RSD is not a disorder or diagnosis. It is a phenomenon that happens to people with a long history of being invalidated and rejected, people with #complexTrauma, people with certain #mentalHealth conditions, or people with a neurological predisposition.
RSD is common among #Neurodivergent folk, especially for #ADHDers, and can be a result of wiring and a history of being rejected. (Alt text added to images)
RSD is like the name implies a very overwhelming fear of and reaction to real, feared, or perceived rejection. When people have lived a life of being invalidated, RSD is borne from the accumulated weight of those rejections.
People who experience RSD can get stuck in an insidious cycle where they are starting with a history of rejection so they become a people-pleaser and have a hard time saying no. But they take on so much, they hit #burnout and can’t meet demands— which leads to more rejections.
People who experience RSD mast isolate themselves because they internalize the shame of being rejected and avoid relationships and commitments for fear of further rejection.
RSD thrives in uncertainty. Not knowing what another person is thinking or how they will react leaves a person who experiences RSD fearing the worst.
RSD can feel like a spiral of negative thoughts that continue until the person is given assurance that they have not been rejected.
Look for future articles about RSD and how to help yourself overcome rejection sensitivity. It should be noted that some people prefer the phrase rejection sensitivity over RSD.
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Not all behavior is communication, & everyone from autistic advocates to professionals to researchers who neglects to learn about & understand the lived experiences of nonspeakers with severe apraxia & motor disinhibition are causing harm, no matter how "trauma-informed" you are.
Imagine people thinking the pinnacle of your capacity to understand is reflected by your toddler-like noises. Imagine automatically saying "yes" when you mean "no." Imagine people thinking you actually want to engage in compulsive behaviors you don't want to do.
Imagine desperately wanting to express that your body doesn't work with your mind, but you point at "happy" on your PECS board and people clap and cheer for you. Imagine having no good options to say the loudest things you need to say on your electronic picture-based AAC.
Here’s what was said in Irish parliament referencing our org and its founder: “There are advocates who are vocally against systemic ABA in the US, such as Terra Vance, who runs NeuroClastic. She has a boycott-ABA approach in the US,[…]” Cont.
“[…] but she also recognises that outside the US there is a very different culture. She has stated that behaviour analysts seem to be the only people being held to account, but also that they are the only people who are listening.” (Cont)
This is not entirely untrue. We have said that the circumstances, and thus our advocacy surrounding ABA, vary different depending on the country & region. Mostly, we acknowledge the United States, with 50 states all having sovereign jurisdiction, have laws in place regarding ABA.
NeuroClastic is working on a response to the discussions held by the Houses of the Oireachtas Committee on Disability Matters on Thursday, May 4th, in Ireland. This is currently Terra Vance, org founder. I want to share some thoughts that won’t work their way into our reply.
Our org is probably the highest profile autistic-led org in the world. Our articles on ABA are probably the most heavily cited autistic perspectives. We have over 150k followers across social media, the vast majority being autistic.
While no one can represent all autistic people, we are generally globally respected as critically important representation of autistic perspectives— and our org is led by unpaid disabled volunteers. We cannot pay one person a salary. Why does this matter?
Neuroclastic is preparing to respond to the discussions held by the Houses of the Oireachtas Committee on Disability Matters on Thursday, May 4th, 2023, in Ireland.
The topic of discussion was the consideration of rights-based behavior analysis and support (cont).
This meeting was called after behavioral analysts challenged the findings of the Joint Committee on Disability Matters release in Feb 2023 that concluded that & PBS do not align with United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and human rights.
During the discussion on May 4th, an attendee referenced our organization and CEO, Terra Vance, in a way that did not accurately reflect our org’s or CEO’s position on Applied Behavior Analysis (ABA). The meeting was broadcast (link below).
Okay, let’s talk about how a Nonspeaking Autistic writer, Gregory Tino, just published a children’s book called The Autistic Boy in The Unruly Body, and how it’s the #1 new release on Amazon’s “Autism and Asperger’s” category. But first, a #NeuroInclusive story about #Apraxia
We made this #NeuroInclusive story with Gregory’s permission, using illustrations from his book. 86% of autistic people have clinically significant apraxia/dyspraxia. That’s a motor planning— not motor ability— disability.
People with mild apraxia may have minor speech or bodily symptoms, and unlike autism, apraxia can be mild or severe. #Apraxia is often called #dyspraxia interchangeably or may be specified as “apraxia of speech.”
For the victims of institutional violence, and especially if you’re autistic and do not understand the source of the hatred that gets directed at you or how people can even imagine such cruelty, the physical abuse is often not the worst.(cont) #StopTheShock#JRCSueMeToo
It is the terror—the abject torture— of not knowing when. You have to be hyper aware of everyone’s moods at all times and try to adjust your behavior to their unpredictable ire that seems to come from somewhere you’ve never accessed. We talk a lot about the electroshocks at JRC.
But the spaces between the shocks, 24 hours a day strapped to a torture device and being around people tasked with using it to control you— that’s the unrelenting anxiety that will cause you to lose yourself and come unglued. It’s neverending.