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Sep 15 • 18 tweets • 11 min read
Really proud to have been a member of the @WHO Guideline Development Group for #LongCOVID Post-COVID Condition #Rehabilitation released today app.magicapp.org/#/guideline/64…
Topic 1: Components and functions of rehabilitation care #LongCOVID
Topic 2: Red flags for safe rehabilitation #LongCOVID
Topic 3: Referral principles #LongCOVID
Topic 4: Service Delivery #LongCOVID
Topic 5: Workforce #LongCOVID
Topic 6: Post Exertional Symptom Exacerbation #LongCOVID #PESE #PEM
Topic 7: Arthralgia #LongCOVID
Topic 8: Breathing Impairment #LongCOVID
Topic 9: Cognitive Impairment #LongCOVID
Topic 10: #Fatigue #LongCOVID
Topic 11: Mental Health #LongCOVID
Topic 12: Olfactory Impairment #LongCOVID
Topic 13: Orthostatic Intolerance #LongCOVID
Topic 14: Swallowing Impairment
Topic 15: Voice Impairment #LongCOVID
Topic 16: Return to Everyday Activities and Work #LongCOVID
A village of people were involved in this process and meaningful engagement of people living with Long COVID happened throughout … kudos to the @WHO team

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More from @darrenabrown

Darren Brown Profile picture
Jul 15
One year ago @WorldPhysio1951 published the briefing paper led by @LongCOVIDPhysio on safe #LongCOVID rehabilitation. This was specific to the topic of physical activity & exercise. The reach of this publication is immense, and continues to impact on practice, research & policy.
How has this publication helped you? We would love to hear the stories and testimonies about the personal impact of the @WorldPhysio1951 briefing paper on safe #LongCOVID rehab.
Access the briefing paper in 11 different languages👇
longcovid.physio/our-work/world…
Read 4 tweets
Darren Brown Profile picture
Jul 14
Emerging evidence of pathogen reactivation following #SARSCoV2; with flare ups of EBV and Herpes seen in #COVID & #LongCOVID. Could we translate learning from other knowledge areas? Eg: the presentation of Immune Reconstitution Inflammatory Syndrome (IRIS)? 🧵
IRIS is observed when peoples immune systems recover after immunocompromisation. Classically when people have IRIS there’s risks of re-ermergent dormant pathogens or conditions.
There are broadly two classifications of IRIS:
1) "unmasking" IRIS refers to the flare-up of an underlying, previously undiagnosed infection soon after treatments used to improve the immune system are started
Read 12 tweets
Darren Brown Profile picture
Aug 28, 2021
Today I got home after a weeks holiday exploring Suffolk & Norfolk with the boyf. We had an amazing time & loved the coast. I was also #LongCOVID symptom free despite being very busy & active. Here’s a beach pic 🧵 on a particular thought about the terms “tired” & “fatigue”.
I’ll start by saying how bloody happy and grateful I am that I had a holiday (staycation), I was able to do everything we wanted, and #LongCOVID symptoms didn’t feature at all (also there’s no cure I have, other than time & pacing).
So, “tiredness”, “fatigue” and “post-exertional symptom exacerbation (PESE)”. Firstly, they are not the same thing. For me, they are all distinct. Secondly, on this holiday, for the first time in 18 months I felt tired only. So what’s *MY* understanding of the differences?
Read 8 tweets
Darren Brown Profile picture
May 25, 2021
#GlobalPT there are many opportunities to access 🔊🆓🔊education about #LongCOVID. As #COVID19 ⬆️ & ⬇️ in different parts of the world 🌍 Physios should not loose attention on the long term consequences of this 🦠 virus & 👷‍♀️SAFE rehab... here’s a 🧵 on current resources 💙👇
@WorldPhysio1951 made the #WorldPhysio2021 Congress #LongCOVID discussion session 🔊OPEN ACCESS🔊 and 🔊🆓🔊 for all (thank you @WorldPhysio1951 🙏🏻) longcovid.physio/our-work/world…
@PhysioplusEd provide access to their 🔊🆓🔊 course on #LongCOVID (thank you 🙏🏻 @physiopedia for your continued support) longcovid.physio/our-work/physi…
Read 16 tweets
Darren Brown Profile picture
Mar 22, 2021
Measuring NEW #disability in ppl living w #LongCOVID 🧵
👉 Symptoms & Quality of life assessed by patient reported outcome measures #PROMs
👉 among 325 ppl in UK who survived hospital admission w #COVID19
👉 at least 3 month follow-up after discharge
assets.publishing.service.gov.uk/government/upl…
1️⃣ Primary outcome = self reported recovery at least 3 months after initial COVID-19 symptoms

2️⃣ Secondary outcomes =
👉persistent symptoms
👉breathlessness (MRC dyspnoea scale)
👉new disability (Washington Group Short Set)
👉Quality of life (EQ-5D-5L)
905 potential participants were approached, with a total of 325 (36%) consenting, replying, with symptoms >3months, and completed questionnaires

Median follow up time after onset of symptoms was 7 months (therefore meeting time criteria of >12 weeks to identify Long COVID)
Read 13 tweets
Darren Brown Profile picture
Oct 9, 2020
I am living with #LongCOVID. I am experiencing multi-dimensional and episodic disability, across all dimensions of disability. My primary symptom is fatigue & post-exertion malaise. Along with other symptoms. I want to describe the nature & extent of disability I experience. Image
I have used the @WHO International Classification of Functioning Disability and Health (#ICF) to describe the nature of my disability living with #LongCOVID who.int/classification… Image
Yesterday I measured the extent of disability I experience living with #LongCOVID over the past 30 days, using @WHO World Health Organization Disability Assessment Schedule (#WHODAS). My complex sum score = 68.75% (0=no disability, 100=full disability) who.int/classification… ImageImage
Read 15 tweets

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