Discover and read the best of Twitter Threads about #PwD

@BonitaZarrillo

Disabled people are dying due to legislated poverty. At 11 yr. Its deep deep poverty that has likely not been seen since the great depression. Dying of hypothermia, suicidr, hunger, hospital triage policys, Maid the free suicide that was the disableds
@BonitaZarrillo
#derb

Pandemic plan courtesy of the federal govt.
Disabled need help yesterday. It is a crisis
And a emergency. With skyrocking prices they can no longer afford to live. Market rent consumes the whole disability check. They need aid like Cerb that was given to workers.If you know
#derb

@BonitaZarrillo

A death is imminent does the government have the obligation to help? Yes under United Nations Convention on the rights of persons with disabillity. There is an obligation. Recently bill c 22 was going thru committee its a Canada Disability Benefit but it
#derb @BonitaZarrillo

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@BonitaZarrillo

Dear Disabled Peeps
If you got temporary monthly emergency aid of $2500 would you wait for Billc22 to have protective legislation added to it before it passes?
#derb #pwd #billc22 #cdb #derbit #derbistheword
@BonitaZarrillo

Thats $2500 ON TOP of your provincial or cccd. That way the #derb check wud likely cover rent in most places in Canada leaving u still with 100% prov/cd to spend on other bills and to catch up on stuff u couldn't afford ie, dentures home care etc
No claw back .all ages
Its gotta

Be significant as we are soooo far below poverty level. As most ppl wud be able to pay market rent it gets some 40% of homeless into homes
We deserve 2 live with dignity, whatever it takes 2 b integrated into society not segregated. So 4 me I want the $2500 on top of odsp
#derb

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Patricia Scrafield (she/her)

United Nations on poverty & Maid 4 disabled not at end of life/terminal. ITS CLEAR ITS NOT OK.
Its a giant step backwards 2 ww2 what Canada is doing. Maid is not treatment. Suicide via govt is not a right.Why has our govt not fought with the same determination for pwd supports?

Why are so many invited guests at our Maid committee already clear supporters of pretty much every kind of Maid. This is eugenics when the govt stacks the deck. I can't even listen at times when they discuss killing kids and infants. Monstrous.
#derb
#pwd
ohchr.org/en/press-relea…

Nothing about us without us? They are ignoring objections by disabled community groups & a letter of about 888 doctors. 2 panel members quit because its so biased. Its eugenics not treatment or rights.
When they came for us did u object? Or will u wait till they come for u?
#pwd

Read 6 tweets

Inclusion Canada

@InclusionCA

@lasqd

Up now is Federation member @lasqd - Amélie Duranleau & @samuelragot presenting views from the Quebec Intellectual Disability Society/ Societe Quebecoise de la Deficience Intellectuelle.

"First, we must emphasize that we are very much in favour of the swift passing of Bill C-22. C-22 could play a decisive role in helping lift persons with disabilities out of poverty across the country. In that sense, it is a once-in-a-generation opportunity."

"Of course, we are aware that legislators may find voting on a foundational bill, which contains few details, uncomfortable. However, we believe that this is the right thing to do."

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@patriciaflsd

To be a #PWD in this time of turmoil during the creation of #C22 is a complex and emotional rollercoaster of events. A nation of ppl truly affected by the outcome are watching every single moment, working to be apart of the process, hoping to have their input. A🧵

There is nothing in the Bill which brings real comfort and trust in the system. That ultimately is the truth, as I see it. Call me a pessimist if you want to, but the truth is, as I see it- this needs to be wholly rewritten and expedited. It needs to call for accountability.

Some of the questions asked during the committee meeting were astonishingly crude. Able-bodied folk, imagine this scenario: you’re in constant pain, you’re either unable to see or hear or move or swallow, or any combination thereof; and the BIG question on the frontline is…

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It wud appear there may b some confusion. At the Huma committee 4 bill c22 the impression is that they think pwd want the cdb to b the same $ amount as Cerb was. That figure was for people to temporarily survive at a very basic minimum survival level 4 the able bodied.
#pwd 🧵

Is it that we want
a) $2000 a mth
Or
B) Is it that we want to see similarity to cerb such as a fast roll ounce it gets royal assent, easy to apply for, passed quickly as possible
But
An amount based on the present outrageous inflation rates and lift us Out of poverty
With the

Sorry in b) this shud read fast roll out once it gets royal assent

Read 7 tweets

Mitchell Tremblay

@ODSPoor

https://twitter.com/PWDCAN/status/1585360575206653952

Watch LIVE now! #cdbby23 #canadadisabilitybenefit #derb #odsp #pwd #c22

https://twitter.com/PWDCAN/status/1585360575206653952

Gray is calling out the amount of talking they did with no substance, she wants a timeline but he blames parliamentary timeline for holding up his timeline, best estimate is a year?

Bynen asks about episodic disabilities like arthritis and MS etc, response is we need to look at the diversity of it, eligibility and criteria, some benefits 3 months up to permanent. income tested.

Read 8 tweets

Sonia Furstenau

@SoniaFurstenau

@NicholasSimons

Today I asked Minister @NicholasSimons if he would immediately raise the rates for people with disabilities so that they are no longer forced to live below the poverty line.

The current disability assistance program undermines the human rights of #PWD across BC. 1/ #bcpoli

The cost of living is breaking records. Rent, food, fuel prices, medication – people everywhere are struggling to stay afloat. And for people with disabilities, they’re expected to live on $16,300 a year. 2/ #bcpoli #PWD

@CQualtro

Currently #BillC22 is making its way through the federal parliament. The goal of this legislation is to ensure that people with disabilities are not living beneath the poverty line.

But Minister @CQualtro says it may be a year or more before benefits arrive. 3/ #bcpoli

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@OPENDiabetesEU

🧵How can #HCP assist people who chose to use #DYIAID?

The @OPENDiabetesEU ⤵️
▶️ Katarina Braune is a co-founder
▶️ Patient-led
▶️ 2/3 of the international team live w/#T1D
▶️ #OpenSource #AID data

#ISPAD2022 #dedoc°voices #wearenotwaiting @dedocORG @ispad_org 1/n

@dedocORG

How can #HCP assist people who chose to use #DYIAID?

#wearenotwaiting movement ⤵️
Because DIY #ClosedLoop systems have been so life-changing for them and their kids, they decided to make it available for all.

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 2/n

@TheLancetEndo

How can #HCP assist people who chose to use #DYIAID?

International consensus statement on #OpenSource automated insulin delivery ⤵️
✅ Published in @TheLancetEndo on Nov 13 2021
▶️ thelancet.com/journals/landi…

#ISPAD2022 #dedoc°voices #payitforward @dedocORG @ispad_org 3/n

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@dedocORG

🧵#ISPAD #dedoc° symposium:

Dedoc° started 10y ago on Twitter:
✅ Peer support
✅ Meetings outside of scientific conferences cause #PwD were not allowed in

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n

@tadorna

#ISPAD #dedoc° symposium:

ISPAD was the 1st scientific conference that organised a Dedoc° symposium in 2021 🙏
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 2/n

@tadorna

#ISPAD #dedoc° symposium:

Dedoc° is a platform for others to stand on - to have the #PwD voices heard 🔊
-@tadorna

#ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 3/n

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@dedocORG

🧵Microbiota: can they prevent #TID?
Incidence of T1D is rising particularly in the young.
Environmental factors could drive this pattern observed across the globe.
-N. Hanssen

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG @ispad_org 1/n

@dedocORG

Microbiota: can they prevent #TID?
+ rapid destruction of #BetaCells in kids than adults.
#PwD with residual beta cells have higher #TIR.
-N. Hanssen

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG @ispad_org 2/n

@dedocORG

Microbiota: can they prevent #TID?
Poor discrimination between self/not self [#autoimmunity] happens with loss of gut microbiome.
-N. Hanssen

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG @ispad_org 3/n

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@dedocORG

The last mile for #T1D cure:
'I believe that cell therapy can be the T1D cure. We've had landmark results in the last 2y.
-L. Piemonti

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs
#diabetesadvocacy #patientvoice #payitforward @dedocORG @ispad_org 1/n

@dedocORG

The last mile for #T1D cure:
'We know now that #BetaCell replacement can cure T1D. This is the #BG profile of someone who used to live with #diabetes 1y 1/2 ago.'
-L. Piemonti

#ISPAD #ISPAD2022 #dedoc°voices #NothingAboutUsWithoutUs #payitforward @dedocORG @ispad_org 2/n

@dedocORG

The last mile for #T1D cure:
'We started #BetaCell in Milan replacement in 1989. Had to wait for 30y for this procedure to be recognised.'
-L. Piemonti

Can you imagine living without the mental load & physical burden of #diabetes?

#ISPAD2022 #dedoc° @dedocORG @ispad_org 3/n

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@dedocORG

Digitalization in Diabetes Education and Care:
'We know that autoimmunity starts way before #T1D diagnosis - if screened. We learnt that #cpeptide might not be relevant thanks to models'
-Dr A. Galderisi

#ISPAD #ISPAD2022 #dedoc°voices
#patientvoice #payitforward @dedocORG 1/n

@dedocORG

Digitalization in Diabetes Education and Care:
'We can find heterogeneity in #T1D even before diagnosis. Important to individualise treatment.'-Dr A. Galderisi

Yes, every #PwD has their own #diabetes.

#ISPAD #ISPAD2022 #dedoc°voices
#nothingaboutuswithoutus @dedocORG 2/n

@dedocORG

Digitalization in #diabetes Education and Care:
'#TIR and #BG daily variability matter though we still look at the big picture. #AI can help us understand further.'
-Dr A. Galderisi

#ISPAD #ISPAD2022 #dedoc°voices
#patientvoice #payitforward @dedocORG 3/n

Read 6 tweets

@JustinTrudeau

@JustinTrudeau @KanataFoodCpbrd What a hypocrite. Did u sit all the poor kids together & explain 2 them that they r poor because u do not value their #pwd disabled parents life. Did you " teach" them how during the pandemic u sent cerb 2 to the kids/ parents of able bodied but offered 2 execute their parents?

@JustinTrudeau

@JustinTrudeau @KanataFoodCpbrd Did u sit the poor kids down and give them a math lesson how its cost effective for their disabled parent to die/sacrifice themselves to increase the wealth of others. Did u explain how soon they too may get the same opportunity when assisted murder will b offered 2 mature minors

@JustinTrudeau

@JustinTrudeau @KanataFoodCpbrd Did u sit the poor kids down & say soon there may b an opportunity 4 the government to kill off babies up to age 1 if they have a disability. To prevent this unacceptable situation from recurring in ww2 Germany oops I meant 2 type Canada in the first place. Eventually ridding

Read 8 tweets

I am reading Amad committee report. Maid for mental illness. It is so twisted i feel like I have been beamed to another planet. So a person who can't access a psychiatrist/phychologist due to waitlists or costs cud likely get a Maid psychiatrist for purpose of death?
There is

Total lack of understanding on what discrimination pwd is. They are worried it will b against our Charter if they DONT kill someone where I see it as against our charter, human rights and United nations crpd to kill someone who cannot obtain

Timely good quality treatment.
This committee has it all backwards . I guess they r just going thru the paces as they had already decided the outcome. They keep talking about Belgium m aid program. 1) we r not Belgium we have our own heritage 2) Belgium spends almost 3% of gdp on

Read 9 tweets