Q: how make sure engaging with the most marginalised young people....
@michelle_telfer says that is an issue in her work trans kids/young people - have worked with various groups to increase access, but need to work on more systemic change across the whole health system.
. @PatMcGorry - @orygen_aus lucky that it operates in v diverse, multicultural area of Melb (also bearing brunt of COVID). But that can be deceptive, definitely underperforming for some communities - "we don't see what we don't see". Have work to do on that. #YHFSummit
Re participation: typically national ref/advisory groups for clinical/research groups biased towards 'high end' young people, need more cultural/class diversity to better represent young people, acknowledges @PatMcGorry#YHFSummit
Within 'young people' is so much diversity, which needs to be recognised/included, says @all__that__jas
Respecting young people's autonomy, rights re sharing - need safe spaces, respect boundaries, says Zinab al Hilaly #YHFSummit
For greater engagement with diverse communities need diverse people involved, cultural competency, and acknowledgement of power and privilege: Zinab al Hilaly #YHFSummit
Re safe spaces - this is key for young people to engage in health care says @michelle_telfer - says her service was painted by media as unsafe: misinformation which was very damaging to young people and their families. Was important to fight that narrative #YHFSummit
Q: What does meaningful engagement mean to you and how do you bring it to life?
@PatMcGorry: 20 years ago was clear in the emerging 'youth mental health field' of the need to design 'oases of care'. Asked young people to work with us to do that - @headspace_aus impt #YHFSummit
"We've got young people's voices at important levels...still got a way to go, but you actually listen and learn from each other, is mutual respect." @PatMcGorry on meaningful engagement #YHFSummit
The next wave of good ideas in mental health have to come from young people, from the next generations, says @PatMcGorry - "we need each other to get things right". No room for tick box approaches. #YHFSummit
Q: How do you acknowledge contribution of young people in work?
@michelle_telfer says clinicians like to feel they in control, have all the answers...well-intentioned but don't like ambiguity or feeling unsure. Better if they can #YHFSummit
When talk re meaningful engagement, it needs to be everywhere, including in the clinical interaction - "what would you like to do, what is your plan?" - to the top/board level, where young people make decisions. @michelle_telfer#YHFSummit
. @PatMcGorry adds: @orygen_aus slogans 'revolution in mind', 'never settle' - we can't ever be satisfied, have to look to constant change/improvement, fight complacency/inertia #YHFSummit
Effecting change in a rigid health care system, can be v difficult/overwhelming for young people to engage - what skills are important for emerging leaders, among the COVID generation? @all__that__jas#YHFSummit
Tapping into the tremendous energy young people have is critical, says @PatMcGorry - he says he wasn't able to have impact till was in his 40s, now sees younger people having influence/opportunities much earlier. #YHFSumit
. @michelle_telfer observes that past generations had to rally in large numbers on the streets to bring about change, but now is more opportunity to mobilise/amplify via social media. Courage, conviction, consistency are key skills. "Being brave is v v important" #YHFSummit
Important for ambitious young people who want to shape the world to get good at something, have expertise not just opinions. The 10,000 hours idea. "Put in the hours". @PatMcGorry#YHFSummit
"We have a lot to be angry about....we're the first generation who will be worse off than our parents," says @all__that__jas, pointing first to climate crisis (and quoting @GrattanInst) . #YHFSummit
. @PatMcGorry agrees society has let young people down in a big way, that's why we're seeing a mental health crisis. Maybe time to go back to 1968. ##YHFSummit
Reflecting on her change-making and advocacy work, Zinab Al Hilaly says empathy and confidence, or "being brave and being passionate" are key. Need to understand different experiences/perspectives. #YHFsummit
Q: As a young multicultural person who has navigated the system, we know accessing support can be difficult: affordability, access, safety. How do young people become change makers in such systems? What examples in action? #YHFSummit
"I like to think we can achieve great change in a small period of time, but we also need small steps," says @michelle_telfer, who points to advocacy years ago by a young person who objected to having to identify gender just to be able to watch a movie at the hospital. #YHFSummit
"It's about asking the question. It's about speaking up and expecting someone to listen," says @michelle_telfer on making change. #YHFSummit
@PatMcGorry acknowledges terrible slow pace of change, points to racism
"Things actually can get worse," warns @PatMcGorry pointing to the impact of #COVID on an already 'broken' mental health system in Australia.
"Change is a war," he says, and it can result in injury - acknowledges @michelle_telfer's experience #YHFSummit
"I work as a mental health support worker, and my gender diverse clients have IMMENSE issues with hospital services not respecting their pronouns/gender identities. It shouldn’t be the onus of trans consumers to constantly battle...just to feel safe and respected."
"As trans people in government/health we're often the ones who feel an urgency to do the work it takes to push change through around these things." #YHFSummit participant
"Great tag line from this session, lets remember to rock the boat and never fear change!" #YHFSummit participant
Takeaways....
"There are millions of small steps happening and we need to celebrate that.: Zinab Al Hilaly
"Not just giving us a seat at the table, but making sure we can be heard." @all__that__jas
"I'm reminded I can never be complacent, young people and their needs will constantly change, we need to be listening and working with them to make sure we get it right together." @michelle_telfer#YHFSummit
. @PatMcGorry warns against notions that young people are an homogenous group #YHFSummit
"Young people don't have to wait to have influence. So many platforms that create that opportunity."
Shifting the focus from health to wellbeing in governments: looking at 'building back better' not just from pandemic, but intergenerational challenges/inequities that have continued to play out. Look beyond GDP as indicator of success: @SandroDemaio#YHFSummit
"What gets measured gets done." @SandroDemaio says we all know individual worth not reflected in income, and it's the same for Australia/other countries. If all we measure is $ generated (GDP), that leads to perverse incentives, profit over health. #YHFSummit
Keys to co-design: prioritise relationships, share power, build capacity (not so much in young people but among professionals who are not so used to working as peers vs in hierarchies), participatory methods @kellyanagram#YHFsummit
Robert Yates of @ChathamHouse and @LSHTM comes to us from a sunny London! We are so lucky to have him chat to us about how palliative care can get a "decent crack of the whip" on universal health reforms. #21OPCC
@ChathamHouse@LSHTM "This is an opportunity for radical change. We should be prepared and get organised." But what is Universal Health Coverage? Important to nail down the definition. #21OPCC Simple definition here 👇
@ChathamHouse@LSHTM But the longer definition makes it clear that palliative care is part of the continuum. Wherever you see UHC, we must insist on palliative care not being crowded out by curative services. #21OPCC