The chronic collaboration has been created in response to the recent refusal of NICE to publish the much awaited ME/CFS guideline. Many #pwME would like to protest this decision along with the years of medical neglect & mistreatment they have faced 1/5
meaction.net/2021/08/19/sig…
meaction.net/2021/08/19/sig…
Due to the psychologisation of #MECFS after the scientifically flawed #PACEtrial, part funded by the #DWP btw. Not only has this caused medical abuse in patients with #ME (#MAIMES) its having a huge impact on the treatment & further investment of many other patient groups 2/5
From people living with #ChronicPain & #MUS to #Fibromyalgia & #LongCovid. There are literally #MillionsMissing globally & thousands of #Disabled #pwME & #SevereME in the UK who are desperate for their voices to be heard, represented, just taken seriously in many cases 3/5
And to do so they need YOUR help! We need as many allies as we can find who are prepared to come out & support our protest outside NICE's HQ in London for the thousands of #pwME who want to attend themselves but are just not well enough to attend a protest in person. 4/5
If you are able to support us please retweet, follow & don't forget to sign & share this global petition that's already had over 10,000 signatures. Over the next few days we will also be confirming the details of the protest to get NICE to #PublishThatGuideline!!! ✊ 5/5
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