Discover and read the best of Twitter Threads about #clinicaltrial

Most recents (3)

1) So you get a copy of your medical records & dive in, reading line by line, trying to make sense of your new lung #cancer diagnosis.

“Wait a second, this doesn’t sound right. This is a mistake. I don’t have a history of a heart condition & I don’t smoke cigarettes.
#PtExp
2) You call your oncologist’s office to report the mistakes you found & ask to have it updated. You are told to write down the correction & fax it to the office. You do exactly that.
#PtExp #addendum #EHR
3) At your next follow up appt a month later, you ask the dr if your record was updated & the correction was made.

The dr looks at you like:

#PtExp #addendum #EHR
Read 16 tweets
Last week we described in @JAMA_current how we collected, de-identified, scrubbed, linked, and analyzed real-world #EHR clinical data LINKED to tumor sequencing data, all obtained in the course of ROUTINE #cancer care #RWD #RWE

jamanetwork.com/journals/jama/… (1/n)
The manuscript represents deeply collaborative work done by large teams @FoundationATCG + @flatironhealth. The process of working with another team/company on everything from patient privacy to data pipelines to research queries could be the subject of an entire blog post (2/n)
Suffice it to say that we have LOVED working w/ @GauravSingalMD, Peter Miller, Gerald Li, @gaurav_bio, @BostonGenomics et al on this work.

More such collaborations will be required to break down data silos in healthcare! (3/n)
Read 12 tweets
1. My great thanks to @sandrapdangelo & @WTapMD for elaborating on the $250,000 grant they got from @CureSarcoma for uterine #leiomyosarcoma. curesarcoma.org/uterine-leiomy… Their research will help people with other #sarcoma subtypes, too. more ...
2. @sandrapdangelo says grant will go toward 2 immunotherapy #ClinicalTrials. She hopes the first will open @sloan_kettering in late spring. The first will combine a CSF-1R (DCC-3014 deciphera.com/pipeline/dcc-3…) with #avelumab (#Bavencio en.wikipedia.org/wiki/Avelumab). more ...
3. @sandrapdangelo doesn't know when the second #ClinicalTrial will open, but it will combine a PARP inhibitor (en.wikipedia.org/wiki/PARP_inhi…) an immunotherapy drug that has not been chosen yet. "Other #sarcoma subtypes will be allowed to enroll," not just #leiomyosarcoma. more ...
Read 11 tweets

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