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30 Mar, 6 tweets, 4 min read
1-Some things are clear after watching the show today.
1/Drug use does not = addiction.
2/Ppl choose to use drugs; recreationally or in addictive process. There is no blame w/accidental ODs except the unknown aspect of the drug being used.
@TamronHallShow @drcarlhart
3/People are suffering in the addiction community, and now too in the pain community, as the national discussion around 'opioids' has been largely based on high emotion vs rational discourse and sadly mainly due to profit driven agendas & policies.
#DrugUseForGrownUps
4/As a parent of an adult child battling addiction, I've been unable to be there for her, because as I as a person with a severe C-spine injury and chronic illness I am denied the pain MEDICINES that allowed me to function.
#opioidhysteria
#SavingUsToDeath
5/The '#opioidcrisis' response has done ONLY HARM and we need as a nation to start having a sane and rational dialogue about drug use, addiction, and what is happening to people in physical pain.
#DeathsOfDespair
And I'll post this again...
They say that an increase in RXing caused the #opioidcrisis, I say it's far more complicated. The uptick in drug use actually coincided with societal upheaval; 9-11, war, financial collapse, job loss, people losing homes...A perfect storm.
@tamronhall
*As I am a person... #Twitedit

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Arianne Profile picture
1 Apr
@Shasta_Rayne 1/Bottom line-we KNOW that the '#opioidcrisis' wasn't caused by MDs treating pain. We KNOW that it's primarily younger, often males, ODing on street drugs while #CPPs aren't ODing & are often older. We KNOW the PDMP is a drag net & DEA/LE involvement is why MDs are afraid to RX.
@Shasta_Rayne 2/We KNOW state Standards of Care were drafted around CDC 'guideline' with DEA scrutiny as their backdrop for policy making. We listened in as they changed pain tx standards with that in mind.
"How much & for how long can I rx my post surgical pt without DEA coming down on me."
@Shasta_Rayne 3/We KNOW HHS & the NPS has created a tragic mess for pain patients even though this OD issue was NEVER REALLY ABOUT PRESCRIBING; and we know why.
Money.
At some point, even if it was initially believed to be a public safety issue, it became a money issue when the truth came out.
Read 4 tweets
Arianne Profile picture
27 Mar
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 1-The NPS focus is primarily a data mining study of CPPs and pain, states pain is a biopsychosocial experience, places emphasis on 'alternatives' & 'multi-modal' options while constantly equating opioids w/ OUD & addiction as 'risk'.
'Reduce new starts', a rule of thumb.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 2-While NPS professes to support 'patient centered care' we know that that is not possible when opiates are concerned as treating pain in that realm is overseen by non medical entities creating policies that involve DEA/DOJ/LE involvement.
@OldHeadFighta @lakeparkcpl @JT_Berone @national_pain 3-The NPS actually removes MD and PT autonomy in making medical decisions. It also professes not to discriminate but promotes screening people for recreational drug use, childhood trauma, domestic violence or rape as a 'risk management' tool in regard to prescribing practice.
Read 5 tweets
Arianne Profile picture
8 Mar
@OldHeadFighta @headdock @BethDarnall 1/People on coumadin who have PRO TIMES isn't a good example to pain patients being tested for illicit drug use to see if they're closet recreational drug users or addicts. People in pain should not be being penalized for the actions of others.
@OldHeadFighta @headdock @BethDarnall 2/Now if we're going to put ALL patients with ANY disease or health condition into PDMP databases and drug test them multiple times a year randomly, all to ensure 'pt safety', let me reiterate ALL PATIENTS, then it would no longer be a discriminatory policy. It also wouldn't fly.
@OldHeadFighta @headdock @BethDarnall 3/For instance, a heart patient using cocaine for instance. It would be in their best interest to drug test them regularly right to prevent a catastrophic cardiac event? And since anyone could be using illicit drugs that could harm them ALL ppl should be tested by this 'logic'.
Read 6 tweets
Arianne Profile picture
5 Feb
1/Here's the content of the letters being sent out for the National Pain Council letter drive.
I'll also be composing a letter for the White House, POTUS, and FLOTUS.
@JonelleElgaway @ThomasKlineMD #PainCareCrisis

My name is Arianne...
2/ I am one of tens of millions being harmed by the unauthorized and baseless set of new standards and one-size-fits-all "rules” set forth by the CDC for treating chronic pain.
3/ I have two painful conditions, Myalgic Encephalomyelitis and a C-spine injury, both conditions leave me dealing with daily intractable pain.
Read 18 tweets
Arianne Profile picture
9 Dec 20
…worthy of our own love and acceptance…worthy of respect, worthy of feeling beautiful, worthy of living our dreams…worthy of just feeling worthy.
cont...👇 Image
2/I wish that I could be one of those women who are naturally comfortable in their own skin, a woman who bears their unique qualities like a jeweled robe and who sheds her robe often to reveal to the universe her true inner radiance.
3/I wish I could be a woman whose confidence permeates any room that she’s in, a woman who owns her space and honors her gifts inside and out.
Read 9 tweets
Arianne Profile picture
8 Nov 20
We can break this down point by point and apply it to what is happening to people in pain who require opiates for adequate pain relief.
#OpioidHysteria
#PainCareCrisis
#HumanRightsAbuses
“MORAL JUSTIFICATION” The rallying cry, “NOT MY KID”.
Moral justification & high emotion drove legislation. The #GreatOpioidLie of how addiction by prescription was the cause of ODs became mainstream fodder.
Pts in pain? Acceptable collateral damage.
#OpoioidHysteria
“EUPHEMISTIC LABELING” #CATASTROPHIZER became the catchphrase of the day.
OVER PRESCRIBER
DRUG SEEKER
When pushback came against the catastrophizing label, those being labeled were actually asked to come up with a label that is more acceptable to them, but means the same thing.
Read 10 tweets

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