The impact on the entire family can be devastating. "A horror story."
Emily was a healthy, happy, active child & now is registered disabled with significant mobility problems. Not seeing her friends has made her depressed, anxious & angry😔
"You don't cope with it, as a parent. You put on a brave face and you try to say the encouraging things to keep the spirit in your home uplifted. You tell people that he's doing alright because you don't want to burden people by telling the truth."
Not these🍳🍳
👉 Paediatric Acute-Onset Neuropsychiatric Syndrome.
In March '20 we had #COVID19 for the 1st time. #SARSCoV2 triggered #LongCovidKids & #PANS. We've since had 2 further infections. Each one has made her worse.
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1
I can't describe #PANS because words don't capture the horror of your sweet, shy, polite little girl turning into what can only be described as a cross between Samara from The Ring and a full on banshee vampire intent on vengeance and destruction.
TW: Video IS distressing.
2
This is not bad behaviour. This is caused by a misdirected immune response to infection = widespread inflammation, including in her brain. Her brain is on fire.
She has absolutely no control. She screams until she wretches (and on occasion, vomits) It's scary for her. #PANS