@swirlee @randallb Here’s a thread on resources for parents whose kids have been recently diagnosed as autistic! Hope it helps.

First, here are some parent-penned guidelines for first steps after that diagnosis (tl;dr: Learn from my mistakes so you can avoid them):

thinkingautismguide.com/2017/03/after-… 1/
@swirlee @randallb Here also are Eleven Ways You Can Make Your Autistic Child's Life Easier:


and How listening to autistic adults helped me understand and support my son:


#Neurodiversity 2/
@swirlee @randallb If you prefer books, @awnnetwork_ *just* released “Sincerely, Your Autistic Child: What People on the Autism Spectrum Wish Their Parents Knew about Growing Up, Acceptance, and Identity:


@swirlee @randallb @awnnetwork_ I don’t want to firehose you, so I’ll stop here—but please see our site thinkingAutismGuide.com, for more articles. I also recommend following autistic parents of autistic kids like @OutFoxgloved, @MorenikeGO, @AutisticEnough, & @AnnMemmott. Here for any questions, & be well. 4/4

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More from @thinkingautism

3 May
Now: We are at the live #INSAR2021 press conference. And since it’s online, maybe you can be there, too:

8 different studies are being presented at the #INSAR2021 press conference, draw from the 1000s of presentations being featured at the conference.

Unless I’m mistaken, there isn’t supplementary text or captioning so I’m having a hard time parsing what’s going on.
#INSAR2021 press conference topics include Diagnostic challenges in underserved populations. Also studies of pains and eating issues. Also a cross-cultural exploration of stigma between Korea and the US, and also the impact of COVID on autistic adults as well as their caregivers.
Read 23 tweets
19 Apr
Why do good people fall for bad autism charities & related efforts like #ColorTheSpectrum? A thread.

Mostly? "Our media conditions its audiences to fear & pity people with disabilities.”



And it’s not just sensationalistic, clickbait media outlets that impugn the rights and basic humanity of autistic people. Respected, progressive publications and writers can be just as reactionary. 2/
But because we tend to trust “thought leaders” as both intellectually rigorous and socially fair, their ableism often goes unchecked and is far more dangerous than that of their unapologetically prejudiced counterparts.

Read 7 tweets
8 Apr
Hey Parents of Autistic Kids: Here Are Five Big, Avoidable Mistakes! A thread based on a TPGA post by @shannonrosa, parent of an autistic now-adult:



As I have become increasingly devoted to 'learn from my mistakes, so you don't repeat my mistakes,' here are five bonks I made during the early years of parenting my autistic son, and how you can avoid repeating my fails.

If you're the parent of an autistic kid, you probably get advice thrown at your head from every angle, all day long. You may even be all done with advice. And I hear you, because I am you. 3/
Read 37 tweets
20 Jan
On this joyous inauguration day, we're republishing our Letter to President Biden @POTUS on Disability Policy, with renewed enthusiasm and hope for how the Biden Administration can best serve its autistic and disabled constituents.


#neurodiversity 1/
Your disability policy makes us hopeful about the future for our autistic children with high-support needs. Thank you for taking the ADA, disability rights, inclusion, and QoL issues seriously, and also for addressing how the COVID-19 pandemic impacts the disability community. 2/
Many of our children are already adults, and many require full-time supports, which means we share your concerns. We also want to emphasize areas in which the Biden Administration can deepen and reaffirm its commitment to disabled people of all ages, and do the most good. 3/
Read 17 tweets
29 Dec 20
We talked with epidemiologist and all-around great guy Dr. Rene Najera @EpiRen about #COVID19 vaccine myths and facts—to both counter misinformation, & also answer community members’ questions. Some of the things we covered (a thread!):


#VaccinesWork 1/
@EpiRen Dr. Najera’s particulars include (but are not limited to): a doctor of public health degree from Johns Hopkins and a master's in public health, in epidemiology & also in biostatistics. He also works for a large DC-area county health department. So, yes, he knows his stuff. 2/
As COVID vaccine prioritization is on everyone’s mind: They want to vaccinate everyone who can be vaccinated, so "Prioritization was done with the recommendation of the Advisory Committee on Immunization Practices (ACIP), which is a CDC committee of scientists and citizens.” 3/
Read 31 tweets
12 Nov 20
So what is it that parents of autistic people, especially those of children/adults with higher support needs, want from the @JoeBiden & @KamalaHarris administration, in terms of disability policy? Well, we’ve got high hopes! And also concrete goals. A thread.


@JoeBiden’s campaign’s disability policy makes us hopeful for our high-support autistic children. It also takes the ADA, disability rights, inclusion, & quality of life issues seriously, & also addresses how the COVID-19 pandemic impacts the disability community. All good! 2/
Many of our children are already adults, & many require full-time supports, which means we share your stated concerns. We also want to emphasize areas in which your administration can deepen and reaffirm its commitment to disabled people of all ages, and do the most good. 3/
Read 20 tweets

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