growing tendency in some circles to equate #LongCovid with #MEcfs. I think this is bad for both #Longhaulers and ppl living with ME/CFS. A thread. 👇
2. Before I start, let me be clear this is not a swipe at the #MEcfs community which has been hugely supportive of #Longhaulers, sharing tips & resources & lots of moral support. I am very grateful for that support.
3. Nor is this to deny the reality that some #Longhaulers have developed or are on track to develop #MEcfs. We know from the first SARS that this could end up being a significant number of #COVID patients.
Read 26 tweets
Sep 16, 2020
Update Day 184: The Six Monthiversary of my onset of symptoms.

I'm happy to report that three of us are asymptomatic and Kid 3's cough is so sporadic that she's nearly asymptomatic.

#COVID19 #Longhaulers #LongCovid #ApresJ180 #CovidandKids
I will probably use asymptomatic for a long while rather than recovered, because as we've seen before, being symptom-free now doesn't mean they won't come back. I also remain paranoid about things like rashes & hugely swollen bug bites, although there's no reason to believe...
they're related to Covid. It will just take a while for the anxiety reflex to go away.

As for me, I'm having a really good week, including lengthy periods of the day where I have no symptoms at all and others where my only symptom is tinnitus.
Read 7 tweets
Sep 11, 2020
Journalists frequently ask me if my family is pursuing antibody testing to prove we had COVID. Draw up a chair and let me tell you why that question is so problematic.
#Longhaulers #LongCOVID #ApresJ150 #CovidAntibodies
2. A negative antibody test doesn’t necessarily mean you don’t have antibodies and it certainly doesn't mean you didn't have COVID. First of all, the accuracy of C19 antibody tests has been questioned by the CDC and others. Some C19 antibody tests have a high false negative rate.
3. For instance, some of the tests authorized by the FDA have a sensitivity rate under 90% - which means if 100 ppl are tested, 10 or more will be told they don’t have antibodies when they actually do. And that’s the rate reported by the manufacturer, not the rate in actual use.
Read 20 tweets
Aug 28, 2020
I spoke to @maywarren11 of the @TorontoStar about the need for better research and care for Cdn #Longhaulers. One of the most fascinating nuggets in this piece is the difficulty that the CANCOV study has had finding participants:
thestar.com/news/canada/20…
I'm part of three different forums with Cdn #Longhaulers, two of which have thousands of members. We all shared the information on the study as soon as we learned of it - and then we all shared the massive disappointment of discovering we could not participate.
Canada's massive screwup on testing back in the early days of the pandemic is still having an effect now on patients' ability to access medical care, sick leave and disability supports, and now its delaying the research into our condition.
Read 4 tweets
Aug 13, 2020
Update Day 150 (!!!!): This one's a bit of a mixed bag. Let me start with the good news. My husband and Kid 2 are asymptomatic and have been for a couple of weeks. Kid 2's energy is back and then some.
#COVID19 #CovidLonghaul #LongHauler #ApresJ120 #CovidandKids
Kid 1's only symptom is a swollen lymph node in her chest that has been stubbornly hanging on for weeks now. We took her to the osteo yesterday and by working on her neck and shoulder, the osteo managed to bring it down in size, but the bump still bothering Kid 1.
Kid 3 got a steroid inhaler four weeks ago. After a week of using it, she had 8 blissful cough-free days. Then the cough came back. We now seem to be in a holding pattern, with 2-3 days of coughing, followed by 2-3 days without. Still waiting on the respirologist.
Read 7 tweets

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