And it’s not just sensationalistic, clickbait media outlets that impugn the rights and basic humanity of autistic people. Respected, progressive publications and writers can be just as reactionary. 2/
But because we tend to trust “thought leaders” as both intellectually rigorous and socially fair, their ableism often goes unchecked and is far more dangerous than that of their unapologetically prejudiced counterparts.
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This priming of progressive readers and listeners, this permission to view autistic people as subhuman, explains a lot: Why all those big-hearted celebrities don’t know any better than to support Autism Speaks and its stigmatizing campaign to find a “cure”…
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…rather than desperately-needed supports and services for the autistic people who are already here.
Why journalists openly scoff at #neurodiversity activists, and accuse them of not understanding the plight of the “truly” disabled. 5/
Our progressive thought-shapers need to stop treating autism and disability as rare and tragic exceptions, instead of commonplace, both now and throughout history. Parents-to-be need to be aware that autism is a possibility they can prepare for, not a tragedy. 6/
To make this mental shift happen, media outlets and autism organizations must ensure that the people who best know what autism is all about — autistic people — are always part of the conversation.
As I have become increasingly devoted to 'learn from my mistakes, so you don't repeat my mistakes,' here are five bonks I made during the early years of parenting my autistic son, and how you can avoid repeating my fails.
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If you're the parent of an autistic kid, you probably get advice thrown at your head from every angle, all day long. You may even be all done with advice. And I hear you, because I am you. 3/
On this joyous inauguration day, we're republishing our Letter to President Biden @POTUS on Disability Policy, with renewed enthusiasm and hope for how the Biden Administration can best serve its autistic and disabled constituents.
Your disability policy makes us hopeful about the future for our autistic children with high-support needs. Thank you for taking the ADA, disability rights, inclusion, and QoL issues seriously, and also for addressing how the COVID-19 pandemic impacts the disability community. 2/
Many of our children are already adults, and many require full-time supports, which means we share your concerns. We also want to emphasize areas in which the Biden Administration can deepen and reaffirm its commitment to disabled people of all ages, and do the most good. 3/
We talked with epidemiologist and all-around great guy Dr. Rene Najera @EpiRen about #COVID19 vaccine myths and facts—to both counter misinformation, & also answer community members’ questions. Some of the things we covered (a thread!):
@EpiRen Dr. Najera’s particulars include (but are not limited to): a doctor of public health degree from Johns Hopkins and a master's in public health, in epidemiology & also in biostatistics. He also works for a large DC-area county health department. So, yes, he knows his stuff. 2/
As COVID vaccine prioritization is on everyone’s mind: They want to vaccinate everyone who can be vaccinated, so "Prioritization was done with the recommendation of the Advisory Committee on Immunization Practices (ACIP), which is a CDC committee of scientists and citizens.” 3/
So what is it that parents of autistic people, especially those of children/adults with higher support needs, want from the @JoeBiden & @KamalaHarris administration, in terms of disability policy? Well, we’ve got high hopes! And also concrete goals. A thread.
@JoeBiden’s campaign’s disability policy makes us hopeful for our high-support autistic children. It also takes the ADA, disability rights, inclusion, & quality of life issues seriously, & also addresses how the COVID-19 pandemic impacts the disability community. All good! 2/
Many of our children are already adults, & many require full-time supports, which means we share your stated concerns. We also want to emphasize areas in which your administration can deepen and reaffirm its commitment to disabled people of all ages, and do the most good. 3/
Why do some parents of autistic people attack #neurodiversity advocates for appearing less disabled than their own kids? Especially when those advocates are fighting to ensure a better future for all autistic people—including those parents’ kids?
An eyebrow-cocked thread. 1/
These outraged parents say "...that those who argue the Neurodiversity position do so out of ignorance," which is not merely offensive but untrue: those who support Neurodiversity tend do so because Neurodiversity is their reality, and the neurodiverse their community. 2/
Plus many parents whose children experience a "trifecta of autism, intellectual disability, & dangerous behaviors" support the Neurodiversity movement. Including the editors of this very volunteer org. Some of these parents are even autistic themselves! 3/
Autistic Commonality and the Illusion of “Quirky”: A thread from a TPGA article by @epballou!
Some people insist on describing the autistic spectrum as ranging from the non-speaking and very profoundly disabled, to the “just quirky.”
(Ed.: Emily will explain why this is BS.) 1/
@epballou Or, during discussions about the need for acceptance and accommodation, the same people might tell autistic self-advocates, “That may be fine for autistic people like you who are just quirky, but you're not like my child.” 2/
@epballou Some of those same people even insist that autistic people who are “just quirky” should probably have a different label than 'autism' altogether.
But I actually wouldn’t mind if the word “quirky” were to disappear entirely from autism discussions… 3/