Type 1 circa 1983 | Empowered by the #DOC #WeAreNotWaiting #LanguageMatters #NothingAboutUsWithoutUs #InsulinConsensus | #dedoc°voices | Own views - She/Her
Oct 16, 2022 • 22 tweets • 43 min read
🧵How can #HCP assist people who chose to use #DYIAID?
The @OPENDiabetesEU ⤵️
▶️ Katarina Braune is a co-founder
▶️ Patient-led
▶️ 2/3 of the international team live w/#T1D
▶️ #OpenSource#AID data
#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.
@lifeforachild /@ispad_org survey - shifting responsibility:
'I am an advocate because I believe that evidence should be made accessible to every stakeholder.'
-Emma Klatman ❤️
1⃣9⃣9⃣6⃣ Phnom Penh: no child alive with T1D in Cambodia then.
A boy had a late diagnosis, had had a dose on #insulin, but no fluid yet. He passed away 💔
Tips to take back:
▶️ safe space to talk about meal or changing sites that can bring distress and higher #BG
▶️ recognise what's going well
-Susana Patton
🧵Microbiota: can they prevent #TID?
Incidence of T1D is rising particularly in the young.
Environmental factors could drive this pattern observed across the globe.
-N. Hanssen
Pathogenesis:
1⃣ Genetic susceptibility
2⃣ Something triggers autoimmunity in the 1st years of life or later
3⃣ #BetaCell destruction
4⃣ Diagnosis
-L. Krogvold
Digitalization in Diabetes Education and Care:
'We know that autoimmunity starts way before #T1D diagnosis - if screened. We learnt that #cpeptide might not be relevant thanks to models'
-Dr A. Galderisi
'In addition to the challenges of getting hybrid #AID systems, they still require setups. They still require the user to #carbcount for meals & initiate correction boluses.'
-Steven Russell
1/ #COVID-19 et #diabete : une contamination #SARScov2 peut-elle être un élément déclencheur ?
Très long (vraiment très long) #thread 🧵 ⤵️
2/ La plupart des personnes qui vivent avec une maladie chronique sont conscientes d’être plus à risque en cas de contamination #COVID. Celles qui vivent avec un #diabete#DT1#DT2 ou autre, savent aussi qu’une infection, quelle qu'elle soit, peut provoquer une certaine
Oct 4, 2020 • 6 tweets • 8 min read
[#thread] Déception à la lecture de la newsletter du @CeeD_Diabete qui paraphrase l’ANSM sur les #BouclesFermées DIY. Avec +5 ans d’expérience utilisateurs les développeurs du #DIY ont ouvert la voie aux boucles commerciales 🚀
#DIYAPS#DT1
Les #BouclesFermées commerciales ne sont pas encore disponibles en France, et le seront à un public restreint. Elles le sont depuis 2 ans dans d’autres pays. Les #DT1 ne peuvent plus attendre et construisent leur propre boucle avec du matériel marqué CE.
#ControlIQ Tandem T:slim #closedloop's aim at improving #TIR. To activate Control IQ, are required:
▶️ current weight
▶️ total daily #Insulin
▶️ carb ratio
▶️ ISF
▶️ correction factors
▶️ meal bolus still required
The implication of the wider spread of #DIYAPS on out-of-pocket expenses for people with #T1D- Timothée Froment on the conomic burden associated with #diabetes technologies
Evaluation of the #OmnipodHorizon™ automated glucose control system in children with type 1 diabetes:
* Connected to #DexcomG6
* Algorithm built into the pod
* Phone controller or PDM
- Dr Gregory Forlenza