Thread by @FightAbleism

A4: when it comes to info people have id say I want chronic illness/disability education to start young. I had no idea I was a spoonie when I was young so I never asked for help, harming my health greatly. I also got a lot of conflicting info about eds from doctors #SpoonieChat

https://twitter.com/DawnMGibson/status/1450980401372090371

most of the info I got before I found my most knowledgeable doctors was from others with ehlers danlos & social media. I want docs to have/give up to date+standardized info on eds & similar conditions. I want docs to stop perpetuating harmful ableist stereotypes of disability too

I recently spoke to a med student and at her school seems like the #eds education is really good but 99% of the doctors ive met were unfamiliar with it or misunderstood what it is. doctors have misunderstood many of my health conditions-saying some are fake, psychosomatic, caused

by my own actions, a "trendy" diagnosis i want for attention, that i can't possibly have over 10 health conditions, and more. Ive had docs perpetuate many harmful ableist stereotypes like: asking for accessibility is for lazy people, wheelchairs mean giving up, meds are bad and

mean you are an addict even if its not a controlled medication or addictive med, you can just "get used to" severe daily chronic pain, its okay to deny pain meds based on my age and how I look, and more #SpoonieChat