Why do some parents of autistic people attack #neurodiversity advocates for appearing less disabled than their own kids? Especially when those advocates are fighting to ensure a better future for all autistic people—including those parents’ kids?
An eyebrow-cocked thread. 1/
These outraged parents say "...that those who argue the Neurodiversity position do so out of ignorance," which is not merely offensive but untrue: those who support Neurodiversity tend do so because Neurodiversity is their reality, and the neurodiverse their community. 2/
Plus many parents whose children experience a "trifecta of autism, intellectual disability, & dangerous behaviors" support the Neurodiversity movement. Including the editors of this very volunteer org. Some of these parents are even autistic themselves! 3/
These parents say Neurodiversity advocates want to hoodwink the public into falling for "a sanitized version of low-functioning autism." Which is untrue, as it is parents and the media that crave stories of non-speaking autistics having “breakthroughs," not ND proponents. 4/
Neurodiversity advocates, by contrast, understand that “functioning" can be fluid and unpredictable not just from autistic person to autistic person but over time and by situation:
ND advocates understand that an autistic person may be able to pass for "neurotypical" yet still experience self-injurious behavior, lost speech, or meltdowns. But because these truths about autism upend parents' claims that ND is only for “elite” autistics, they are ignored. 6/
What #Neurodiversity advocates DO want is for Autistics to be the primary voices for autism rights. Which makes sense to me, when I hear self-advocates like @ANeeman argue for presumed competence and better services for Autistics of all abilities: thinkingautismguide.com/2011/09/ari-ne… 7/
Per @aneeman: "At the end of the day, [the self-advocate & parent communies] want the same things. At the end of the day, we're hoping for the same better world.” 8/
@aneeman@Aneeman continued: “…It's just that we [autsitic and disability advocates] who actually live this life, we who actually experience these challenges, are in a position to tell the world that there is not just one way to accomplish them.” 9/
By pandering to parents who see autism self-advocates as enemies with little concern for autistic kids' "real" needs, these parents create a false and needlessly bitter gap between groups who should be working together on a common goal: Better Lives for all autistic people. 10/
Autistic children will spend most of their lives as adults, after all!
11/
And parents are not wrong to be terrified about our autistic children's futures. All the editors at TPGA have 1:1 support autistic offspring, and we all fret and agitate over the lack of decent programs for autistic children and adults who need full time care. 12/
But by railing against the #Neurodiversity movement, these parents are stigmatizing and alienating the only people who care as much about her their children’s future as they do, and who will keep on fighting for those kids even after their parents are long gone. 13/
And the #Neurodiversity movement will continue to have the backs of all autistic people—ALL of them. Whether parents who spread and/or believe lies about the ND movement are able to realize this, or not. 14/14
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Autistic Commonality and the Illusion of “Quirky”: A thread from a TPGA article by @epballou!
Some people insist on describing the autistic spectrum as ranging from the non-speaking and very profoundly disabled, to the “just quirky.”
(Ed.: Emily will explain why this is BS.) 1/
@epballou Or, during discussions about the need for acceptance and accommodation, the same people might tell autistic self-advocates, “That may be fine for autistic people like you who are just quirky, but you're not like my child.” 2/
@epballou Some of those same people even insist that autistic people who are “just quirky” should probably have a different label than 'autism' altogether.
But I actually wouldn’t mind if the word “quirky” were to disappear entirely from autism discussions… 3/
Dylan Freeman, an autistic boy, has been murdered by his mother. Instead of emphasizing Dylan’s right to live, the media is going on about the caregiver burden of his mother due to pandemic lockdown.
I'm here to say: Fuck that. 1/
I need you—and judges and “that poor mother” reporters like @allisonpearson everywhere—to understand that, however difficult it may be for families to support their disabled loved ones, murder is NEVER excusable. There are always other options. Always.
Dylan should be alive. 2/
@allisonpearson It’s jarring how much reporters' descriptions of victims like Dylan resemble my son: He’s a high-support autistic dude. He’s minimally speaking. And because he needs (and deserves) full-time support, my husband and I are automatically considered good, selfless people. 3/
Autistic people deserve the love & respect that come with acceptance, not merely acknowledgment that autism exists. Awareness is passive. Acceptance is a choice.
Here are ten ways you can honor autistic people of all ages. (Hark, a thread!)
1) Honor communication. Everyone communicates. If your autistic loved one struggles with spoken language, help them find a communication system that works for them, whether scripted speech, typing, a symbol-to-speech device or app, sign language, or a letter board.
2/
Understand that an autistic person’s spoken words may not accurately represent what they’re thinking, or their intentions. My son sings “The cold never bothered me anyway!” to tell me he’s cold. If he asks me to repeat phrases after him, he's asking for reassurance. 3/
I’ve seen folks getting sad about a certain Hamilton creator supporting a certain not-great autism charity whose initials are "AS.” Truly, this bums me out, too—yet I don’t blame people who are trying to do the right thing for not knowing which autism orgs to trust. A thread: 1/
Our media conditions its audiences to fear and pity people with autism and other disabilities. And it’s not just sensationalistic, clickbait media outlets that impugn the rights and basic humanity of autistic people. 2/
Progressive publications & writers can be just as reactionary. But as we tend to trust “thought leaders” as both intellectually rigorous & socially fair, their ableism often goes unchecked and is far more dangerous than that of their unapologetically prejudiced counterparts. 3/
[CN: murder of an autistic child, parent-victim fallacy]
Yet another autistic child has been murdered by a parent, who claims the child is in “a better place.” F*** that. I’m not going to link, bc all the expletives, and mourning a bright life lost. Here’s a thread instead. 1/
There is a horrifyingly typical coupling of devotion with murder, whenever disabled people are the victims. Both the reporting and the judge on such cases tend to portray murdering parents as loving, but "driven to kill.”
I'm here to say: Fuck that.
2/
I need you -- and judges and reporters everywhere -- to understand that, however difficult it may be for families to support their disabled loved ones, murder is never excusable. There are always other options. *Always*. 3/
The #autism prevalence, per @CDCgov, is now 1 in 54 children. You may see some alarmists claiming this is a crisis, a tidal wave, etc.
No. Such people are misinformed.
If anything, autism is still under-identified—& that should be our focus. This is going to be a thread. 1/
@CDCgov You need to know that the new CDC numbers demonstrate how, essentially, autistic people have always been here—the CDC is just getting better at identifying them; plus the CDC's understanding of just who qualifies as #autistic has changed over time. #neurodiversity 2/
@CDCgov The criteria for autism diagnoses have not just changed over time but changed to be more inclusive over time (Asperger's, added to the DSM in 1994, was folded into #Autism Spectrum Disorders in 2013). More info on that: link.springer.com/chapter/10.100… 3/