Discover and read the best of Twitter Threads about #opioidhysteria

Most recents (19)

We've lost too many in this insane '#opioid' war.
The sick & injured are spending the last years of their lives fighting, suffering, begging MDs & GOV for the medicines they need to mediate their pain.
They say taking our medicines away is to 'save' people.
No one is being saved.
Death due to #Untreatedpain or #Undertreatedpain is death by a thousand cuts.

#RxOpioidsSaveLives
#PainKills
Read 10 tweets
#DontPunishPain #ChronicPainSuicide #RealPainStories #PainStigma #PainKills #OpioidHysteria
I was denied opiates when I had crippling daily 10/10 pain [blacking out became common] due to my age
I was denied opiates when I had multiple dislocations because they don't want me to
get addicted to it
I was cut off from opiates after a botched surgery. my pain was still severe but I was told I should be healed by then [I wasn't, due to eds] so I don't get any more pain meds
I was denied opiates when my foot was broken in so many places it couldn't be counted
because when my doctor hurt his ankle he just took an ibuprofen [which is contraindicated in my case] and was fine
I was denied opiates when I had dislocated ribs because "thats impossible" so im just drug seeking
im constantly denied opiates when I explain the level of pain eds
Read 6 tweets
1-Thread.
Grievance letter in thread, written in 2014.
Prior to CDC guidelines.
I was dismissed out of hand, told I was 'free to find another healthcare provider'.
Since then, things have gotten far more deadly for people in pain...
@NPR @greggutfeld @MSNBC @CNN @DatelineNBC
2-July 18th 2014
To Whom It May Concern:
Let me begin by saying that I feel that my doctor has abandoned me. Kaiser Permanente has made me sign a pain contract under extreme duress and I feel, at the very least, that my patient rights have been violated; if not my civil rights.
3-This letter is being written in hopes of revising a system that I feel discriminates, marginalizes, and has the potential to alienate and cause more harm than good in regard to patients seeking relief from chronic pain.
Read 24 tweets
1-This is just MY opinion.
I think any 'pain pt advocate' should be helping to dispel the notion that 'overprescribing' MDs, or a 'over supply', of legal, known potency, pain medicines, caused the so called 'opioid crisis'.
statnews.com/2019/06/28/sto…
2-A pain patient advocate should be working to do away with parole like policies of endless drug testing for pain patients & law enforcement tools like the PDMP; as these 'tools' have done NOTHING to prevent ODs. In fact all above policies have coincided with INCREASING ODs.
3-A pain patient advocate should be pushing back on the 'opioids as a last resort & the 'dangerous drug' narrative.
Opioids are a safe and effective way of treating pain for MOST people and the data shows that prescribed opiates as an initiating point for addiction is RARE.
Read 5 tweets
What if I decided to file a lawsuit (against ??) for the RIGHT to choose to die w/ dignity BECAUSE I am being DENIED the RIGHT to treat my severe intractable pain w/ #pain meds? Hang w/ me for a sec.. #ipp #cpps
I DON'T want to die! I also DON'T want to be forced to live a life of relentless suffering w/o pain meds. Would a #HumanRightsLawsuit help fight for our rights for adequate pain control? #PainManagement
@ACLU @acluohio
How can they legally deny me the right to die w/ dignity (& on my own terms) but they are also trying to FORCE me to LIVE the rest of my life in horrible excruciating #IntractablePain without the Rx #opioids that I needed & have taken for 19 years to function? @ACLU
@acluohio
Read 5 tweets
I WISH that I had good news to share with you all but sadly I don't. The #palliativecare doctor said he only treats end of life or #cancer pain & I am once again thrown back in the water like nasty stinky unwanted chum.
He said that I shouldn't be removed off Rx #opioids & in his opinion the the forced wean is too aggressive. I happened to have a horrible #crps attack so he got to literally see what that looks like. It's not pretty.
WHY are patients forced to go through this much shit in order to get basic care? I 100% feel discriminated against & it isn't ok. He did say that he was going to call my doctor tomorrow & speak to them directly to see if he can convince them to keep me on or adjust my meds.
Read 13 tweets
Read 8 tweets
1-Some things are clear after watching the show today.
1/Drug use does not = addiction.
2/Ppl choose to use drugs; recreationally or in addictive process. There is no blame w/accidental ODs except the unknown aspect of the drug being used.
@TamronHallShow @drcarlhart
3/People are suffering in the addiction community, and now too in the pain community, as the national discussion around 'opioids' has been largely based on high emotion vs rational discourse and sadly mainly due to profit driven agendas & policies.
#DrugUseForGrownUps
4/As a parent of an adult child battling addiction, I've been unable to be there for her, because as I as a person with a severe C-spine injury and chronic illness I am denied the pain MEDICINES that allowed me to function.
#opioidhysteria
#SavingUsToDeath
Read 6 tweets
"When he came to, he was on the floor. He had rolled out of the wheelchair and hit his head. A gaggle of worried-looking medical staff stood over him. They asked if he was on drugs."

In most ER, he would have already been hit with two doses of NARCAN.

nytimes.com/2018/07/24/mag…
#alphagal allergy syndrome breaks all rules, stands as example of how much we don't know. This guy got lucky. I have YET to meet medpro that knows this, except for my allergist.

Had I not studied myself and searched for answers, my PCP would have found them thru MY anaphylaxis.
Would it have been flu shot I refused? (2 of 4 have mammal component)..

Maybe the acid blocker I refused, in a gel-cap?

Would I have passed out during colon prep for procedure I refused?

How long before first 'incident' gets me narcanned? Hell I'm probably allergic to it too.
Read 19 tweets
We can break this down point by point and apply it to what is happening to people in pain who require opiates for adequate pain relief.
#OpioidHysteria
#PainCareCrisis
#HumanRightsAbuses
“MORAL JUSTIFICATION” The rallying cry, “NOT MY KID”.
Moral justification & high emotion drove legislation. The #GreatOpioidLie of how addiction by prescription was the cause of ODs became mainstream fodder.
Pts in pain? Acceptable collateral damage.
#OpoioidHysteria
“EUPHEMISTIC LABELING” #CATASTROPHIZER became the catchphrase of the day.
OVER PRESCRIBER
DRUG SEEKER
When pushback came against the catastrophizing label, those being labeled were actually asked to come up with a label that is more acceptable to them, but means the same thing.
Read 10 tweets
Drug Seeker Part III
"DRUG SEEKERS" BEWARE
#OpioidHysteria
#PainCareCrisis
#GetTheFacts
👇
So after almost 8 years of undertreated/untreated pain, this year I was officially labeled a drug seeker by certified mail & banned from care by a medical clinic in our town for requesting a benzodiazepine medication that was helping to mediate severe spacial disparity & vertigo.
Vertigo is now another battle that started after a Shingles & a #MyalgicEncephalomyelitis flare. I was also beginning diagnostics to determine if I have breast cancer as well. Getting that letter was humiliating-Devastating as I live in a rural town with limited options for care.
Read 15 tweets
“DRUG SEEKER”
Images of back alleys. Deals going down in parking lots where money & drugs change hands between ‘shady, scary, criminal people’. Dirty needles strewn in playgrounds where toddlers & children innocently play.
cont...
#OpioidHysteria
#chronicpain
Photo Narcanon CO
People unresponsive found in cars, their children strapped in car seats crying while EMTs try to revive their parents with Narcan;
That’s just a primer on the ‘WAR ON DRUGS’ imagery we have been inundated with for decades in America. We are drowning in images of pill bottles, pill monuments, overdose headlines.
Read 23 tweets
watch Myth 12: Alternatives to pain medicine are safe and effective via @YouTube Myth it is! As a practicing physician of 4 decades i will not treat anyone in pain with a second line rx because PROP/CDC is afraid of first line opiate pain medications.
Watch Myth 11: Addiction and Dependency are the same thing via @YouTube big misconception! adds millions to the fake numbers. There is less than 1% opiate addicted people now and back to the 1920’s. Rare now & rare then. Where are the new CDC addicts?
Watch Myth #10 PALLIATIVE CARE via @YouTube 1st page unauthorized cdc guidelines and many state laws EXEMPT DOSE LIMITS for palliative care. So let’s DO IT. Protects doctors too exceeding the Brandeis/CDC dangerous dose limits for their Z51.5 patients
Read 13 tweets
watch Myth 9: Milligram phobia "this is way too much" via @YouTube I can legally prescribe any dose high, low for standard FDA opiates knowing proper dosing & care will not kill anyone or turn anyone into a dope fiend, the greatest irrational fear of all
watch Myth 8: Overprescribing via @YouTube We are discussing the made up crime that’s not a crime “overprescribing “as viewers wanted more details , which JATH researchers are providing. Coming up in #9 -Milligram phobia
watch MYTH 7 SYSTEMIC INFLAMMATORY DISEASE it not in your head! via @YouTube
Read 10 tweets
.@nytimes Ginia Bellafante wrote an essay to say she didn't need post-surgery #opioids, so she didn't take them. That's not news. #Pain patients are being forced off effective, FDA-approved meds, causing #suicide & unnecessary #disability, & OD rates still climb. That's the news.
CDC, FDA, HHS say no one should be forced off #opioids, yet rising # of doctors have practice-wide bans & @nytimes has 1st pg piece by someone who wasn't affected in the LEAST by any of this? People are DYING from untreated #pain & ODs because restricting Rx meds helps no one.
.@nytimes: Bellafante had a CHOICE. She didn't need #opioids, so she didn't take them. I know people who are DEAD & DISABLED because their doctors dumped them off meds they were taking safely for years on the grounds that the same med might harm someone else. That's unacceptable.
Read 8 tweets
Doctors are no longer a driving part of the #OpioidHysteria. They never really were. Why why why are we still getting these stories instead of what’s really going on? Alt facts much? How very Trumpian. News media needs to take a good look in the mirror & start facing the truth.
Define “overprescribing” please. 91 ppl per day die from overdoses: from what exactly? Which meds? Multiple meds or just Opioids? God I’m fucking tired of this whole bs narrative still going on.
How about the painful stories of vulnerable ppl -disabled-Veterans-elderly- being cut off from #opioids & committing suicide b/c their pain is so bad?? #SuicideDue2Pain #PainKills
Read 18 tweets
1. These are just a few of the people who were betrayed & murdered by the Gov & Doctors b/c they suffered from #ChronicPain.
2. These people were, & millions more are, disabled & being actively & maliciously denied proper medical care b/c of the #OpioidHysteria
3. that has taken over our Government, Insurers, Doctors & Pharmacies. We are, apparently, the acceptable collateral damage in the
Read 7 tweets

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