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Finally, the #GoldacreReview is published! (During Parliamentary Easter holidays, mid-ping-pong on the #HealthAndCareBill...)
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
It's 221 pages - each PDF page is a double page spread - so this could be a lo-o-o-ong [Thread].
Here goes...
First point to note, in the Terms of Reference (p5), is that this is about "access to #NHSdata by #researchers, #commissioners, and #innovators" - i.e. #Planning and #CommercialReUse - so it is directly relevant to the operation of millions of people's #NationalDataOptOuts... 
"185 wide-ranging recommendations for us to explore", says @sajidjavid (p6). Gulp! Time for some coffee...
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
"systems that ensure #underrepresented groups are well represented" may (partly) refer to this "landmark review", which got off to a slow start:
gov.uk/government/new…
On this I can agree with @Dominic2306, and go further.
#SW1 #IT and #IG has been in a parlous state for well over a DECADE, and more.
A year and a slew of inquiries after the @HMRC #ChildBenefit #DataBreach in 2007, we #FOIed every Government Department about the #databases...
#SW1 #IT and #IG has been in a parlous state for well over a DECADE, and more.
A year and a slew of inquiries after the @HMRC #ChildBenefit #DataBreach in 2007, we #FOIed every Government Department about the #databases...
..of #PersonalData they held. (Initially just the ones containing over 1 million records.)
I'll have to dig up the responses, but I clearly remember only 4 or 5 (out of 24) even had an #InformationAssetRegister, i.e. just a basic list of all the #databases for which they were...
I'll have to dig up the responses, but I clearly remember only 4 or 5 (out of 24) even had an #InformationAssetRegister, i.e. just a basic list of all the #databases for which they were...
...'#responsible'.
The responses from @cabinetofficeuk & @10DowningStreet were even more appalling; they admitted allowing officials to routinely make copies of #population-scale data "for policy reasons" with no #oversight, no #audit, no defined #IG processes, and no idea of...
The responses from @cabinetofficeuk & @10DowningStreet were even more appalling; they admitted allowing officials to routinely make copies of #population-scale data "for policy reasons" with no #oversight, no #audit, no defined #IG processes, and no idea of...
