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16 Nov, 4 tweets, 2 min read
Join #PGTME’s free lunchtime lecture series on ethical issues in pediatric gene therapy clinical trials eventbrite.com/o/pediatric-ge… Image
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More from @ABatemanHouse

Dr. Alison Bateman-House Profile picture
16 Nov
Remember in Ebola all the discussion about needing to engage anthropologists to understand why African villagers would shun medical advice? Now we’ve got a much larger epidemic in our own country, but I hear no call to study the culture & mindset of those disregarding health recs
I’m going to mute this thread since it has rendered my phone unusable. Thanks for the engagement! Final thoughts: 1) All societies have sociocultural drivers, not just “others.” 2) Policy that ignores these are hamstrung at best & doomed to fail at worst. 1
3) Social scientists of all ilks (including historians, folklorists, etc) should be funded to help explain the drivers of health behaviors & to help craft targeted culturally-appropriate public health messages. 4) Diseases cannot be controlled with only biomedical knowledge. 2
Read 6 tweets
Dr. Alison Bateman-House Profile picture
9 Oct
@azlawhealth & #CUPAEthics & @JLME_ASLME joint webinar on real world data from #ExpandedAccess (using #ConvalescentPlasma as a treatment for #COVID19 as a case study) featuring @DrMJoyner @tomwatson83a @HollyLynchez @ClaudiaHirawat @trsklar & more on now!
@DrMJoyner the convalescent plasma being used was an “uncharacterized product at unknown dose”
Read 13 tweets
Dr. Alison Bateman-House Profile picture
7 Jun
#PublicHealth (& life) requires nuanced thought. If the recommendation is, “stay home,” that doesn’t mean stay inside your house if it catches on fire. As situations change, recommendations may change 1
In this case, it is the messaging that has changed, not the actual recommendation. When experts said stay home, they always acknowledged that not everyone could do so; the recommendation was *really* to stay home as much as possible, avoiding unnecessary contact with others 2
If you think your health, or the health of others, is more at risk from structural racism then COVID, then it is reasonable to prioritize addressing racism, even if that leads you to leave the house. Just take whatever precautions you can (mask, glasses, distance, don’t yell) 3
Read 7 tweets
Dr. Alison Bateman-House Profile picture
15 Mar
Thread: As a medical ethicist, let me remind everyone that there is never a wrong time to make sure your family and/or friends know your wishes should you become unable to make medical decisions. And, it is even more important than normal now, with a pandemic 1/
It is often uncomfortable to grapple with questions of what sorts of medical treatments a person may or may not want in different situations, because we don’t like thinking about our own mortality and because it is difficult to predict what sorts of issues could arise 2/
For example, I personally am not interested in a life of intractable pain. But, I would be willing to undergo non-stop pain for a period of time, if it will eventually be resolved and I can live painfree afterward. How long a period of time? I don’t know. 3/
Read 17 tweets
Dr. Alison Bateman-House Profile picture
14 Jan
Exciting AM talk by @HollyLynchez
2 issues: paying people to be in research & people paying to be in research
Why is #clinicaltrial under-enrollment problematic?
Read 11 tweets
Dr. Alison Bateman-House Profile picture
11 Sep 19
My 2nd year of college, I arrived to start the year convinced I’d made a huge mistake. My best friends from first year were all living in a distant housing complex, while I had applied for a residential college where I knew nobody & would be rooming with a stranger 1
My parents drove me to college & helped me lug my possessions up multiple steep flights of steps. While we did so, my dread was increasing. I was filled with fear that I was going to spend a year miserable, living alongside 31 indifferent fellow students 2
And then! 4? 6? 8? I don’t remember the exact #, but a group of guys appeared, taking stuff out of my parents’ hands & carrying everything up to my room. As they left to go help another arrival, they yelled over their shoulders that they’d be back to get me around dinnertime 3
Read 11 tweets

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