Thread by @1derfultype

🧵#ISPAD #dedoc° symposium:

Dedoc° started 10y ago on Twitter:
✅ Peer support
✅ Meetings outside of scientific conferences cause #PwD were not allowed in

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n

#ISPAD #dedoc° symposium:

ISPAD was the 1st scientific conference that organised a Dedoc° symposium in 2021 🙏
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n

#ISPAD #dedoc° symposium:

Dedoc° is a platform for others to stand on - to have the #PwD voices heard 🔊
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 3/n

#ISPAD #dedoc° symposium:

'PwD are face to face with @diabetes on their own - they do most of the work.
#PwD are welcome to be ISPAD members just like any #HCP.'
-Carine Beaufort

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy @dedocORG @ispad_org 4/n

#ISPAD #dedoc° symposium:

Zuzanna Burzynska is the youngest #dedocvoice ever.
She's been a #CoCreate youth advocate for 2y demanding unhealthy food marketing to stop.

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 5/n

#ISPAD #dedoc° symposium:

@Jazzsethi95 runs the Diabetsies Foundation.
She always says: 'If access to healthcare is considered a human right - who is considered human enough to have that right?'
🙏 Jazz

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 6/n

#ISPAD #dedoc° symposium:

'We need patient voices to achieve change in clinical environments, industry and research.'
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 6/n

#ISPAD #dedoc° symposium:

'Importance of the #T1Dindex - so many years could be restored to #PwD in India. And that's just one country.'
-Tom Robinson @jdrf (You make me cry every time I listen to you)

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 7/n

@JDRF @dedocORG @ispad_org #ISPAD #dedoc° symposium:

'#T1Dindex ▶️ 3.8M people should still be here today. Many were never diagnosed and died at onset.
This has to change.'
-Tom Robinson @JDRF

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 8/n

#ISPAD #dedoc° symposium:

'#T1Dindex ▶️ 6M people lost by the 2030s.
Never talk about a rare disease. Never again.'
-Tom Robinson @JDRF

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 9/n

#ISPAD #dedoc° symposium:

'The mental health factors are often forgotten. Sleep lost. Hours spent crying.'
-@Jazzsethi95 @diabesties1

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @dedocORG @ispad_org 10/n

#ISPAD #dedoc° symposium:

'I'd like to have other ways to count how #T1D steals time. The time lost traveling to meet your clinician for instance. It can be a real burden for some #PwD.'
-Tom Robinson #T1Dindex

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs @ispad_org 11/n

#ISPAD #dedoc° symposium:

'#HCPs believe that the person with #diabetes should be involved. Learning processes should be put in place. We all need to partner up. We still have to work on #LanguageMatters.'
-Carine Beaufort

#ISPAD2022 #dedoc°voices @dedocORG @ispad_org 12/n

Thank you so much guys 🙏 It’s been such an inspiring #dedoc° symposium. I’m in tears - as usual 🥹💙❤️

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs
#diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org

Apologies @Jazzsethi95 for misspelling @diabesties1 whilst live tweeting 🤦‍♀️
What an inspiring work you’re doing ❤️

#ISPAD #dedoc° symposium:

Oleg, YOU are our hero. You save the life of so many #PwD living in Ukraine. THANK YO for making that work, for taking huge personal risks to deliver #insulin and treatment ❤️ @insulinforlife @lifeforachild

#ISPAD2022 @dedocORG @ispad_org 13/n