Thread by @bendymarsh

@NICEComms have ‘paused’ publication of #MECFS guidelines due tomorrow (already delay since April)
There must be real concern that’s due to expected withdrawal of #GET & #CBT, shown in evidence reanalysis to be ineffective & harmful by patient report 1/

nice.org.uk/news/article/n…

@NICEComms is held as the arbiter of evidence based medicine & consensus.
I fear that in this case, Eminence based medicine has instead prevailed.
Can it really be the case that @NICEComms can be influenced by reputation, power & connections, to go against science, evidence? 2/

#ForwardME a group of #ME #MECFS charities, professional bodies & services have released the following statement expressing their concern 3/

https://twitter.com/actionforme/status/1427679054669533191

Key phrase for me in @NICEComms statement is
“In order to have the desired impact, the recommendations must be supported by those who’ll implement them & NICE will now explore if this support can be achieved”
So the Dr are refusing to accept @NICEComms process?
Unbelievable!
4/

This MUST NOT BE ALLOWED!!
We must talk about it, we must ensure this is heard & read about & the implications understood!!
#pwME
Friends, family & carers of #MECFS
MUST HIGHLIGHT THIS!!
#Trending on @Twitter & written about by @TimesONeill in @thetimes

https://twitter.com/timesoneill/status/1427658740317278215?s=21

@threadreaderapp please unroll