I have just finished reading @BPDFFS chapter in the ‘Working effectively with Personality Disorder’ book. It’s a beautifully written first chapter to the book. A complex subject introduced in simple terms, without dumbing it down. /1 > amazon.co.uk/Working-Effect…
> I love that even though @BPDFFS describes the chapter as ‘personal thoughts about personality disorder’ - she provides an example of experiential working at its best - she uses insight from her own lived experience, but positions it within the wider range of views that exist /2
> within the survivor movement, from the anger of people harmed by poor services, activists using satire as a tool for protest, critical views (both negative and positive), people satisfied with the service they receive and those who feel that the label has helped them. What /3 >
> I love is that @BPDFFS doesn’t invalidate any of these positions, but contextualises them and uses the range of opinion to demonstrate why individualised interventions/therapies/care plans are needed to suit different needs and why choice is so important. I also love that /4 >
> @BPDFFS has highlighted how the impact of @BPSOfficial pulling funding from the Personality Disorder Commission was one of the reasons why Emergence CIC, the only survivor led personality specific organisation in the UK, subsequently went into liquidation. Much work by /5
> survivor led organisations becomes extinct and the knowledge learnt is forgotten. It means that our work never has a chance to develop or grow. It’s is so important that we record the impact of this in books, published papers, blogs... any form of written word to ensure our /6
>work lives on, not forgotten. Thank you @BPDFFS. Another great chapter from an #LXP #LivedExperiencePractitioner in the book. That shiny medal from Liz was well deserved 😉😻 The NHS has lost a valuable member of its family. I hope that you go on to have a post you deserve ❤️/7
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More from @tamar_whyte

10 Oct
It’s #WorldMentalHealthDay - a day that #MentalHealth activists love to hate, because hey, it’s not all light at the end of the tunnel (yay Recovery 🙄) & it’s not just one day of the year. But sod it, here’s a pictorial compilation for you. Bonus points if u get to the end 1/25
2/25 Meds. Love them or loathe them, they are a daily reality for many of us. Big Pharma makes a lot off us Mentals. Did you know that my most debilitating diagnosis can’t be medicated? But all the others equate to 13 tablets a day, plus any extras on PRN #WorldMentalHealthDay
3/25 I’ve never, ever, ever been able to maintain taking meds regularly. But I do now. The Hubster wakes me up with a coffee, toast and meds. But having a caring, loving person in my helps me more than any meds. Sadly not available on prescription for us all #WorldMentalHealthDay
Read 26 tweets
21 Jun
It’s good that examples of CEOs taking race discrimination seriously beyond just listening to stories into action is happening. I hope that these skills in tackling inequality will be used in tackling discrimination that #LXPs face too >
> As a mixed race, pan, disabled woman, none of the #NHS staff networks provide the support I need because where I face the most intense discrimination & inequality is openly using insight from a mental health condition in my work. It’s not an area any adequately understand /2 >
> Because they don’t understand how this extra layer of discrimination impacts on their #LXP members, because it’s so invisible, we can’t get the support we so desperately need within them. I notice that my #LXP colleagues who aren’t white, are LGBTQ, physically/neurodiverse /3 >
Read 22 tweets
17 Mar
#BusStopWanker #Diaries Sometimes even a disabled bus pass isn’t enough to get around. Woke up this morning at 6am crying, fell asleep & woke up with a massive cry fest hangover. Couldn’t wake up for the headache. The Hubster has had to take me to triage appt 4 dental surgery /1
One of the ways of coping with days like this where I have to face the world whilst my insides and face are in a state is a shit ton of make-up. Unfortunately in my haste I’ve left it. So had to make do with a brush & hat /2
The current dip in mood & anxiety levels are caused by the impact of stress caused by my own experiences of discrimination as an #LXP, but mainly the levels of energy & effort it takes to address it. It involves me skilling up support staff on LXPs ie. union/equality staff /3
Read 17 tweets
12 Feb
Ok, that bath was a bit of a disaster, I think I’ll have to start a #BathTimeWanker series to rival the #BusStopWanker one 😹 So, my lovely mate made me a beautiful pamper basket. I’ve been trying to use it since Sunday. I’ve built up to this moment since waking up this morning/1
I have fun adding the biggest, most unicorn bath bomb you’ve ever seen in your life. I add half a bag of Epsom salts. Some lavender bubble bath. I go downstairs & get a drink. Since I have no bubbles to stick in a champers glass to be totally extra, I make a cuppa of earl grey /2
Obviously the Earl Grey needs a splash of Lidl’s finest gin & loads of hunny. Yum yum yum. I keep adjusting the temperature of the water because I’m not going to do my usual trick of ending up with it being stone cold/too hot & wasting a years worth of bath products /3
Read 11 tweets
6 Feb
It’s #TimeToTalk about people who are employed to use their experience of mental distress in MH charities ie. @MindCharity @TimetoChange. #LivedExperiencePractitioners #Peers experience discrimination, derogatory pay & active blocks to career progression #TimeToListen #TimeToAct
#TimeToTalk Many people don’t realise is that large generically run charities such as @MindCharity are given majority of funding, whilst orgs run by people who live with mental health conditions & grassroots groups are not funded. We are becoming extinct. theguardian.com/society/2019/j…
The National Service User Network @NSUN is run by ppl with lived experience of Mental Health condition, but even that has lost its funding - the one org trying to support and keep our SU-led orgs together! #TimeToTalk Why can money go to @TimetoChange but not SU-led national org?
Read 11 tweets

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