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Putrino Lab

@PutrinoLab

Nov 7

@ManvBrain

Many folks have tagged me in the @ManvBrain article about #LongCOVID and I have just been so swamped that I haven't had a minute to respond, but I've retweeted some stuff by @meghanor and @sunsopeningband that say a lot of things that I wanted to say. I'll say a few more 🧵1/

The story of #LongCOVID, #MECFS and other complex chronic illness is a story of systemic bias, injustice, and a set of organic, biological illnesses that cannot be well characterized by conventional scientific approaches. I've just been blessed to spend the last week with 2/

@resiapretorius

@resiapretorius who has taught me (with endless patience and kindness, I might add), how #COVID19 triggers biological processes that create microclots and platelet pathology in people with #LongCOVID, whilst deftly avoiding every mainstream blood test we have for coagulopathy 3/

Read 18 tweets

Putrino Lab

@PutrinoLab

Oct 23

I’ve been presenting #LongCOVID material at a few conferences over the last few days, and it has led me to wonder about whether our entire system of professional development and media tips the scales against developing an understanding of complex chronic illness. Short 🧵 1/

Prior to #COVID19/#LongCOVID I interacted with the academic conference and media world through my work with neurophysiology and experimental neuroscience: not exactly simple stuff, but when a conference gave me a 10-20 min slot to speak, I could usually boil it down to 1-2 key 2/

points, give a reporter a pithy sentence that sums up the work and get the message out there. It is SO much more difficult to do this for #LongCOVID and other complex chronic illness! 10 mins to discuss a topic like “Rehab options for LC”? I need to spend min 10 mins on 3/

Read 5 tweets

Putrino Lab

@PutrinoLab

Oct 3

Honestly I just can’t with these “journalists” who claim to be allies of those with complex chronic illnesses, yet they attack studies like the recent VA study showing an alarming number of folks with #LongCOVID with an almost religious fervor. It’s transparent and pathetic. 1/

They claim that they’re doing it because the “real numbers need to be counted”, and “we can’t have people tuning out because of inaccurate reporting”, but really their jargony critiques of the work are designed to awe the uninitiated with their grasp of the science (whilst 2/

conveniently ignoring the fact that all of their points are brought up in the discussion sections of the manuscripts and are also well known caveats of large EHR trials. They also sidestep the FACT that #LongCOVID is still not well known enough for people to tune it out. 3/

Read 7 tweets

Putrino Lab

@PutrinoLab

Sep 21

So I guess a few days ago someone of vague, national significance with a huge Twitter following declared that the pandemic is over. Don’t get me wrong, I’m overjoyed. Good riddance. But I *do* have a few questions. 1/

@CDCgov

1. Just a few months ago, the @CDCgov (hi team!) released a paper saying that 1 in 5 acute COVID cases end in #LongCovid. Is that done now? Are there no longer cases of Long COVID being caused by #COVID? Or are we just ignoring the problem? 2/

@CDCgov

2. @CDCgov (we must stop meeting like this!) published a second paper that taught us that every acute #COVID reinfection increased your risk of death by 3%. Three hundred americans a day are still dying from COVID. Is this just the cost of doing business now? 3/

Read 8 tweets

Putrino Lab

@PutrinoLab

Sep 12

@MountSinaiNYC

With some new followers on board, I wanted to take the time to re-introduce myself to the #LongCovid community (and everyone else). I’m David Putrino: Director of Rehab Innovation at @MountSinaiNYC, Associate Prof at @MountSinaiRehab for @IcahnMountSinai 1/

I’m a physical therapist with a PhD in neuroscience, and my first passion was working with folks with neurological disabilities. As a kid who experienced a recovery from an acquired brain injury, this is a passion that runs very deep. 2/

@WeillCornell

After completing my clinical training and my PhD in Western Australia, I moved to the US. I had the pleasure of working at some great institutions such as @WeillCornell, @nyuniversity, @MIT, @Harvard and @MGHMedicine before landing at @MountSinaiNYC. 3/

Read 14 tweets

Putrino Lab

@PutrinoLab

Aug 18

@BreneBrown

Of all the hate and trolling I catch on here because of #LongCovid, I tend to be able to chuckle, shake my head and paraphrase @BreneBrown with an Aussie “accent”, you know? Something like “if you’re not here in the arena with me then maybe just shut the f*ck up”. But the one 1/

that just befuddles me the most is this group of clowns claiming that we’re selling a false narrative of #longCovid because we have something to gain from “selling” LC. Let me be clear: prior to the pandemic, my life and career were doing just great. In fact other than meeting 2/

@VirusesImmunity

some total badasses like @VirusesImmunity, @doctorasadkhan, @resiapretorius, @microbeminded2, @meghanor, @ahandvanish, @ItsAngInLA, @hmkyal, @fi_lowenstein, @AlisonSbrana and way too many others to name, there has been nothing but personal and professional sacrifice to take on 3/

Read 6 tweets

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