There is only so much politeness one can dish out when SOME (not all!) involved with long covid relegate us to the gutter. We didn’t start this hostility. We asked to be listened to. We were treated like we don’t matter. Personally, I’ve run out of patience to ask nicely
Repeatedly, certain individuals have treated our disease with contempt. At the same time putting long covid on the pedestal. Long covid patients need help but us? Never mind, you can continue to rot in hell for all eternity. Your illness doesn’t warrant validity or research
So EXCUSE me if I’m fucking furious but I have lost my entire life to a disease which is virtually identical to long covid and apparently my life doesn’t matter! I might as well go and jump off a tall building or go fuck myself because I don’t have long covid! I have long EBV!
My life matters just as much as any long covid patient! My disease, virtually identical, warrants just as much validation, research money, compassion and race for treatments! I deserve to live just as much as long covid patients! What is happening right now is quite the opposite!
My tweets refer to people who are actively bending over backwards to distance themselves from ME and maintain the stigma that ours is not a real disease that warrants any help whatsoever. There have been a lot of lovely and supportive long covid patients too.
Sorry for my ranting last two days guys I’m just really fucking livid that I am rotting away here thinking about suicide because I miss my life so badly and I’m treated like my disease is the scum of the Earth when it’s virtually the same. I’m tired of it. I want equal treatment
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