Thread by @TheChronicColab

A thread for #MEAwarenessHour.

The Chronic Collaboration has been working with @StripyLightCIC and @arisonsned on a guide for MPs to advocate on behalf of #SevereME patients. We're pleased to say that this will be out next Wednesday. BUT - we want everyone to be involved 1/

2/ Next Wednesday during #MEAwarenessHour we'll have a online version of the guide that everyone can see. We want people to tweet their MPs, sharing the guide with them & telling them why it's so important. We have a new hashtag for this: #MPDoYourJob4ME. But that's not all

3/ We'll be providing the APPG on ME with a copy of the #SevereME advocacy guide for it to present to it's AGM next Tuesday, 21 March. So - next week's #MEAwarenessHour will be big. Please get involved as Alice, Sami, Louise & so many more need us.

But that's still not all.

4/ Further to our #DontLetMEDie protest last week, the Collaboration has, as promised, sent our three demands out to each of the organisations mentioned: the APPG on ME, the health & social care select committee & the Department for Health & Social Care #MEAwarenessHour

5/ So far we've had a response from the DHSC. It told us that if they feel a reply is "appropriate", then we'll will receive a "reply within 20 working days". So we'll wait & see #MEAwarenessHour

We also want to thank everyone for the support with #DontLetMeDie protest

6/ We were overwhelmed with the level of interaction. #DontLetMEDie was trending in the UK & the US, and the tweet with the livestream has had over 38k views. So, thank you so much. It means a lot.

We'll see you next week for #MPDoYourJob4ME #MEAwarenessHour