Acknowledgement also at #YHFSummit from @roxxmacdonald of the enduring toll of colonisation on the health of Aboriginal and Torres Strait Islander people (I'm tweeting from the traditional lands of the Wurundjeri people of the Kulin nations, in Melbourne/Naarm)
"We all know that COVID has hit young people the hardest," says @roxxmacdonald talking about the toll on rites of passage, transitions, mental health, employment, housing of the pandemic #YHFSummit.
Young people will continue to experience the impacts of COVID past the final lockdown and with the climate crisis: @roxxmacdonald
Are looking for strong systems, policies, infrastructure and to be counted as leaders, decision makers and "experts in our own right" #YHFSummit
"We try to say what is going on, not why it's going on," cautions @NAPS_Gem
Australia doesn't do well on the global index, because we do poorly on drug use, alcohol abuse and mental health, says @NAPS_Gem#YHFSummit
The Australian Youth Development Index 2020 sought to consult widely with young people, on issues of importance, for example 'community and culture' domain was emphasised as critical by Aboriginal and Torres Strait Islander young people #YHFSummit
. @NAPS_Gem talking us through the Index dashboard, how for example people working in health in states and territories can see how they and others are tracking in the domains #YHFSummit
Index is super important for advocacy but we don't have the data sets we'd love to have that reflects the lived experience of young people, says @ktacheson#YHFSummit
"This is the starting point, not the end point," says @NAPS_Gem of the Index, urges people to reach out to other data sets, advocacy groups etc.
In terms of getting new data, could start by "stopping slashing funds of @ABSStats" #YHFSummit
"Get a statistician or survey person to look over your questions," recommends @NAPS_Gem.
Also, says @ktacheson, important to strengthen data gathering/analysis capacity of orgs which are trusted by young people, have finger on the pulse etc. Encourage all to share.
Next #YHFSummit session: Setting the scene, setting the agenda: 7 round tables on: mental health, LGBTIQ+ health, cultural diversity and health promotion, climate change and health, COVID, health and young people, access and disadvantage in health
Am in the #LGBTIQ+ session at #YHFSummit being led by Georgia Gardner, who says today's discussions are looking to explore/propose real solutions.
"A lot less inappropriate curiosity from health care professionals" is a priority raised in the #LGBTIQ+ session, with a note it applies to so many other groups, incl disability, Indigenous health etc.
Also disrupt the assumption of heteronormativity. #YHFSummit
Participant talking about little awareness in health about asexuality, also subject to inappropriate curiosity. "Need basic respect, understanding, acknowledgement" #YHFSummit
In cultural diversity session: "Have been on consultations that have been tokenistic, misrepresented our words, eroded trust: make sure you include the whole picture not random sentences". (Conscious I've just done same, popping in to #YHFSummit session!)
Real worry with the power balance too often involved in codesign, as if "doing participants a favour" by including #YHFSummit
Concern still at failures to relinquish power and to acknowledge the structures that reinforce that. Hoping the pandemic is leading to more understanding of need to engage with diverse communities, but let's swap 'consultation' for 'meaningful, genuine partnership'. #YHFSummit
Interesting here at #YHFSummit re how going into aged care can be stigmatised in many communities, also failures in cultural competency, where facilities don't respect traditions, foods, other critical parts of care - they need to realise difference and the power they hold,
Too often cultural competence is "just another thing I have to learn": needs to be intentional, especially when dealing with different ages/intersections. #YHFSummit
Hearing re frustrations at lack of acknowledgement of racial disparities in play with Sydney lockdown #TaleofTwoCities#YHFSummit
#YHFSummit participant is talking about the ongoing need for many young people to advocate for parents, want to be at a place where 'oh we need to translate those materials' is not a conversation anymore
Some of the issues raised at #YHFSummit cultural diversity session: Failures in COVID-19/vax rollout, mistrust in health system, racism, importance of cultural competency (workers/system), importance of lived exp/intersectionality, need to advocate for international students...
"A future where we are all represented." Summing up at the #YHFSummit cultural diversity session: CALD communities should not be an afterthought, forced to react to policies/issues/pandemics etc.
Shifting the focus from health to wellbeing in governments: looking at 'building back better' not just from pandemic, but intergenerational challenges/inequities that have continued to play out. Look beyond GDP as indicator of success: @SandroDemaio#YHFSummit
"What gets measured gets done." @SandroDemaio says we all know individual worth not reflected in income, and it's the same for Australia/other countries. If all we measure is $ generated (GDP), that leads to perverse incentives, profit over health. #YHFSummit
Keys to co-design: prioritise relationships, share power, build capacity (not so much in young people but among professionals who are not so used to working as peers vs in hierarchies), participatory methods @kellyanagram#YHFsummit
Robert Yates of @ChathamHouse and @LSHTM comes to us from a sunny London! We are so lucky to have him chat to us about how palliative care can get a "decent crack of the whip" on universal health reforms. #21OPCC
@ChathamHouse@LSHTM "This is an opportunity for radical change. We should be prepared and get organised." But what is Universal Health Coverage? Important to nail down the definition. #21OPCC Simple definition here 👇
@ChathamHouse@LSHTM But the longer definition makes it clear that palliative care is part of the continuum. Wherever you see UHC, we must insist on palliative care not being crowded out by curative services. #21OPCC