🧵 on how I got where I am today, seems appropriate for #PainMonth:

At 16yo I was a senior in high school & sophomore in college, simultaneously.

At 18, w/ a double major & a minor within 2 semesters of #graduation, I quit college. I knew it wasn’t for me.

Do I regret it?
1st A bit about happened next:

I joined the #army to follow in my dad & grandpas footsteps.

Was seriously injured in the 1st half of training yet kept pushing. I made it through but needed extensive surgery & physical rehab & still have #Pain.

I came home feeling I failed.
Once I was home & healing, I turned the page.

I spent next years climbing a corporate ladder, making over $100k/yr at 20.

And I HATED every second of it!

I happily accepted a promotion to ‘head cook & chief bottle-washer’. I was married & raising a healthy baby girl.
I had no idea it would take every bit of my schooling & training to prepare me for our next adventure - #FosterKids!
Once cancer took my ability to have more children, we began sharing our love and home with foster kids.

I was dealing with the hell that is working with social services, the kiddos #MentalHealth challenges, and my own physical health issues (1st of 3 cancers + #PelvicMesh hell).
It seemed I spent most days #advocating for someone/something in some government building.

That is when I realized my calling, my passion - #activism.

Back to my question - do I regret dropping out of college when I could have had 3 degrees before I turned 20?
Today, no. But between the Army & finding my calling there were years of asking ‘why me’ & rehashing choices.

I learned that the years wishing I’d made other choices or telling myself I deserved anything difficult that came my way were BS.

A waste of time and happiness.
There was a moment I realized that all those years could have been different, but 2 things would’ve changed:

1) I wouldn’t have learned to take responsibility after years of blaming others

&

2) I wouldn't be who and where I am today

Life is better because of my struggles.
Plus the foster kids that came through my home wouldn’t know how much they are #loved.

And what’s more important than teaching the next generation that they are loved, worthy, & how to love others?

None of us would be who we are today without experiences gained from struggles.
If I had made different choices, I likely wouldn't know how to:

hustle to survive
repair home/car
decorate cakes like a pro
sew
or
coupon to stretch $200/mo enough to feed 5+ people 3 meals a day.

Those skills made me flexible which is extremely helpful in my endeavors of late.
I still have 2 foster kids who stay with me most of the time, my oldest is now college aged but struggling, & my physical health is my biggest challenge.

Multiple battles with cancer, one recently which involved months of chemo & all that comes with it, have taken their toll.
But these challenges have also sharpened my resolve and shown me even more areas where my particular brand of #activism WILL come in handy.

So I will keep fighting, keep challenging myself & the status quo.
It’s that status quo that keeps the rich getting richer & more powerful.

It keeps Americans sicker than their counterparts around the world.

And worst of all, it discourages citizens from believing they can get involved and make a difference.
If someone who never finished college, was injured in the military, and has emotionally disturbed children in and out of their home can use the very skills learned in these #challenges to make policy changes, anyone can.

The skills you least expect could be the ticket to change.

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More from @fightpaindaily

Jun 29
Important 🧵 about the #CDC, #COVID, the #opioid crisis, & #pain:

This article does a great job of showing how the CDC is easily influenced by whatever political party is in charge and whoever is paying for the current narrative.

1/?

reason.com/video/2022/06/…
At this point, it should be clear to nearly all Americans that claims/guidelines/etc of the CDC are rarely crafted solely for public health.

The bull💩 claims about the opioid crisis is as politically/financially driven as any. It’s time for Congress to force the CDC to:

2/?
1) end current & expose previous private funding

2) have meaningful oversight

3) most importantly - WHEN (not if) scientific (or any other type of) fraud is discovered, any guidelines or actions based on the fraudulent or skewed data must be rapidly and publicly reversed.

3/?
Read 4 tweets
Nov 19, 2021
I want to share something that happened to me Wednesday, not for sympathy but to share how I was treated. Long 🧵, GREAT ending

Wednesday around noon I fell going down the 3 steps of my front porch. I kinda rolled and bounced I think since I sat up about 6’ from bottom step.

1/
I could tell instantly I wasn’t going to be able to walk due to left knee and right ankle both rolling and twisting multiple directions as I tumbled.

I started looking for my phone which flew out of my hands during the fall & luckily it wasn’t broke and wasn’t too far away.

2/
I scooted to it, probably still loudly screaming and cursing, and called a neighbor I knew was home.

He came right over & said to call an ambulance, but I’m stubborn & asked him to let me try to scoot to my car and him drive me instead.

Took a bit but I made it into my car

3/
Read 19 tweets
Oct 28, 2021
1/ Excited to announce a landmark Oklahoma House of Representatives (#OKHoR) Interim Study, Monday Nov 1, entitled "What impacts have rapid reductions in opioid prescribing had on patients?"

This event will be live streamed starting at 1pm from this link: okhouse.gov/Video/Default.…
2/ This Interim Study is the culmination of a deep dive investigation into outcomes for patients with pain and the practitioners caring for them, following legislative changes from previous years which restricted opioid prescribing in an attempt to address the opioid crisis.
3/ This 90 minute presentation to the #OKHoR Alcohol, Tobacco, and Controlled Substances Committee, chaired by Representative T.J. Marti, will consist of presentations from respected experts, #P3Alliance, and impacted Oklahoma patients.
Read 9 tweets
Feb 11, 2021
Instead of doubling down on the belief that all patients are better off without pain meds, as these “experts” have been doing for 5+ years now, why not acknowledge there ARE some patients for which long term opioid therapy is beneficial?

katu.com/amp/news/recov…
How much would it actually harm opioid lawsuits to admit this?

Why aren’t we worth it, whatever the cost?

Many patients were tapered or cut off years ago and are still unable to find adequate relief even after spending thousands on any alternative that might possibly help.
Many went from working and enjoying life to now praying daily for death and barely surviving on disability payments alone.

To continue focusing on reducing prescribing is to ignore real life experience and suffering of a portion of disabled who have been w/o pain meds for years.
Read 4 tweets
Aug 12, 2020
Here are 6 recent studies & articles to show harms being caused by current push to de-prescribe opioids.

We need a diff policy approach to opioid rX. This seems to be causing more deaths & suffering than allowing stable patients to remain on long term opioid therapy.

#C50 1/?
Soon, I’ll share recent study about related harms of remaining on long term opioids - hint, they are no where near whats been claimed!

🎯In ~2 years after taper, of which the vast majority are provider initiated (forced?), all cause mortality is ~20%.

bit.ly/Tapers1
🎯Higher rates of suicidal ideation & suicidal violence are found in patients following tapers.

bit.ly/tapers2
Read 8 tweets
Jul 16, 2020
Everyone needs to read this short letter to the Editor, regardless of personal feelings...

“Does ‘dependence’ on opioids constitute a distinct clinical state?”

My thoughts and explanations are in this thread👇, please read & RT to help 🛑 this new HARM!

journals.lww.com/pain/Fulltext/…
Hopefully every1 will put personal opinions aside & recognize this attempt by PROP for what it is, designed to give them tool they need to FORCE each off our effective LTOT & onto Suboxone.

If we can’t work 2gether 4 this & support pros willing to fight w/us, our fight is over.
PROP & their cronies have been quietly pushing for a new diagnostic category.

This would mean if your Dr decides to stop or #ForceTaper your meds and you have fear or even more pain then your ONLY suitable treatment option left is Suboxone.

THEN this actual dX stays with you.
Read 12 tweets

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